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Parkinson's and Sleep Problems

Posted by @hopeful33250, Nov 14, 2016

@chrisj2491 @caryp43 @denie57 @johnjames @trouble4343 @tntredhead @aperob @hdruss @retairforceman @macbeth. Hello all! I just read a post from one our Parkinson’s spouses about extra activity at night and it got me to wondering how many others out there have very vivid dreams at night that might disrupt sleep and cause problems. If you have, please feel free to share your experiences. If you have found a good way to deal with it (meds, etc.) we would like to know about that as well.

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Most of the time I have trouble sleeping. Along with that my internal thermostat has gone “wacky” and I wake up “drenched” with sweat.

@chrisj2491

Most of the time I have trouble sleeping. Along with that my internal thermostat has gone “wacky” and I wake up “drenched” with sweat.

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Thanks for your input @chrisj2491, has your doctor made any suggestions regarding this or have you found any triggers for these internal temperature changes?

@caryp43 @denie57 @johnjames @trouble4343 @tntredhead @aperob @hdruss @retairforceman @macbeth Has anyone else noticed night sweats related to Parkinson’s? What about other sleep problems related to PD?

I just assume I don’t need the sleep – last night it was after 4:00am, before I fell asleep

@trouble4343

I just assume I don’t need the sleep – last night it was after 4:00am, before I fell asleep

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Trouble4343 – How well I relate to that problem and then my cardiologist gets very upset with me.  Tells me if I dont take care of myself, I can’t take care of my hubby.  They just don’t seem to understand that saying you should do it is much different from being able to do it.

I am sorry to hear that @trouble4343. How long has the problem been going on? Have you talked with your doctor about the sleep problems? A sleep study might be in order. It would at least diagnose a problem. There are some good meds (that are not sleeping pills and are not addictive) that might help you. Feel free to talk with your doctor, you might be able to find some relief.

@trouble4343

I just assume I don’t need the sleep – last night it was after 4:00am, before I fell asleep

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Hi @tntredhead, I was just wondering if you have connected with our Caregiver’s Group here at Mayo Connect? There are some great folks in the group who could certainly relate to your situation. I’ll tag the mentor for that group @IndianaScott. He will welcome you into the group.

Liked by macbeth

I do take a “sorta” sleeping med prescribed by my Psych Doc (I also have Bipolar Disorder, among other things) I take it regularly, but it doesn’t always work. I did talk to the Psych Doc about it day before yesterday. We are considering another one.

@trouble4343 I’m glad that you are in communication with your doc, be persistent until you get the help you need.

@trouble4343

I just assume I don’t need the sleep – last night it was after 4:00am, before I fell asleep

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Hi @hopeful33250 I don’t think I have connected with the Caregiver’s Group but I will look them up.  Thanks for the suggestion.The Redhead

@trouble4343

I just assume I don’t need the sleep – last night it was after 4:00am, before I fell asleep

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Hello @tntredhead I am Scott from over in the Caregivers group. You can find us all here — https://connect.mayoclinic.org/group/caregivers/. I was the primary, and more often than not the only, caregiver for my wife for 14+ years during her war with brain cancer. We are a group of caregivers sharing, supporting, and most of all not judging! Your comment about your Doc using the platitude “take care of yourself” rang true to me. IMNSHO this is said only to make the person who utters it feel better! I hope you find some support, a few chuckles, and maybe some caregiving e-friends here!

Strength, courage, and peace!

@trouble4343

I just assume I don’t need the sleep – last night it was after 4:00am, before I fell asleep

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@tntredhead How are you doing with the “taking care of yourself”? Have you found a way to care for your husband and still get the rest you need? Let us know how you are doing. Teresa

Hello @jetquack9

I am the volunteer mentor for the Parkinson’s discussion on Connect and I would love to have you join our discussions. The link that Colleen sent you for the presentation on sleep problems and Parkinson’s is an excellent one. I believe you will benefit from it. Please check out all of the topics in the Parkinson’s discussion and join in whenever you can.

I would be interested in knowing how long you had symptoms of PD before it was diagnosed? For many of us it was many years before a doctor put all the symptoms together and made a diagnosis. I would also like to hear what meds have been most helpful and any exercises that work well for you. Many of us are in the Pedaling for Parkinson’s program, @mariemarie, can speak to that. We also engage in other exercise programs. My favorite is Dance for PD (all the dance moves are done seated with music in the background). Tai Chi has also been very helpful for me in achieving better balance.

I’m looking forward to hearing from you and getting to know how you are dealing with this disorder.

Teresa

My .doc has prescribed me qutan 10 mg

@hopeful33250

@caryp43 @denie57 @johnjames @trouble4343 @tntredhead @aperob @hdruss @retairforceman @macbeth Has anyone else noticed night sweats related to Parkinson’s? What about other sleep problems related to PD?

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Yes both my wife and I have noticed that I am sweating during the night or that my body temperature goes up while sleeping. Not every night, 2-3 nights per week on average. I am keeping a journal to determine whether it is diet or exercise related.

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