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Teresa, Volunteer Mentor (@hopeful33250)

Parkinson's and Sleep Problems

Parkinson's Disease | Last Active: Oct 15, 2023 | Replies (23)

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@trouble4343

I just assume I don't need the sleep - last night it was after 4:00am, before I fell asleep

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Replies to "I just assume I don't need the sleep - last night it was after 4:00am, before..."

Trouble4343 - How well I relate to that problem and then my cardiologist gets very upset with me.  Tells me if I dont take care of myself, I can’t take care of my hubby.  They just don’t seem to understand that saying you should do it is much different from being able to do it.

Hi @tntredhead, I was just wondering if you have connected with our Caregiver's Group here at Mayo Connect? There are some great folks in the group who could certainly relate to your situation. I'll tag the mentor for that group @IndianaScott. He will welcome you into the group.

Hi @hopeful33250 I don't think I have connected with the Caregiver's Group but I will look them up.  Thanks for the suggestion.The Redhead

Hello @tntredhead I am Scott from over in the Caregivers group. You can find us all here --- https://connect.mayoclinic.org/group/caregivers/. I was the primary, and more often than not the only, caregiver for my wife for 14+ years during her war with brain cancer. We are a group of caregivers sharing, supporting, and most of all not judging! Your comment about your Doc using the platitude "take care of yourself" rang true to me. IMNSHO this is said only to make the person who utters it feel better! I hope you find some support, a few chuckles, and maybe some caregiving e-friends here!

Strength, courage, and peace!

@tntredhead How are you doing with the "taking care of yourself"? Have you found a way to care for your husband and still get the rest you need? Let us know how you are doing. Teresa