Pain and discouragement

Posted by kalo37 @kalo37, Aug 21, 2019

my chronic pain is often a downer. I do take meds for it but often am late with them and then the pain is awful. is life worth living is the trap i get into..i am a very senior person.

@trellg132

In 36 with this pain it can be discouraging

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I'm 54 and this pain is HELL,I guess we have no choice but to keep praying and pushing ourselves! But somedays are just too much! Hwlp

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There are days it really is too much. The best I’ve been able to do is make it minute by minute. Sometimes it’s okay to retreat. Mayo is not very good with meds as they seem to go the CBT and mindfulness route. When you can’t get out of bed, it’s tough to be centered. One minute at a time.

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@resawaller

Amen my pain is so bad somedays I wished I didn't even wake up! And for the people not in pain, don t know how it feels , God bless us all

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@resawaller I saw where you posted about your fibromyalgia. I have had it for along time. I just had a bad flare you cant do anything to help with that I have a lot in my tool box for fibro . I use ice , ginger turmeric tea all are anti inflammatory as inflammation causes most pain. I use heat or hot shower helps immensely. Of course massage,resting a lot helps. Fibro com says we need more magnesium then most people so I take 600 mg. a day . Tramadol 50 for pain when nothing else helps. Epsom salts wash or bath . Apple cider vinegar also helps use a washcloth to apply . Light exercise isometric exercise also. Hope some may help you .

Liked by Lisa Lucier

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@kalo37 I hear you about pain. Can I ask you where is the pain originating from ? Do you have a autoimmune disease or something more serious like cancer

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@primghar

There are days it really is too much. The best I’ve been able to do is make it minute by minute. Sometimes it’s okay to retreat. Mayo is not very good with meds as they seem to go the CBT and mindfulness route. When you can’t get out of bed, it’s tough to be centered. One minute at a time.

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@primghar

I'm pretty proactive about keeping ahead of constipation. If I have hard stool, I take a little more Lactulose that night.

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@primghar

There are days it really is too much. The best I’ve been able to do is make it minute by minute. Sometimes it’s okay to retreat. Mayo is not very good with meds as they seem to go the CBT and mindfulness route. When you can’t get out of bed, it’s tough to be centered. One minute at a time.

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Hi, @primghar – not being able to get out of bed is definitely rough. I've had that kind of pain only in a back injury in college from a skiing fall, and emotionally when my mom was going through her second divorce – hard to even get out of bed.

When you talk about retreating, what helps you in that regard (e.g., staying home from some things, perching in a favorite chair, going to bed)? Have you found any medications that work well for you?

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Lower back pain

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@artscaping

Good morning @kalo37, @primghar. Good morning @lisalucier. Lisa has tagged me to try my best to be helpful with the challenge of chronic pain that is trying to take over your life and the joy that you have found living it. My first pain of that strength arrived when I was 27. It is now 50 years later and I am at it again.

I must admit I was shocked to be in such pain after a lifetime of orthopedic surgeries to correct the problems. At times it seems like those pain signals have all ganged up on me once again.

And so….two suggestions.

1. Don't fight the pain. That only makes it worse. Instead, announce to yourself and others "My body needs to rest now" and retire to your favorite comfort zone. When you are sitting or lying as comfortable as you can be, welcome the pain and then study, analyze, and learn from it. Stay present and track it. Where does it start…..how long does it last? If it is constant, does it move around?

2. Check your posture….is your body in alignment? Can you draw a string from the tip of your nose to the space between your toes? If you are sitting, do you have proper support for your spine? I had lumbar pillows made just for the support needed to be sitting up straight. It really helps to sit "strong".

Pay attention to your sitting posture or even your lying down positions. Reset your body to a more healthy position. Much of our pain can be attributed to "habit energy" when our bodies slip back into old habits that may not be energizing and comfortable.

These may seem like small things. And yet they are the easiest self-treatments to do. I try to sit very upright using my back muscles. That means no sinking into the chair with your spine cocked to one side or the other. Its amazing how the muscles in our backs become much stronger when they have work to do.

May you be content and at ease today. Chris

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I too live with pain lumbar spine, leg, nerves. I have been on Hydromorphone, [dilaudid], for years became immune. dr. now has me on Oxymorphone I feel horrible on it. I can't explain it????? Has anyone had a neg. feeling from it plus does nothing for pain? I'm so unhappy.

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@kimspr3

I too live with pain lumbar spine, leg, nerves. I have been on Hydromorphone, [dilaudid], for years became immune. dr. now has me on Oxymorphone I feel horrible on it. I can't explain it????? Has anyone had a neg. feeling from it plus does nothing for pain? I'm so unhappy.

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@kimspr3 I'm sorry you're having medication problems. No fun. How long have you been taking oxymorphone? Did the doctor talk with you about the possible side effects?

Jim

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Hello Jim, I just started on Oxymorphone I hate the feeling. Very different from Hydromorphone. I feel confused, very slow, my husband doesn't like what he sees and said I look very drugged, I feel very drugged. He also said, from all these opiates he's frighted it will shorten my life. I'm so scared because I feel the same. My doctor never talks about the side effects, I'm afraid to bring it up because he makes me feel guilty because the pain is so bad. We think he's frustrated with me and he doesn't hide it. Hard to find care because of my diagnosis {drs caused it] HopeI'm making sense?

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@kimspr3 I want to thank you for the private message. You really did make my day with your more than glass half full attitude. When I'm in pain and not feeling good it's hard for me to be around family or friends. So when I received your private message with…"Do you have friends and family to visit, laugh with ETC. I seldom am around people but when I am it's like pain medication." it gave me warm fuzzies because I had a few times that I could look back on and put myself in that situation. A positive attitude may not cure us but I really think it helps get us on a road to feeling better.

Have I shared Dr. Amit Sood's website with you? It is my goto site when I need to get myself in a better frame of mind. There are a lot of short videos that not only teach but get you feeling better.

Hoping for a pain free day for all…

John

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@kimspr3

Hello Jim, I just started on Oxymorphone I hate the feeling. Very different from Hydromorphone. I feel confused, very slow, my husband doesn't like what he sees and said I look very drugged, I feel very drugged. He also said, from all these opiates he's frighted it will shorten my life. I'm so scared because I feel the same. My doctor never talks about the side effects, I'm afraid to bring it up because he makes me feel guilty because the pain is so bad. We think he's frustrated with me and he doesn't hide it. Hard to find care because of my diagnosis {drs caused it] HopeI'm making sense?

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@kimspr3 Have you done any research online about oxymorphone?

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@johnbishop

@kimspr3 I want to thank you for the private message. You really did make my day with your more than glass half full attitude. When I'm in pain and not feeling good it's hard for me to be around family or friends. So when I received your private message with…"Do you have friends and family to visit, laugh with ETC. I seldom am around people but when I am it's like pain medication." it gave me warm fuzzies because I had a few times that I could look back on and put myself in that situation. A positive attitude may not cure us but I really think it helps get us on a road to feeling better.

Have I shared Dr. Amit Sood's website with you? It is my goto site when I need to get myself in a better frame of mind. There are a lot of short videos that not only teach but get you feeling better.

Hoping for a pain free day for all…

John

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I did not see Dr. Amit Sood's website, Can you send again if you have a chance?
I did do research on Oxymorphone and I called my Pharmacist. I do have some of the side effects, very anxious, depressed crying constantly. Husband said I look stoned and he does't like it. I told the Pharmacist I was confused she said, not good call dr. on Mon. I hate calling him! With Adhesive Arachnoiditis it effects the Hormones so I need, [good luck] a Endocrinologist who will listen??? I didn't take the Oxy this morning. try not to.

Speaking of socializing with others. We were invited to our friends home today. They are Veterinarians so that is a plus, they have furry friends for me to hug. one is an Akita, very old now not doing well I'm also his God-mother, John, so hard for me to let go of pets. Having PTSD they were my comfort, holding these big dogs I feel safe.
I understand not being around others when in pain, I don't want to go! But I have to get out of my home, I don't want to. I look old and ugly now. I lost what kept me going. I'll stay a short time. Our friends have a great since of humor now, that good for the sole!

My brother died 2013 Pancreatic Cancer and that was my sister-in-law chance to really be the mean person she is and there went my niece and nephews. She used to call my mother "hey you" I miss him I told I wished she had died, she told me she hears that all the you said nothing wrong. We have fewer friends since this happened to me. My poor husband. I have so much guilt. Isn't it nice to belong to Mayo Connect, SMILE

I never tell people how I feel in a social situation, they ask out of courtesy. For me to get out means a new environment, I bit of independence, my choice to go out, get dressed, stay as long as I want, and LAUGH!
Now thats a plus. I hope you can see family or friends even if it's only for an hour. Today I will try and use them as my opiate. Seeing their pets interact is always a funny surprise.

Wishing you a great day!

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@kimspr3

I did not see Dr. Amit Sood's website, Can you send again if you have a chance?
I did do research on Oxymorphone and I called my Pharmacist. I do have some of the side effects, very anxious, depressed crying constantly. Husband said I look stoned and he does't like it. I told the Pharmacist I was confused she said, not good call dr. on Mon. I hate calling him! With Adhesive Arachnoiditis it effects the Hormones so I need, [good luck] a Endocrinologist who will listen??? I didn't take the Oxy this morning. try not to.

Speaking of socializing with others. We were invited to our friends home today. They are Veterinarians so that is a plus, they have furry friends for me to hug. one is an Akita, very old now not doing well I'm also his God-mother, John, so hard for me to let go of pets. Having PTSD they were my comfort, holding these big dogs I feel safe.
I understand not being around others when in pain, I don't want to go! But I have to get out of my home, I don't want to. I look old and ugly now. I lost what kept me going. I'll stay a short time. Our friends have a great since of humor now, that good for the sole!

My brother died 2013 Pancreatic Cancer and that was my sister-in-law chance to really be the mean person she is and there went my niece and nephews. She used to call my mother "hey you" I miss him I told I wished she had died, she told me she hears that all the you said nothing wrong. We have fewer friends since this happened to me. My poor husband. I have so much guilt. Isn't it nice to belong to Mayo Connect, SMILE

I never tell people how I feel in a social situation, they ask out of courtesy. For me to get out means a new environment, I bit of independence, my choice to go out, get dressed, stay as long as I want, and LAUGH!
Now thats a plus. I hope you can see family or friends even if it's only for an hour. Today I will try and use them as my opiate. Seeing their pets interact is always a funny surprise.

Wishing you a great day!

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Hi @kimspr3 — Here is the website for Dr. Amit Sood – The Resilient Option – https://www.resilientoption.com/

Yesterday I had the opportunity to watch my daughter compete in a crossfit competition where her and two other ladies represented their crossfit gym . It was a hour and half drive both ways and a couple of hours sitting but dad enjoyed every minute of it. Amazed me how strong the ladies are. Now I just have to find a heavy lifting project and invite her and her teammates over for lunch and a workout ☺ There is a lot of truth in the phrase girl power.

I think it's hard for most of us to lose a pet. Two years ago I had to take my daughters cat to be put to sleep that she left with us when she moved away from home. She was quite old and in so much pain you couldn't pick her up with her crying. Now the cat that I adopted when stopping to fix a computer at the local vet hospital is getting close to the end. She's about 13 years old and would sit on my shoulder as a kitten and watch me work on the computer.

Hope all my cyber friends have a pain free day…

Oreo2-small

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Hi Jim, I did do some research. Oxymorphone hands shake, can't relax, and more. I have a high sensitivity to drugs now because of my diag. In my research I found from many good sites said I need certain hormones to help the pain. Comes from Johns Hopkins, Dr, Forrest Tennant, Dr. Sara Smith fro UK. I printed it out to show my dr. he just put it down, when I left handed it back to me. I'm afraid when my Pain Management calls me tomorrow evening. He passed a remark to me like, I don't know what to do with you. My husband told him in so many words not to bring that up, thats your job. If I'm scattering I'm so sorry. Forgive me if I replied to you already.

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