Pancreatic cancer reoccurrence

Posted by sadiegrace @sadiegrace, Apr 29 8:06pm

Hi, my name is Trish, I had pancreatic cancer 7 years ago. This reoccurrence was a surprise since I had a CT on March 9th, with no sign of anything to a .5mm stricture of small intestine caused by a mass that is malignant. Just had a stent put in to on Monday to open the intestine and I am feeling much better. Will see my oncologist on May 6th, and maybe find out what stage it is. Because I haven’t eaten very well for the past few weeks and have lost almost 20 lbs, it’s left me feeling weak and tired.

@hopeful33250

Hello @rexsan20

That is a good question. I'm not a medical professional, so I can't determine the correct answer to your question as to which is the best test for the pancreas. I did find some information, however, on the National Institute of Health's website, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6284179/

As you read this publication, you will see Table 1. It does comparative values for three different tests, CT, MRI as well as EUS. It appears from the Table that MRI is slightly better than a CT scan and that EUS is better than both. Here is a link from Mayo Clinic's website that describes the EUS, https://www.mayoclinic.org/tests-procedures/endoscopic-ultrasound/about/pac-20385171

Have you had the EUS?

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What is the EUS?

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@rexsan20

What is the EUS?

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Here is the description of the EUS that I posted earlier https://www.mayoclinic.org/tests-procedures/endoscopic-ultrasound/about/pac-20385171. This is generally an out patient procedure.

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@hopeful33250

Hello @rexsan20

That is a good question. I'm not a medical professional, so I can't determine the correct answer to your question as to which is the best test for the pancreas. I did find some information, however, on the National Institute of Health's website, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6284179/

As you read this publication, you will see Table 1. It does comparative values for three different tests, CT, MRI as well as EUS. It appears from the Table that MRI is slightly better than a CT scan and that EUS is better than both. Here is a link from Mayo Clinic's website that describes the EUS, https://www.mayoclinic.org/tests-procedures/endoscopic-ultrasound/about/pac-20385171

Have you had the EUS?

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no not yet……..Thank you SO MUCH!!!!!!!! I appreciate the help!

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@sadiegrace

Hi, I’m sorry it’s been so long, but I was super busy. I decided to sell my home and move in with my son. The house sold the first day after 19 offers, all over asking price, so that was a blessing. The buyer paid cash but allowed us the time we needed to move and I in turn was able to bless him and his family by leaving furniture and household goods, including a riding lawn mower. He was coming from South Korea and all they brought was their clothes. I later found out he was a Christian pastor and just like me, God was taking him in a different direction.
I moved in with my son on September 1st and got settled into my new home with him and my 16 yr old cat.
Everything was going well at first, but last Sunday I started running a temperature with no other symptoms. And have run a temp in the evening for the past week. I take 2 Tylenol at bedtime and temp is normal the next morning and stays that way all day until the next evening. Since there are no other symptoms and no pain, hospice has just asked me to keep track of it and I’ll know more next week. The fevers are annoying and range from 99.9 to 102. So it’s been hard to eat since the temps kill my appetite. But I’m still able to get out and do errands, go to church and meet friend for lunch. So life is still good.
I’ve accomplished most everything I wanted to get done and I know a lot of people do not have that chance.
I realize each extra day is a gift and I am making the most of them.
God has not only met my needs, but my desires also. He is so good! ❤️🙏🤗

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Hello @sadiegrace

Just thinking about you. As it has been about a month ago, when you last posted about your move and the new symptom of night-time fever, I was wondering how you were doing.

I hope that the fever has abated by now and that you have a better appetite.

I would enjoy hearing from you.

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@sadiegrace

Hi, I’m sorry it’s been so long, but I was super busy. I decided to sell my home and move in with my son. The house sold the first day after 19 offers, all over asking price, so that was a blessing. The buyer paid cash but allowed us the time we needed to move and I in turn was able to bless him and his family by leaving furniture and household goods, including a riding lawn mower. He was coming from South Korea and all they brought was their clothes. I later found out he was a Christian pastor and just like me, God was taking him in a different direction.
I moved in with my son on September 1st and got settled into my new home with him and my 16 yr old cat.
Everything was going well at first, but last Sunday I started running a temperature with no other symptoms. And have run a temp in the evening for the past week. I take 2 Tylenol at bedtime and temp is normal the next morning and stays that way all day until the next evening. Since there are no other symptoms and no pain, hospice has just asked me to keep track of it and I’ll know more next week. The fevers are annoying and range from 99.9 to 102. So it’s been hard to eat since the temps kill my appetite. But I’m still able to get out and do errands, go to church and meet friend for lunch. So life is still good.
I’ve accomplished most everything I wanted to get done and I know a lot of people do not have that chance.
I realize each extra day is a gift and I am making the most of them.
God has not only met my needs, but my desires also. He is so good! ❤️🙏🤗

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I know it's been a while since you posted this but just want to say that during radiation back in June/July this year I was spiking fevers like yours. Went to the ER several times and they ran tests for blood infections etc. but couldn't find a cause. Finally the last time my fever spiked it was pretty high and I guess a light bulb went off in the surgeon's mind. They gave me a CT and discovered that my stent had formed a gallstone behind it and was no longer functioning. One ERCP and a new stent later and the fevers are gone.

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I was wondering if an onocologist could tell if a tumor had not shrunk by a blood test. He had written on one of his comments that ca199 was decreasing but there was no significant change in tumor and my husband has not had another scan yet so i was wondering why he might have written that.

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@mcendroski

I was wondering if an onocologist could tell if a tumor had not shrunk by a blood test. He had written on one of his comments that ca199 was decreasing but there was no significant change in tumor and my husband has not had another scan yet so i was wondering why he might have written that.

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Hello @mcendroski

That is a good question. I'm not sure anyone on Connect can decide how your doctor formed that opinion. You might want to send your doctor a message through the patient portal and ask that question.

In the past, has the doctor felt the tumor by pressing on it with his hands?

How is your husband feeling now?

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