Parkinson's and Moods

Any of us with Parkinson's know that our moods are affected by this disorder. Much of it has to do with the change in the chemistry of our brains. There are good medications available to help us, however, there are other activities that can help as well. Exercises like Tai-Chi, yoga, and others can not only help our moods of depression and anxiety but can also increase our range of motion, and balance which are always problems with PD. I read a blog the other day from the Michael J. Fox website that took my fancy and I decided to share it with you all. It's about cartoons (probably not what you were expecting me to say)! Here is the link to the blog. Take a look and let's share something about humor and PD.
https://www.michaeljfox.org/foundation/news-detail.php

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

Profile picture for knightkris @knightkris

Thank you Tressa.
I will be ordering the hard copy of this book. Will let ypu know how it is anx how it applies to myself. What I can take away from it.

My biggest issue with PD is counseling. I onlyam able to receive a limitex amount of counseling sessions. 4 to br exact, then I need to pay. A same. Well I will ask to see what else is available.

Other than that I am experiencing severe sleep issues. Is this pary of having PD. This is what I have been told. Not sleeping, than too much sleep. Very aggravating

Thanks again

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@knightkris You mentioned that your big issue is counseling and the thought occurred to me that perhaps a support group might be a good addition to the limited counseling that is available to you from your insurance. In a support group, you find that you are not alone with your feelings of anxiety, distress, depression, etc. - and often you find help from hearing others talk of how they cope, or what they have learned. You might "Google" the term "Support Groups for Parkinson's" and see what you can find near your home. Also, NAMI has great support groups for people who deal with all types of anxiety, depression, etc. They generally have support groups for those who suffer from these problems as well as separate support groups for family members and often educational meetings. I encourage you to look for support groups such as these, you might find them very helpful. Also, you can journal about your feelings, worries, etc. Often that can shed light and give you a greater sense of peace. I wish you well as you deal with the mood issues associated with Parkinson's - as we all know, they can be tough! Teresa

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Profile picture for knightkris @knightkris

Thank you Tressa.
I will be ordering the hard copy of this book. Will let ypu know how it is anx how it applies to myself. What I can take away from it.

My biggest issue with PD is counseling. I onlyam able to receive a limitex amount of counseling sessions. 4 to br exact, then I need to pay. A same. Well I will ask to see what else is available.

Other than that I am experiencing severe sleep issues. Is this pary of having PD. This is what I have been told. Not sleeping, than too much sleep. Very aggravating

Thanks again

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Well, I don't know the proper name, but it is like a mouth guard that pushes the bottom jaw forward so my freight train snore is now a whisper and seems to sleep better. It is like 2 tooth-whitener trays hinged together to push the jaw forward. 

Steve  

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Profile picture for knightkris @knightkris

Thank you Tressa.
I will be ordering the hard copy of this book. Will let ypu know how it is anx how it applies to myself. What I can take away from it.

My biggest issue with PD is counseling. I onlyam able to receive a limitex amount of counseling sessions. 4 to br exact, then I need to pay. A same. Well I will ask to see what else is available.

Other than that I am experiencing severe sleep issues. Is this pary of having PD. This is what I have been told. Not sleeping, than too much sleep. Very aggravating

Thanks again

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Oh now i understand.Thanks Steve.

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Profile picture for knightkris @knightkris

Thank you Tressa.
I will be ordering the hard copy of this book. Will let ypu know how it is anx how it applies to myself. What I can take away from it.

My biggest issue with PD is counseling. I onlyam able to receive a limitex amount of counseling sessions. 4 to br exact, then I need to pay. A same. Well I will ask to see what else is available.

Other than that I am experiencing severe sleep issues. Is this pary of having PD. This is what I have been told. Not sleeping, than too much sleep. Very aggravating

Thanks again

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Thank you

I will ask the PD counselor about support groups. I have one more session left, next week.

I also will check on NAMI to see if this organization exist hete in Vancouver BC Canada

My doctor is trying to help me out. I just am not a fan of to much medication. I already take meds for PD and Fibromyalgia as well as type 2 Diabetes. Then the sleep aids. Just to much.....

Thanks

Kristopher

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Profile picture for knightkris @knightkris

Thank you Tressa.
I will be ordering the hard copy of this book. Will let ypu know how it is anx how it applies to myself. What I can take away from it.

My biggest issue with PD is counseling. I onlyam able to receive a limitex amount of counseling sessions. 4 to br exact, then I need to pay. A same. Well I will ask to see what else is available.

Other than that I am experiencing severe sleep issues. Is this pary of having PD. This is what I have been told. Not sleeping, than too much sleep. Very aggravating

Thanks again

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@knightkris I understand your reluctance to add another pill to your routine. Medications can be very helpful for sleep problems, though. I wish you well as look for treatments. Teresa

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Profile picture for knightkris @knightkris

Thank you Tressa.
I will be ordering the hard copy of this book. Will let ypu know how it is anx how it applies to myself. What I can take away from it.

My biggest issue with PD is counseling. I onlyam able to receive a limitex amount of counseling sessions. 4 to br exact, then I need to pay. A same. Well I will ask to see what else is available.

Other than that I am experiencing severe sleep issues. Is this pary of having PD. This is what I have been told. Not sleeping, than too much sleep. Very aggravating

Thanks again

Jump to this post

I do have 3 different types of skeep medication now. I am just not fond of always having to take medication to sleep. And taking them I am awake in 4 hours

Thanks again

Kristopher

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Profile picture for knightkris @knightkris

Thank you Tressa.
I will be ordering the hard copy of this book. Will let ypu know how it is anx how it applies to myself. What I can take away from it.

My biggest issue with PD is counseling. I onlyam able to receive a limitex amount of counseling sessions. 4 to br exact, then I need to pay. A same. Well I will ask to see what else is available.

Other than that I am experiencing severe sleep issues. Is this pary of having PD. This is what I have been told. Not sleeping, than too much sleep. Very aggravating

Thanks again

Jump to this post

@knightkris I am sorry to hear that you haven't found a medication that works for you all night. That must be puzzling for both you and your doctor. Best wishes for a good night's sleep. Teresa

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Profile picture for Teresa, Volunteer Mentor @hopeful33250

Hello @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @tntredhead @aperob @caryp43 @burgle @macbeth @knightkris @mariemarie @pjsammy

I recently received an email from the National Parkinson's Foundation regarding moods as it relates to Parkinson's. They are offering a free downloadable book regarding this topic, here is the website where you can find the publication http://www.parkinson.org/sites/default/files/NPF-Mood.pdf. You can also order a free paper copy of the book at http://www.parkinson.org/pd-library/books/Mood-A-Mind-Guide-to-Parkinsons-Disease. It contains some very good information regarding why people with Parkinson's have problems with moods like depression, anxiety, irritability etc. and some helpful ideas for dealing with these moods, both with medicine as well as many self-help ideas.

Perhaps many of you have tried one or more of the suggestions in this publication. If so, please share with the group. We all learn from each other when we share our experiences.

Teresa

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Knighthins- can I ask if you have ever deal with constant pain in both legs from the Parkinson;s>? Thanks . JJames

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Profile picture for Teresa, Volunteer Mentor @hopeful33250

Hello @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @tntredhead @aperob @caryp43 @burgle @macbeth @knightkris @mariemarie @pjsammy

I recently received an email from the National Parkinson's Foundation regarding moods as it relates to Parkinson's. They are offering a free downloadable book regarding this topic, here is the website where you can find the publication http://www.parkinson.org/sites/default/files/NPF-Mood.pdf. You can also order a free paper copy of the book at http://www.parkinson.org/pd-library/books/Mood-A-Mind-Guide-to-Parkinsons-Disease. It contains some very good information regarding why people with Parkinson's have problems with moods like depression, anxiety, irritability etc. and some helpful ideas for dealing with these moods, both with medicine as well as many self-help ideas.

Perhaps many of you have tried one or more of the suggestions in this publication. If so, please share with the group. We all learn from each other when we share our experiences.

Teresa

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Jjames. I know u r awaiting response from knighthines. I experience tightness in mornings but as long as i bike(stationary) and do BIG exercise each morning at home and attend pedaling for PD 3 times week at health club i feel better...not great but ok. Still trying to put my arms around the diagnosis.

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Profile picture for marie @mariemarie

Jjames. I know u r awaiting response from knighthines. I experience tightness in mornings but as long as i bike(stationary) and do BIG exercise each morning at home and attend pedaling for PD 3 times week at health club i feel better...not great but ok. Still trying to put my arms around the diagnosis.

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@mariemarie You have a great program going! Teresa

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