Parkinson's and Moods

Posted by Teresa, Volunteer Mentor @hopeful33250, Dec 2, 2016

Any of us with Parkinson's know that our moods are affected by this disorder. Much of it has to do with the change in the chemistry of our brains. There are good medications available to help us, however, there are other activities that can help as well. Exercises like Tai-Chi, yoga, and others can not only help our moods of depression and anxiety but can also increase our range of motion, and balance which are always problems with PD. I read a blog the other day from the Michael J. Fox website that took my fancy and I decided to share it with you all. It's about cartoons (probably not what you were expecting me to say)! Here is the link to the blog. Take a look and let's share something about humor and PD.
https://www.michaeljfox.org/foundation/news-detail.php

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

Teresa, Volunteer Mentor | @hopeful33250 | Feb 28, 2017

@mariemarie Hi Marie: That is interesting, When I started w/ PD meds I took Sinemet (gold standard for PD). That is what I used for the Titration Schedule that I mentioned above. After the third week I began to notice that my walking was much better and I felt my lower extremities working much better. There was a sense of relief but it was not really a relief from depression exactly. Now I take a long lasting Sinemet drug called Stalevo. It has an added ingredient (Entacopone) and I just take two Stalevo and 1 or 1 1/2 of the Sinemet. It keeps me walking straight and having better control. Since your doctor suggested waiting a bit longer for the citalopram to kick in that might be a good idea. Teresa

Teresa, Volunteer Mentor | @hopeful33250 | Jun 1, 2017

Hello @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @tntredhead @aperob @caryp43 @burgle @macbeth @knightkris @mariemarie @pjsammy

I recently received an email from the National Parkinson's Foundation regarding moods as it relates to Parkinson's. They are offering a free downloadable book regarding this topic, here is the website where you can find the publication http://www.parkinson.org/sites/default/files/NPF-Mood.pdf. You can also order a free paper copy of the book at http://www.parkinson.org/pd-library/books/Mood-A-Mind-Guide-to-Parkinsons-Disease. It contains some very good information regarding why people with Parkinson's have problems with moods like depression, anxiety, irritability etc. and some helpful ideas for dealing with these moods, both with medicine as well as many self-help ideas.

Perhaps many of you have tried one or more of the suggestions in this publication. If so, please share with the group. We all learn from each other when we share our experiences.

Teresa

marie | @mariemarie | Jun 1, 2017

In reply to @hopeful33250 "Hello @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @tntredhead @aperob @caryp43 @burgle @macbeth @knightkris @mariemarie @pjsammy I recently..." + (show)

Thanks Teresa. good stuff.

knightkris | @knightkris | Jun 1, 2017

In reply to @hopeful33250 "Hello @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @tntredhead @aperob @caryp43 @burgle @macbeth @knightkris @mariemarie @pjsammy I recently..." + (show)

Thank you Tressa.
I will be ordering the hard copy of this book. Will let ypu know how it is anx how it applies to myself. What I can take away from it.

My biggest issue with PD is counseling. I onlyam able to receive a limitex amount of counseling sessions. 4 to br exact, then I need to pay. A same. Well I will ask to see what else is available.

Other than that I am experiencing severe sleep issues. Is this pary of having PD. This is what I have been told. Not sleeping, than too much sleep. Very aggravating

Thanks again

ggopher | @ggopher | Jun 1, 2017

In reply to @knightkris "Thank you Tressa. I will be ordering the hard copy of this book. Will let ypu..." + (show)

I've had sleep problems for years. I sleep 8 hours but don't rest. Had a sleep study early this year and found out I was only getting restful sleep (in lay terms) 53% of the time. Had a mouth-thingy (another tech term) made and a follow up home sleep study

showed that supposedly fixed everything. But I still nap at least twice a day. Don't seem to be quite as sleepy quite as much but it was not a cure in my case. At least no Cpap is needed.

Steve

knightkris | @knightkris | Jun 1, 2017

In reply to @knightkris "Thank you Tressa. I will be ordering the hard copy of this book. Will let ypu..." + (show)

Thanks for the information Steve.

Teresa, Volunteer Mentor | @hopeful33250 | Jun 1, 2017

In reply to @knightkris "Thank you Tressa. I will be ordering the hard copy of this book. Will let ypu..." + (show)

@ggopher Hi Steve: Thanks for sharing that information. Teresa

Teresa, Volunteer Mentor | @hopeful33250 | Jun 1, 2017

In reply to @knightkris "Thank you Tressa. I will be ordering the hard copy of this book. Will let ypu..." + (show)

@knightkris I'm sorry to hear of your sleep problems. I hope that you are able to find a remedy.

knightkris | @knightkris | Jun 1, 2017

In reply to @hopeful33250 "Hello @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @tntredhead @aperob @caryp43 @burgle @macbeth @knightkris @mariemarie @pjsammy I recently..." + (show)

Tbank you for your kind words. I shall try. My doctor is also tryong to figure this out as well.
Kris

marie | @mariemarie | Jun 2, 2017

In reply to @knightkris "Thank you Tressa. I will be ordering the hard copy of this book. Will let ypu..." + (show)

Steve what do u mean by mouth thingy? Thanks. Marie

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