Mayo Clinic Connect
Many of us with Parkinson’s have speech problems. There are speech therapies such as LSVT Loud, breathing exercises, etc. Let’s share some of the speech problems we have and what strategies we have used to have clearer speech and better swallowing.
My husband kept getting aspiration pneumonia from the swallowing issues. The docs at Mayo injected Botox into his espahagus about 8 months ago and we have had no problems since then.
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Hi @tntredhead thanks for sharing something that worked for your husband. I’m glad to hear that his aspiration pneumonia is not an issue. Do the Botox injections have to be repeated on a regular basis?
What about your speech and swallowing problems @chrisj2491 @johnjames @trouble4343 @ggopher @aperob @caryp43 @burgle and @macbeth. Any other problems you may have had or things that have helped you? I have used an EMST150. It has to be ordered online and when I ordered mine it was about $50, it is not covered by insurance, but it certainly helped me. It is an instrument that increases the strength of the expiratory muscles. It helped with both my speech volume as well as the swallowing issues. If I go for a while without using it I notice a difference.
We were told they might need to be repeated in the future if I noticed he was having a problem. So far, so good.The Redhead
I recently saw this article dealing with speech problems and the healing role that singing can play in recovering speech. While this article is directed towards those who have lost their voice because of a stroke, there is also a benefit of singing for Parkinson’s patients. Has anyone had any experience with singing to improve speech?
@chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @aperob @caryp43 @burgle @macbeth @knightkris @mariemarie @pjsammy @techi @sandycerem @bobbieingeorgia @gulfer @mojo1965 @brittalisse @ruby7dnj
And I thought I was the first person to discover this. Yes, it is true. Many years ago I sang in choirs, barbershop quartet and the like. It occurred to me recently that using different pathways might get my voice working again and it does help. I find that
I just can’t talk some days, but if I sing awhile first, especially at volume, it seems to loosen something and helps regular speech awhile. It also improves enunciation and slows me down.
Liked by Colleen Young, Connect Director, Teresa, Volunteer Mentor
@ggopher Hello and thanks for your reply regarding the benefits of singing if you have PD.
Here is a link to a website about Joyful Noise Chorus. It is a choral group especially for those with neurological disabilities, http://joyfulnoisechorus.org/.
I think you will all enjoy their work.
sounds like a great idea. I hope to try this with my husband when he comes out of the hospital.
I’m sorry to hear that your husband is in the hospital. Is he being treated for the swelling in the legs that you mentioned in an earlier post?
I hope he is doing better now.
Singing, especially in a chorus, is life enhancing for all. But there’s some visual discord in this Joyful Noise Youtube. The chorus members with neurological disabilities are inappropriately singled out, I think, by their bright green tee-shirts. A standard white-shirt chorus look would have enhanced the harmony of the event without magnifying the neurological side of some of the singers identities.
@anna1060 Hello, I see this is your first post at Mayo Connect. Welcome. You make an interesting observation regarding the chorus. Do you have Parkinson’s? If so, we would enjoy getting to know you. Please share something about yourself.
Yes. I was diagnosed in October after a DaT scan. I’m being treated with Azilect (rasagaline) and visit this discussion group and another hoping to compare my response to the drug with other people’s.
I appreciate your sharing more about yourself, @anna1060
I did not know that a DaT scan was being used to diagnosis Parkinson’s. Could you tell us a little more about it?
If you are comfortable doing so, please share a bit more as to how long it took for you to get a PD diagnosis (for some of us it is a long time) and what type of symptoms you were having when you were diagnosed. How is the Azilect working for you? Is it dealing with your symptoms?
We look forward to hearing more of your story – we all learn from each other at Mayo Connect.
Sorry to break in here but I thought the DaT scan was a standard procedure. When I was first seen at Neuro I was told they would like one but I didn’t care much for that long in an MRI and they told me it didn’t matter a lot because I had so many (mild)
symptoms that they would treat me for PD regardless of results anyway.
Could you explain the “tightness” in your thighs? I have developed what almost feels like a constant cramp in one leg in front and back just above the ankle. I see the RN Wednesday and wonder if it is a new wrinkle in PD.
@ggopher Hi Steve:
Always feel free to “break-in.” The tightness in my right thigh is like a cramp or feeling of tightness. According to the physical therapist, it is a Parkinson’s problem, sometimes referred to as rigidity. I have a great stretching exercise which really relieves the pain.
Here is an article about leg pain and PD, https://defeatparkinsons.com/2015/08/24/how-to-deal-with-the-6-common-causes-of-leg-pain-in-pd-by-dr-de-leon/
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