Pancreatic cancer reoccurrence

Posted by sadiegrace @sadiegrace, Apr 29 8:06pm

Hi, my name is Trish, I had pancreatic cancer 7 years ago. This reoccurrence was a surprise since I had a CT on March 9th, with no sign of anything to a .5mm stricture of small intestine caused by a mass that is malignant. Just had a stent put in to on Monday to open the intestine and I am feeling much better. Will see my oncologist on May 6th, and maybe find out what stage it is. Because I haven’t eaten very well for the past few weeks and have lost almost 20 lbs, it’s left me feeling weak and tired.

@rexsan20

So sorry to ask about this…..what is the best way to see if you have pancreatic cancer….MRI or CT….. I am on Creon also

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Hello @rexsan20

You ask a good question about diagnosing pancreatic cancer. Does your doctor do MRIs and blood tests to check on your pancreas? Since you take Creon, you probably have a history of pancreatitis?

I'm going to invite one of our members, @marvinjsturing, who has been dealing with pancreatic cancer to talk about his experience with testing.

Here is the link to the National Pancreas Foundation website,https://pancreasfoundation.org/. You might find some helpful information there.

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@beachdog

This probably isn't the right thread for this post but scans only show "something" is there. Due to the pancreas' location, to my knowledge, the scans are verified using endoscopic ultrasound guided biopsies. That's how we found out about my wife's stage 3. No symptoms other than back pain.

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Thank you so much!!! Praying for you all!

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@beachdog

This probably isn't the right thread for this post but scans only show "something" is there. Due to the pancreas' location, to my knowledge, the scans are verified using endoscopic ultrasound guided biopsies. That's how we found out about my wife's stage 3. No symptoms other than back pain.

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I have had MRI and will have another on in December. I’m just worried something is going on.

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@hopeful33250

Hello @rexsan20

You ask a good question about diagnosing pancreatic cancer. Does your doctor do MRIs and blood tests to check on your pancreas? Since you take Creon, you probably have a history of pancreatitis?

I'm going to invite one of our members, @marvinjsturing, who has been dealing with pancreatic cancer to talk about his experience with testing.

Here is the link to the National Pancreas Foundation website,https://pancreasfoundation.org/. You might find some helpful information there.

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I had symptoms of nausea and some vomiting so my daughter, a physician (internal medicine and a Geriatrician order a cat scan and then found pancreatic cancer. From there after endoscopic ultrasound confirmed. I had 3 months of chemo then surgery distal pancreatectomy misspelled then chemo three more months. I had NED for three years but it is back now and in lungs but slow growth or stable for one and a half years. Since I have none of the genes for it (yet) Im on a drug trial to boost immune system. My father died years ago with stage 4 pancreatic cancer so must be related. The present standard of care at UCLA has added radiation to be more aggressive in stopping a remission. Good Luck to you and pick a hospital that does a lot of surgery. You need to shrink the cancer before surgery I was told. good luck! sorry for type errors I can't find my reading glasses.

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@rexsan20

I have had MRI and will have another on in December. I’m just worried something is going on.

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Hello @rexsan20

I see that you will be having another MRI in December and I was thinking about you. Do you know the results of any blood tests that you've had?

How are you feeling these days? Any nausea, vomiting or other digestive disorders?

Member, @leighs2011, just posted about her diagnosis of pancreatic cancer. I would encourage you to read her post.

Will you post an update as to how you are doing when it's convenient?

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@sadiegrace

Hi Teresa, nothing has really changed in my medical condition. I am happy to report that I feel good. Eating everything and anything with no problems. Still only on Armour Thyroid and Creon. All vital signs good and weight is stable. I’m 3 months into hospice and praising God for how well I am doing. My nurse I see once a week just shakes her head. I’m back to all of my activities and although quite a few people I associate with have come down with COVID, so far I have been spared. I’m in the process of selling my home, to take the burden of that off my son and am cleaning out closets and donating quite a bit to charity. It’s so easy to part with “things” when you know you won’t be here this time next year. Each day is more precious, not knowing how long this period will last, but right now I know God is using me to witness His love and the peace that only comes from a relationship with Him. No matter what circumstances you find yourself in, His Grace is sufficient.

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Hi again, @sadiegrace

Its been a little over a month since you last posted. I hope you are continuing to feel well and are active.

Will you post an update when its convenient?

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@leighs2011

I had symptoms of nausea and some vomiting so my daughter, a physician (internal medicine and a Geriatrician order a cat scan and then found pancreatic cancer. From there after endoscopic ultrasound confirmed. I had 3 months of chemo then surgery distal pancreatectomy misspelled then chemo three more months. I had NED for three years but it is back now and in lungs but slow growth or stable for one and a half years. Since I have none of the genes for it (yet) Im on a drug trial to boost immune system. My father died years ago with stage 4 pancreatic cancer so must be related. The present standard of care at UCLA has added radiation to be more aggressive in stopping a remission. Good Luck to you and pick a hospital that does a lot of surgery. You need to shrink the cancer before surgery I was told. good luck! sorry for type errors I can't find my reading glasses.

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Hello @leighs2011

It is good to hear from you. I'm glad to hear that the cancer in your lungs has been stable for so long.

How long will your drug trial last? Are you having any ill effects from the drugs or do you feel better since they are boosting the immune system?

I look forward to hearing from you.

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After my wife underwent 10 Gemcitibine-Abraxane-Cisplaten sessions, the Cisplaten was stopped due to the extensive side effects. Treatments 11 and 12 without the Cisplaten only dropped the CA19-9 by 20 points where previous drops were 100 points or more. After 12 treatments her CA19-9 had bottomed out at 173.1 and one week later it is 260.2. We spoke to the oncologist about substituting parbendazole for the cisplaten which is supposed to have lower side effects and have efficacy for pancan. He told us that would require getting her into a clinical trial but only after her treatments have "failed". I'm not a clinician, but it appears to me that her treatment is already failing. She has a CT scan on the 12th and I suspect he'll see the proof of failure then. We don't want to wait and are starting an off-the-grid treatment with a similar drug. Wish us luck and prayers are welcome.

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@hopeful33250

Hi again, @sadiegrace

Its been a little over a month since you last posted. I hope you are continuing to feel well and are active.

Will you post an update when its convenient?

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Hi, I’m sorry it’s been so long, but I was super busy. I decided to sell my home and move in with my son. The house sold the first day after 19 offers, all over asking price, so that was a blessing. The buyer paid cash but allowed us the time we needed to move and I in turn was able to bless him and his family by leaving furniture and household goods, including a riding lawn mower. He was coming from South Korea and all they brought was their clothes. I later found out he was a Christian pastor and just like me, God was taking him in a different direction.
I moved in with my son on September 1st and got settled into my new home with him and my 16 yr old cat.
Everything was going well at first, but last Sunday I started running a temperature with no other symptoms. And have run a temp in the evening for the past week. I take 2 Tylenol at bedtime and temp is normal the next morning and stays that way all day until the next evening. Since there are no other symptoms and no pain, hospice has just asked me to keep track of it and I’ll know more next week. The fevers are annoying and range from 99.9 to 102. So it’s been hard to eat since the temps kill my appetite. But I’m still able to get out and do errands, go to church and meet friend for lunch. So life is still good.
I’ve accomplished most everything I wanted to get done and I know a lot of people do not have that chance.
I realize each extra day is a gift and I am making the most of them.
God has not only met my needs, but my desires also. He is so good! ❤️🙏🤗

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@sadiegrace

Hi, I’m sorry it’s been so long, but I was super busy. I decided to sell my home and move in with my son. The house sold the first day after 19 offers, all over asking price, so that was a blessing. The buyer paid cash but allowed us the time we needed to move and I in turn was able to bless him and his family by leaving furniture and household goods, including a riding lawn mower. He was coming from South Korea and all they brought was their clothes. I later found out he was a Christian pastor and just like me, God was taking him in a different direction.
I moved in with my son on September 1st and got settled into my new home with him and my 16 yr old cat.
Everything was going well at first, but last Sunday I started running a temperature with no other symptoms. And have run a temp in the evening for the past week. I take 2 Tylenol at bedtime and temp is normal the next morning and stays that way all day until the next evening. Since there are no other symptoms and no pain, hospice has just asked me to keep track of it and I’ll know more next week. The fevers are annoying and range from 99.9 to 102. So it’s been hard to eat since the temps kill my appetite. But I’m still able to get out and do errands, go to church and meet friend for lunch. So life is still good.
I’ve accomplished most everything I wanted to get done and I know a lot of people do not have that chance.
I realize each extra day is a gift and I am making the most of them.
God has not only met my needs, but my desires also. He is so good! ❤️🙏🤗

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I so appreciate your update, @sadiegrace. You have accomplished a lot. So nice that you were able to sell your house and furnishings to someone who really needed it.

I hope that as you recover from the activity of the move, that your temp will go back to normal. I'm sure you (and your cat) are enjoying being with your son. That is great that he could have you stay with him.

I, once again, appreciate your uplifting post. This just made my day!

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@hopeful33250

Hello @rexsan20

I see that you will be having another MRI in December and I was thinking about you. Do you know the results of any blood tests that you've had?

How are you feeling these days? Any nausea, vomiting or other digestive disorders?

Member, @leighs2011, just posted about her diagnosis of pancreatic cancer. I would encourage you to read her post.

Will you post an update as to how you are doing when it's convenient?

Jump to this post

So MRi or Cat scan better to diagnose pancreatic cancer

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@rexsan20

So MRi or Cat scan better to diagnose pancreatic cancer

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Hello @rexsan20

That is a good question. I'm not a medical professional, so I can't determine the correct answer to your question as to which is the best test for the pancreas. I did find some information, however, on the National Institute of Health's website, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6284179/

As you read this publication, you will see Table 1. It does comparative values for three different tests, CT, MRI as well as EUS. It appears from the Table that MRI is slightly better than a CT scan and that EUS is better than both. Here is a link from Mayo Clinic's website that describes the EUS, https://www.mayoclinic.org/tests-procedures/endoscopic-ultrasound/about/pac-20385171

Have you had the EUS?

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