Post-COVID Syndrome is real

Dr. Poland and others have suggested that you have to treat this fatigue and recovery as if it were brand new. Start with finding out how much you do in a day. Then cut back until you are barely tired, or not tired at all. Stay there for a few days until fatigue is all or partially gone. Pressing yourself until you collapse does more damage than good and puts a lot of strain on your lungs. I then suggest every few days increasing activity by 5 minutes until you aren't collapsing. I know, I know it's frustrating and you will become even more frustrating. But doing this will help you move forward rather than not getting anywhere.

Does this make sense?

For everyone dealing with Post-Covid fatigue and other symptoms, short or long term, here is a link to Mayo's Blog on the condition. https://connect.mayoclinic.org/blog/post-covid-recovery/
New information is presented in an easily readable format as it is discovered or developed. Information is kept very current. A great place to begin in your quest for answers, or a place to refer friends and family members for the "latest and greatest" research-based information.
Sue

I’ve had post Covid syndrome since March 2020. In January 2021, Mayo Jacksonville was finally able to diagnose me. They are trying to treat my myriad of symptoms but unfortunately have not been able to work for over a year. Currently working to get SS disability. It is so debilitating and hoping all the research finds answers soon. Thanks for the post Covid blog link. I didn’t know about that.

@lynnryan- Good morning and welcome to Mayo Clinic Connect. I am so sorry that you have had an unimaginable long time with Covid. Oh, my goodness. I guess my question to you is how have you gotten by all of this time? And may I ask what your myriad of symptoms, at least the debilitating ones are?

It has been such a difficult year. Luckily I have siblings in town who have been so wonderful from moving in with me when I couldn’t care for myself, to finally letting me move in with them when I had to sell my home when I could no longer take care of it. Most of my symptoms are neurological and my Mayo doctors says they are presenting as if I had a concussion, which I hadn’t, that I’m not healing from. I have chronic migraines, light/sound sensitivity, dizziness, brain fog, and fatigue. My vision has been impacted as when I read, I get stabbing right eye pain and dizziness. Covid has also caused me to get Fibromyalgia and sleep apnea. It amazes me those who won’t get vaccinated. Yes, you may get better, but you may become a long hauler which changes your entire life. 😣

I also get pretty bad migraines. Did you have them before Coivd?

I did, but infrequently. Maybe every few months.

Hi Lynn- I think that you might try to exercise every day by walking, to start off. Here are some things that you might try.
https://www.youtube.com/watch?v=vPje60GgHXc&t=139s&ab_channel=ImprovementPath
https://www.youtube.com/watch?v=MmMSS148XYI&ab_channel=CatLadyFitness
https://www.youtube.com/watch?v=4bWgttVmwiU&ab_channel=CraigStewart

Is there any reason that you shouldn't exercise? Any underlying conditions?

Thanks. It is difficulty to walk on my own, based on my dizziness. I have been doing vision and physical therapy. I am doing chair yoga and working to build up my tolerance by exercising in the pool.

Hello Sue, yes I went to a clinic here where I live and the Dr. was honest with me and said they really do not know how to treat us but they wanted to know my symptoms, how long I have had them and what happened after I took the vaccines and she said they are gathering research at this time. Was not very helpful!