How do you manage neuropathy and loss of balance and walking ability?

@larry68 Amiodarone Hcl 200 mg.

@larry68 thank you for your response Larry. I looked up the medication. It appears it’s used for a heart conditions. I was wondering how that was affecting your neuropathy. I didn’t see any correlation.

@cleodog I had had a Afib attack and specialist put me on it.Then i couldn't walk,talk or much of anything.Falling down all the time.If you read it one of the side effects are not being able to walk or talk for some people.

You’ll be a lot safer if you walked with a cane with a wide bottom and a walker if your balance is really bad. Neuropathy sucks and there’s nothing you can do about it. What’s baffling is some people with PN have serious pain while others don’t.

The burning in my legs at night has been unbearable, but last night I started using 3 pillows under my legs and this helps me sleep.

It has been my experience, after years of dealing with peripheral neuropathy, that it may not be easily treatable! My Neutologist, my family Doctor, and my Orthopedic Doctor have not been forthcoming in giving me any viable treatments, that help, the pain, numbness, sensations of voltage (buzzing), going down one or more of my limbs. So, after years of questioning the Docs, I don’t even bring it up anymore! I’m at the age where the Docs have backed off treatments, for various ailments. Instead, I get a placating, wellness check - nothing thoroughly investigated or treated, anymore! Having shooting, buzzing like discomfort, especially in my arms and legs, and no answers, or help, or even understanding from medical providers, can be, and is most disheartening, so I empathize with the plight, of many, who suffer from peripheral neuropathy!

@foundryrat743
I learned recently that there are 2 kinds of peripheral neuropathy; axonal and myelin, and 90% of cases are axonal, which are not treatable. Myelin neuropathy can be treated, see the treatments for CIDP, chronic inflammatory demyelinating polyneuropathy. I've had a lumbar puncture, nerve conductivity and EMG tests. The labs on my Cerebro spinal fluid that was extracted via lumbar puncture all came back as "abnormal" but I don't know what if anything that means since I have to wait weeks and weeks to see my neurologist! VERY frustrating!
There is a new drug for CIDP called Vivgart, widely advertised on TV.

I use a wrist crutch for walking around and a walker chair in my wood shop and in the kitchen. I havve a new walker that I use if off hard ground, it has larger wheels. The VA gave me ellectronic devices that fit in my shoes and around my lower leg. There were suposed to signal my brain that I was walking but I think I am to far gone, they didn'[t help. I tried for four months.

@wenner I found a nice walker with a seat for good price. I hid it for now. My family doesn’t really understand.

I always have a walking stick handy. Some days I need 2 sticks. Accept it and keep yourself safe, a broken bone would be no fun. @wenner