Pain and discouragement

Posted by kalo37 @kalo37, Aug 21, 2019

my chronic pain is often a downer. I do take meds for it but often am late with them and then the pain is awful. is life worth living is the trap i get into..i am a very senior person.

@kimspr3

Hi Jim, I did do some research. Oxymorphone hands shake, can't relax, and more. I have a high sensitivity to drugs now because of my diag. In my research I found from many good sites said I need certain hormones to help the pain. Comes from Johns Hopkins, Dr, Forrest Tennant, Dr. Sara Smith fro UK. I printed it out to show my dr. he just put it down, when I left handed it back to me. I'm afraid when my Pain Management calls me tomorrow evening. He passed a remark to me like, I don't know what to do with you. My husband told him in so many words not to bring that up, thats your job. If I'm scattering I'm so sorry. Forgive me if I replied to you already.

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@kimspr3 You hadn't already replied. I think my neurologist and my pain specialist both are coming to the end of what they can do, and I imagine that they feel at times like your doctor, but they wouldn't say it. All of my doctors have referred me to other specialists, for which I'm grateful. I've learned a lot along the way.

I met with a new doctor the other day who is very experienced with stimulator implants, and she was great. She agreed that a dorsal root ganglion stimulator could be the answer, but she is having me pursue a few things before doing that implant. It's reserved for people who have intractable chronic pain and have exhausted every option. It seemed that she was concerned about rushing ahead with it. My spinal cord stimulator isn't doing much for me, so she's going to meet with the Abbott tech and recommend ways to adjust it that he probably doesn't know.

The pain specialist started me on imipramine, gradually increasing the dosage, up to 100mg. I'm going to do a second week at 75mg, as it seems to be reducing my pain. If I still have more pain than I can handle I'll move on up to 100. I'm really hoping it works for me.

Jim

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@jimhd

@kimspr3 You hadn't already replied. I think my neurologist and my pain specialist both are coming to the end of what they can do, and I imagine that they feel at times like your doctor, but they wouldn't say it. All of my doctors have referred me to other specialists, for which I'm grateful. I've learned a lot along the way.

I met with a new doctor the other day who is very experienced with stimulator implants, and she was great. She agreed that a dorsal root ganglion stimulator could be the answer, but she is having me pursue a few things before doing that implant. It's reserved for people who have intractable chronic pain and have exhausted every option. It seemed that she was concerned about rushing ahead with it. My spinal cord stimulator isn't doing much for me, so she's going to meet with the Abbott tech and recommend ways to adjust it that he probably doesn't know.

The pain specialist started me on imipramine, gradually increasing the dosage, up to 100mg. I'm going to do a second week at 75mg, as it seems to be reducing my pain. If I still have more pain than I can handle I'll move on up to 100. I'm really hoping it works for me.

Jim

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Do you havet to go into hospital to have stimulate r put in? If so how do they know what to put it on?

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@resawaller

Do you havet to go into hospital to have stimulate r put in? If so how do they know what to put it on?

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@resawaller It was an outpatient surgery in a surgery center, not the hospital. That's for the spinal cord stimulator. I'm not sure about the dorsal root ganglion stimulator implant.

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@johnbishop

Hi @kimspr3 — Here is the website for Dr. Amit Sood – The Resilient Option – https://www.resilientoption.com/

Yesterday I had the opportunity to watch my daughter compete in a crossfit competition where her and two other ladies represented their crossfit gym . It was a hour and half drive both ways and a couple of hours sitting but dad enjoyed every minute of it. Amazed me how strong the ladies are. Now I just have to find a heavy lifting project and invite her and her teammates over for lunch and a workout ☺ There is a lot of truth in the phrase girl power.

I think it's hard for most of us to lose a pet. Two years ago I had to take my daughters cat to be put to sleep that she left with us when she moved away from home. She was quite old and in so much pain you couldn't pick her up with her crying. Now the cat that I adopted when stopping to fix a computer at the local vet hospital is getting close to the end. She's about 13 years old and would sit on my shoulder as a kitten and watch me work on the computer.

Hope all my cyber friends have a pain free day…

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Oh my goodness John @johnbishop. I am so sorry about your kitties. I can just see one lying on your shoulder. My biggest struggle right now is the grieving for my precious Roxie. I think that it weighs heavily because I have made the decision to never have another love sponge, aka, Cavalier King Charles Spaniel. I do not want to deny my pet a fully functioning owner or to leave before her. I catch my self going to the Castlemar Cavalier website or watching the Toronto Cavalier meet up. Meditation does help. I also have a shrine with a painting of her. When I wake up I listen for her breathing or wait for her to come in the dog door and jump up to say good morning. Then it hits. She is gone. What treasures pets are for us to love. Chris

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@johnbishop

Hi @kimspr3 — Here is the website for Dr. Amit Sood – The Resilient Option – https://www.resilientoption.com/

Yesterday I had the opportunity to watch my daughter compete in a crossfit competition where her and two other ladies represented their crossfit gym . It was a hour and half drive both ways and a couple of hours sitting but dad enjoyed every minute of it. Amazed me how strong the ladies are. Now I just have to find a heavy lifting project and invite her and her teammates over for lunch and a workout ☺ There is a lot of truth in the phrase girl power.

I think it's hard for most of us to lose a pet. Two years ago I had to take my daughters cat to be put to sleep that she left with us when she moved away from home. She was quite old and in so much pain you couldn't pick her up with her crying. Now the cat that I adopted when stopping to fix a computer at the local vet hospital is getting close to the end. She's about 13 years old and would sit on my shoulder as a kitten and watch me work on the computer.

Hope all my cyber friends have a pain free day…

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Hi again and thank you for sending the information. Your cat's markings are like a work of art, I have never seen before!! Amazing! Have you ever been told that before? I know she feels your love and compassion. Letting go is so hard. I couldn't stay at our friends home last night. I could not get comfortable. Their Akita is not doing well, breaking my heart. Right now one of my dogs is sleeping close to me, one of my cats by my feet on my bed.

Your daughter and teammates WOW how proud are you, SMILE. I hope you can find a way to have the team over, bet you would have a good time! What is "crossfit"

John, I'm wishing you pain free day!

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@kimspr3

Hi again and thank you for sending the information. Your cat's markings are like a work of art, I have never seen before!! Amazing! Have you ever been told that before? I know she feels your love and compassion. Letting go is so hard. I couldn't stay at our friends home last night. I could not get comfortable. Their Akita is not doing well, breaking my heart. Right now one of my dogs is sleeping close to me, one of my cats by my feet on my bed.

Your daughter and teammates WOW how proud are you, SMILE. I hope you can find a way to have the team over, bet you would have a good time! What is "crossfit"

John, I'm wishing you pain free day!

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CrossFit is a type of gym program that combines effective exercise with nutrition. It's beyond my realm of possibilities ☺
https://www.crossfit.com/what-is-crossfit

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@lisalucier

Hi, @primghar – not being able to get out of bed is definitely rough. I've had that kind of pain only in a back injury in college from a skiing fall, and emotionally when my mom was going through her second divorce – hard to even get out of bed.

When you talk about retreating, what helps you in that regard (e.g., staying home from some things, perching in a favorite chair, going to bed)? Have you found any medications that work well for you?

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@primghar and @resawaller – thinking of you both today. How are you doing with the pain?

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Surging. I need to see the doctor about getting more effective meds, but in a peculiar way I’d almost rather endure pain than to ask for more or more effective stuff. Every time you approach a doctor about an opioid they act if you’re some kind of drug seeking addict selling it all on the side.

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@resawaller

Do you havet to go into hospital to have stimulate r put in? If so how do they know what to put it on?

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Hi Jim, Before the Swim. is implanted you have to see a Psychologist. If you have Medicare that is their rule. You do have to go to the hospital, your Rep. will be in the OR with you. Not a big surgery, small amount of discomfort after. Please, make sure the battery is not on your waist it should be in the upper buttock. I had a stimulator it worked for me for my leg pain. I don't know if the Representative from the company offered you different kinds of stimulation going into your spine, legs? I choose a wavy constant movement in my leg. It was soothing and kept my mind off my pain. In my area the Company name is Medtronic they have a high success rate. My Pain Management refers me to no one! I don't have the Stim. anymore I have an implanted pain pump continuous medication with it is something like a remote control called a Bolus which means if I need more medication I press the Bolus. It's programed for every hour and half 8 x's a day. I hope this helped.

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@primghar

Surging. I need to see the doctor about getting more effective meds, but in a peculiar way I’d almost rather endure pain than to ask for more or more effective stuff. Every time you approach a doctor about an opioid they act if you’re some kind of drug seeking addict selling it all on the side.

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So True! I never run out of my meds that should count?

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@kimspr3

Hi Jim, Before the Swim. is implanted you have to see a Psychologist. If you have Medicare that is their rule. You do have to go to the hospital, your Rep. will be in the OR with you. Not a big surgery, small amount of discomfort after. Please, make sure the battery is not on your waist it should be in the upper buttock. I had a stimulator it worked for me for my leg pain. I don't know if the Representative from the company offered you different kinds of stimulation going into your spine, legs? I choose a wavy constant movement in my leg. It was soothing and kept my mind off my pain. In my area the Company name is Medtronic they have a high success rate. My Pain Management refers me to no one! I don't have the Stim. anymore I have an implanted pain pump continuous medication with it is something like a remote control called a Bolus which means if I need more medication I press the Bolus. It's programed for every hour and half 8 x's a day. I hope this helped.

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@kimspr3 Did you have an scs or a drg stimulator? I have a Burst DR stimulator from Abbott (when I got the implant it was with St. Jude, then they sold it to Abbott). There are a few surgery centers around here, connected with groups of doctors. They do a wide range of outpatient surgeries. If it becomes necessary to stay overnight the patient is moved to the hospital, just a few blocks away.

I spoke with my pain specialist last week and he said that the doctors who did pain pumps here in Oregon no longer do them. There are a few who put them in but they're quite a ways away from home. I'm not sure why they stopped doing them. But the medication he started me on has been working – hopefully not just in my head.

Jim

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@johnbishop

CrossFit is a type of gym program that combines effective exercise with nutrition. It's beyond my realm of possibilities ☺
https://www.crossfit.com/what-is-crossfit

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MINE TOO, SMILE

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@jimhd

@kimspr3 Did you have an scs or a drg stimulator? I have a Burst DR stimulator from Abbott (when I got the implant it was with St. Jude, then they sold it to Abbott). There are a few surgery centers around here, connected with groups of doctors. They do a wide range of outpatient surgeries. If it becomes necessary to stay overnight the patient is moved to the hospital, just a few blocks away.

I spoke with my pain specialist last week and he said that the doctors who did pain pumps here in Oregon no longer do them. There are a few who put them in but they're quite a ways away from home. I'm not sure why they stopped doing them. But the medication he started me on has been working – hopefully not just in my head.

Jim

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Hi, I hope you will be able to stay on the Medication seeing that it helps. My drug Stim. is my pump. I made a mistake, When I had the Stimulator it was in Ambulatory Same Day not a hospital. Even here in NJ, I'm 70 miles from NYC very few Doctors do Pain Pumps. I don't know why? I travel 2 hrs 1 way to have the pump filled once a month. Not bad. For me, I need the pump but I don't want to take pills also anymore taking a toll. May I suggest before procedures that may be offered to you try a little research about it. I wish I had done that.

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@kimspr3

Hi, I hope you will be able to stay on the Medication seeing that it helps. My drug Stim. is my pump. I made a mistake, When I had the Stimulator it was in Ambulatory Same Day not a hospital. Even here in NJ, I'm 70 miles from NYC very few Doctors do Pain Pumps. I don't know why? I travel 2 hrs 1 way to have the pump filled once a month. Not bad. For me, I need the pump but I don't want to take pills also anymore taking a toll. May I suggest before procedures that may be offered to you try a little research about it. I wish I had done that.

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@kimspr3 I had an appointment last week with my pain specialist. He didn't explain why the local doctors quit doing pump implants, but I gather that they had problems with them. I told him that I saw online a list of a few doctors who do them, but they're all over in the Willamette valley, 3 hours from where I live. The pain doctor discouraged getting a pump. I'm not interested in driving 3 hours each way for a refill every month. It would be expensive because I wouldn't want to do the round trip in one day. That means a night in a motel and several restaurant meals.

I know that I take a lot of pills every day – for neuropathy pain, arthritis, allergies, reflux, svt, anxiety plus various vitamins. I told my PCP this afternoon that if imipramine actually does treat my neuropathy pain, I would try backing off morphine. But for now I'll stick with the morphine. I stopped taking it a couple of years ago, and after two weeks I knew that it truly was reducing the pain. So I do what I need to.

Jim

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