Pancreatic cancer reoccurrence

Posted by sadiegrace @sadiegrace, Apr 29 8:06pm

Hi, my name is Trish, I had pancreatic cancer 7 years ago. This reoccurrence was a surprise since I had a CT on March 9th, with no sign of anything to a .5mm stricture of small intestine caused by a mass that is malignant. Just had a stent put in to on Monday to open the intestine and I am feeling much better. Will see my oncologist on May 6th, and maybe find out what stage it is. Because I haven’t eaten very well for the past few weeks and have lost almost 20 lbs, it’s left me feeling weak and tired.

I'm sorry to here you got a recurrance too. I had 3 years NED until a year ago and now in lungs. I'm doing a drug trial at UCLA. I hope you get good news by now and let us know. All good wishes

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@hopeful33250

Hello @sadiegrace,

I am truly sorry that there are no more treatment options available for you. I'm glad that you are feeling good now and that you are at peace with your decision to enter hospice care. It is a decision that many of us will have to make at one time or the other and I appreciate the grace and peace you have about this transition.

Wishing you peace. Hospice is very helpful at keeping their patients comfortable. Please post as you continue your journey,

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Hi Teresa, just wanted to update you on my journey of my transition to hospice.

It’s been two months, and praise the Lord, I am feeling great. No distressing symptoms, no digestive problems. The stent is doing it’s job and I’m back to eating pretty much what I want to. My weight has stabilized, not gaining but not losing either. I was pretty tired after being in the hospital for the stricture, but now my energy has returned. The nurse comes once a week and all my vital signs have been excellent. I thought it would be a gradual slope, but she says it’s more like you feel alright until you don’t.

I thank God for the good days He’s given me, and pray I’ll be just as thankful for the not so good days to come.

In the meantime, I’m tying up loose ends.
Planned and paid for my funeral, updated my will, and have been enjoying seeing family and friends who live far away.

So many people don’t have the chance to say “goodbye” and I am blessed that I do.

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@sadiegrace

Hi Teresa, just wanted to update you on my journey of my transition to hospice.

It’s been two months, and praise the Lord, I am feeling great. No distressing symptoms, no digestive problems. The stent is doing it’s job and I’m back to eating pretty much what I want to. My weight has stabilized, not gaining but not losing either. I was pretty tired after being in the hospital for the stricture, but now my energy has returned. The nurse comes once a week and all my vital signs have been excellent. I thought it would be a gradual slope, but she says it’s more like you feel alright until you don’t.

I thank God for the good days He’s given me, and pray I’ll be just as thankful for the not so good days to come.

In the meantime, I’m tying up loose ends.
Planned and paid for my funeral, updated my will, and have been enjoying seeing family and friends who live far away.

So many people don’t have the chance to say “goodbye” and I am blessed that I do.

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Oh, @sadiegrace, what an encouraging, upbeat report! I'm so glad that you updated me on your progress.

You have chosen to see the good in the life that you are living now and that is a wonderful testimony. I have a feeling that you have lived your life with a positive attitude and with faith.

If you don't mind sharing more, what do you think has brought about this appreciation for all aspects of life? Your experience might be encouraging to all of us!

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@hopeful33250

Oh, @sadiegrace, what an encouraging, upbeat report! I'm so glad that you updated me on your progress.

You have chosen to see the good in the life that you are living now and that is a wonderful testimony. I have a feeling that you have lived your life with a positive attitude and with faith.

If you don't mind sharing more, what do you think has brought about this appreciation for all aspects of life? Your experience might be encouraging to all of us!

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I’ve been walking with the Lord for 42 years and He’s seen me through the good times and the not so good.

When I was diagnosed with pancreatic cancer, He told me “You’re OK, I’ve got your back.” I knew it didn’t mean I was healed, just that whatever happened I was going to be OK. Then He gave me a peace I never knew before and He took away all fear. I could look at this as another phase in my life, “walking through the valley of death” with Jesus at my side.

That was in 2014. Even though the doctors at Duke said I probably wouldn’t make it to Christmas, the Lord in His Grace and mercy gave me 7 good years.

Now, once again the I find myself in that valley, but the sun is shining, and my hand is in His and I am at peace.

I can appreciate each and every day and not fear the future. If we can bring glory to God in our life, then why can’t we in our death?

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@sadiegrace

I’ve been walking with the Lord for 42 years and He’s seen me through the good times and the not so good.

When I was diagnosed with pancreatic cancer, He told me “You’re OK, I’ve got your back.” I knew it didn’t mean I was healed, just that whatever happened I was going to be OK. Then He gave me a peace I never knew before and He took away all fear. I could look at this as another phase in my life, “walking through the valley of death” with Jesus at my side.

That was in 2014. Even though the doctors at Duke said I probably wouldn’t make it to Christmas, the Lord in His Grace and mercy gave me 7 good years.

Now, once again the I find myself in that valley, but the sun is shining, and my hand is in His and I am at peace.

I can appreciate each and every day and not fear the future. If we can bring glory to God in our life, then why can’t we in our death?

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@sadiegrace,

Your words were a blessing to me! I had a feeling that your life had a purpose as you face this time with confidence and hope. Thanks for sharing this.

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@sadiegrace

I’ve been walking with the Lord for 42 years and He’s seen me through the good times and the not so good.

When I was diagnosed with pancreatic cancer, He told me “You’re OK, I’ve got your back.” I knew it didn’t mean I was healed, just that whatever happened I was going to be OK. Then He gave me a peace I never knew before and He took away all fear. I could look at this as another phase in my life, “walking through the valley of death” with Jesus at my side.

That was in 2014. Even though the doctors at Duke said I probably wouldn’t make it to Christmas, the Lord in His Grace and mercy gave me 7 good years.

Now, once again the I find myself in that valley, but the sun is shining, and my hand is in His and I am at peace.

I can appreciate each and every day and not fear the future. If we can bring glory to God in our life, then why can’t we in our death?

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@sadiegrace, you're so right when you say "So many people don’t have the chance to say “goodbye” and I am blessed that I do." I'm grateful that you are in hospice care and that you've taken the time to share with us. Go in peace and in the comfort that you have shared with many here in the Mayo Clinic Connect community. Your words, support and wisdom live on. Thank you.

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@leighs2011

Hi I'm wondering if you could share your treatments. Ive had a recurrence and now doing a drug trial to rev up immune system.I never heard in literature or on cancer connect, if anyone recovered from recurrences. Thank you for the new hope! Ive got mets in lungs, some ablations but now too many to ablate and too small. I got radiation to pancreas and will be scanned in two months. Thanks again!

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When I was originally diagnosed first thing was whipple surgery. A couple of months after surgery I started chemo, I don't remember the entire cocktail. Then after about 4 rounds I started radiation and was on 5fu chemo during radiation, when done with radiation and 5fu went back to original chemo until my body just wouldn't tolerate any more.
Approximately 3 year later spot found on right lung, biopsied and found to be PC, this time cyberknife radiation and chemo.
Approximately 3 years later again returned to right lung again but this time just cyberknife radiation again, have been NED since.

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@sadiegrace

Hi Teresa, just wanted to update you on my journey of my transition to hospice.

It’s been two months, and praise the Lord, I am feeling great. No distressing symptoms, no digestive problems. The stent is doing it’s job and I’m back to eating pretty much what I want to. My weight has stabilized, not gaining but not losing either. I was pretty tired after being in the hospital for the stricture, but now my energy has returned. The nurse comes once a week and all my vital signs have been excellent. I thought it would be a gradual slope, but she says it’s more like you feel alright until you don’t.

I thank God for the good days He’s given me, and pray I’ll be just as thankful for the not so good days to come.

In the meantime, I’m tying up loose ends.
Planned and paid for my funeral, updated my will, and have been enjoying seeing family and friends who live far away.

So many people don’t have the chance to say “goodbye” and I am blessed that I do.

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Hello @sadiegrace

I was thinking about you and wondering how you are doing? Please post when it is convenient for you. I would enjoy hearing from you.

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Hi Teresa, nothing has really changed in my medical condition. I am happy to report that I feel good. Eating everything and anything with no problems. Still only on Armour Thyroid and Creon. All vital signs good and weight is stable. I’m 3 months into hospice and praising God for how well I am doing. My nurse I see once a week just shakes her head. I’m back to all of my activities and although quite a few people I associate with have come down with COVID, so far I have been spared. I’m in the process of selling my home, to take the burden of that off my son and am cleaning out closets and donating quite a bit to charity. It’s so easy to part with “things” when you know you won’t be here this time next year. Each day is more precious, not knowing how long this period will last, but right now I know God is using me to witness His love and the peace that only comes from a relationship with Him. No matter what circumstances you find yourself in, His Grace is sufficient.

REPLY
@sadiegrace

Hi Teresa, nothing has really changed in my medical condition. I am happy to report that I feel good. Eating everything and anything with no problems. Still only on Armour Thyroid and Creon. All vital signs good and weight is stable. I’m 3 months into hospice and praising God for how well I am doing. My nurse I see once a week just shakes her head. I’m back to all of my activities and although quite a few people I associate with have come down with COVID, so far I have been spared. I’m in the process of selling my home, to take the burden of that off my son and am cleaning out closets and donating quite a bit to charity. It’s so easy to part with “things” when you know you won’t be here this time next year. Each day is more precious, not knowing how long this period will last, but right now I know God is using me to witness His love and the peace that only comes from a relationship with Him. No matter what circumstances you find yourself in, His Grace is sufficient.

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So good to hear from you again @sadiegrace and hear that you are still holding your own and content with this part of your journey. You still are a great encouragement to me personally and spiritually. I really appreciate your posts!

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@hopeful33250

So good to hear from you again @sadiegrace and hear that you are still holding your own and content with this part of your journey. You still are a great encouragement to me personally and spiritually. I really appreciate your posts!

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So sorry to ask about this…..what is the best way to see if you have pancreatic cancer….MRI or CT….. I am on Creon also

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@rexsan20

So sorry to ask about this…..what is the best way to see if you have pancreatic cancer….MRI or CT….. I am on Creon also

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This probably isn't the right thread for this post but scans only show "something" is there. Due to the pancreas' location, to my knowledge, the scans are verified using endoscopic ultrasound guided biopsies. That's how we found out about my wife's stage 3. No symptoms other than back pain.

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