balubeje
@balubeje
@balubeje
Posts: 40
Joined: May 25, 2016
Pacemaker recipients: Looking for support from others
shortshot80
@shortshot80
@shortshot80
Posts: 295
Joined: Aug 16, 2016
During a botched oblation for tachycardia I was put into heart block, which necessitated a Medtronic pacemaker. Then a small loose part caused pericardial bleeding and we had to do another pacer. After all that drama in 2012 and the fact that I felt like they destroyed my heart, it is a traumatic memory yet today. And I regret having agreed to an oblation. I still needed another sinus node oblation but had that in MN.
Mostly all is well now except for three things: 1) when washing under my left arm or applying deodorant any jiggly movement will set my heart rate racing 2) same when walking and hitting a bump or hole 3) same thing happens when I clap my hands as in applauding.
If my pacer were to be set lower there would be too much of a lag in adequate response for say, biking or swimming.
shortshot80…..Nancy….. My pacemaker is aprox one inch wide and same long. the wires from it I can’t hardly feel. Also it is the left side of my chest above my breast. It isn’t noticeable and I can wear anything I want. “As a elderly lady I don’t often go to a “King’s Ball” so it doesn’t make any difference what I wear. Now I suppose that if I wore a bikini no one would notice. Yes I see it but who cares?
Berge Markarian
@bergem
@bergem
Posts: 11
Joined: May 23, 2017
I had a Dual chamber Pacemaker, but due to persistent dyspnea(shortness of breath ) it was upgraded to Bi ventricular Pacemaker , but I still have dyspnea and several checks and changes of my Pacemaker did not help my symptoms. I wonder if anyone had a similar experience or any advice
Thank you
bergem
Kanaaz Pereira, Connect Moderator
@kanaazpereira
@kanaazpereira
Posts: 2499
Joined: Oct 09, 2016
Hello @bergem,
I moved your message to this discussion group where you can meet others who have shared their experiences with pacemakers. I encourage you to read through the past messages of this discussion thread, and I’m also tagging @canammick @jimana @balubeje @regeanna @lakelifelady as they may be able to offer more insight.
@bergem, have you talked with your cardiologist about other probable causes for the dyspnea, such as congestive heart failure?
Berge Markarian
@bergem
@bergem
Posts: 11
Joined: May 23, 2017
Hello @bergem,
I moved your message to this discussion group where you can meet others who have shared their experiences with pacemakers. I encourage you to read through the past messages of this discussion thread, and I’m also tagging @canammick @jimana @balubeje @regeanna @lakelifelady as they may be able to offer more insight.
@bergem, have you talked with your cardiologist about other probable causes for the dyspnea, such as congestive heart failure?
Yes, I did and I have no signs of heart failure, but I am going to Mayo Clinic on Sep 14 in Rochester, MN for evaluation, My doctor recommended this and I have great reports from people who have received excellent care at Mayo
Hope for the best
Thanks
bergem
shortshot80
@shortshot80
@shortshot80
Posts: 295
Joined: Aug 16, 2016
Hello @bergem,
I moved your message to this discussion group where you can meet others who have shared their experiences with pacemakers. I encourage you to read through the past messages of this discussion thread, and I’m also tagging @canammick @jimana @balubeje @regeanna @lakelifelady as they may be able to offer more insight.
@bergem, have you talked with your cardiologist about other probable causes for the dyspnea, such as congestive heart failure?
Shortshot80)Nancy…. I have a pacemaker that I received in 2007. I was in the hospital for a change of medication. Doc tried to change meds for four days and nothing was working. My BP kept dropping into the 30’s so a pacemaker was implanted and I feel fine. Due for a change soon. Not sure when that will happen, But I’m glad I have it. I try to to what my doc wants without too much talking. If he want it, it must be needed. Nancy
Liked by Teresa, Volunteer Mentor
eileena
@eileena
@eileena
Posts: 186
Joined: Apr 19, 2017
Hello @bergem,
I moved your message to this discussion group where you can meet others who have shared their experiences with pacemakers. I encourage you to read through the past messages of this discussion thread, and I’m also tagging @canammick @jimana @balubeje @regeanna @lakelifelady as they may be able to offer more insight.
@bergem, have you talked with your cardiologist about other probable causes for the dyspnea, such as congestive heart failure?
Sometimes you need to read up on things outside of the medical offices. However, if the pacemaker is what you needed it is good your doc went that direction.
Liked by Teresa, Volunteer Mentor
Kanaaz Pereira, Connect Moderator
@kanaazpereira
@kanaazpereira
Posts: 2499
Joined: Oct 09, 2016
Hello @bergem,
I moved your message to this discussion group where you can meet others who have shared their experiences with pacemakers. I encourage you to read through the past messages of this discussion thread, and I’m also tagging @canammick @jimana @balubeje @regeanna @lakelifelady as they may be able to offer more insight.
@bergem, have you talked with your cardiologist about other probable causes for the dyspnea, such as congestive heart failure?
Hi @bergem
I’m so glad to learn that you are coming to Mayo Clinic…you are in good hands!
Please keep us updated, and let us know how your evaluation goes.
Teresa, Volunteer Mentor
@hopeful33250
@hopeful33250
Posts: 9941
Joined: Mar 28, 2016
Hello @bergem,
I moved your message to this discussion group where you can meet others who have shared their experiences with pacemakers. I encourage you to read through the past messages of this discussion thread, and I’m also tagging @canammick @jimana @balubeje @regeanna @lakelifelady as they may be able to offer more insight.
@bergem, have you talked with your cardiologist about other probable causes for the dyspnea, such as congestive heart failure?
Hello @bergem
We wish you well as you go to Mayo Clinic this month. We would love for you to update us after your appointment.
Teresa
Kanaaz Pereira, Connect Moderator
@kanaazpereira
@kanaazpereira
Posts: 2499
Joined: Oct 09, 2016
Hello @bergem,
I moved your message to this discussion group where you can meet others who have shared their experiences with pacemakers. I encourage you to read through the past messages of this discussion thread, and I’m also tagging @canammick @jimana @balubeje @regeanna @lakelifelady as they may be able to offer more insight.
@bergem, have you talked with your cardiologist about other probable causes for the dyspnea, such as congestive heart failure?
Hi @bergem,
How are you? I hope everything went well at your appointment? Please keep us updated, and let us know if you have any questions or concerns we can help with.
Berge Markarian
@bergem
@bergem
Posts: 11
Joined: May 23, 2017
Hello @bergem,
I moved your message to this discussion group where you can meet others who have shared their experiences with pacemakers. I encourage you to read through the past messages of this discussion thread, and I’m also tagging @canammick @jimana @balubeje @regeanna @lakelifelady as they may be able to offer more insight.
@bergem, have you talked with your cardiologist about other probable causes for the dyspnea, such as congestive heart failure?
I had workup with Xray, blood tests, EKG,, Pacemaker interrogation and evaluation at Mayo.I was told my continuing A Fib or Atrial flutter causing my dyspnea, can not be treated with the Pacemaker and any further adjustments is not necessary. But I had a cardiac cath which revealed no occlusions and next Monday I will have a TEE and will stay 3 days in the Hospital to evaluate my candidacy for Tikosyn treatment, even though I had tried it in 2001 without benefit They did not encourage to perform Ablation due to higher risks and small chance of success
Thank you for your inquiry
bergem
Liked by Kanaaz Pereira, Connect Moderator
eileena
@eileena
@eileena
Posts: 186
Joined: Apr 19, 2017
Hello @bergem,
I moved your message to this discussion group where you can meet others who have shared their experiences with pacemakers. I encourage you to read through the past messages of this discussion thread, and I’m also tagging @canammick @jimana @balubeje @regeanna @lakelifelady as they may be able to offer more insight.
@bergem, have you talked with your cardiologist about other probable causes for the dyspnea, such as congestive heart failure?
@bergem, What is a TEE? It is something I do not know about (yet).
Eileen
Liked by Berge Markarian
carnes
@carnes
@carnes
Posts: 34
Joined: Aug 03, 2017
Hello @bergem,
I moved your message to this discussion group where you can meet others who have shared their experiences with pacemakers. I encourage you to read through the past messages of this discussion thread, and I’m also tagging @canammick @jimana @balubeje @regeanna @lakelifelady as they may be able to offer more insight.
@bergem, have you talked with your cardiologist about other probable causes for the dyspnea, such as congestive heart failure?
This is Sharon, I has the halter test 24 hours. I was told I have Afib. I was wondering the cause and treatment. Thank you
eileena
@eileena
@eileena
Posts: 186
Joined: Apr 19, 2017
Hello @bergem,
I moved your message to this discussion group where you can meet others who have shared their experiences with pacemakers. I encourage you to read through the past messages of this discussion thread, and I’m also tagging @canammick @jimana @balubeje @regeanna @lakelifelady as they may be able to offer more insight.
@bergem, have you talked with your cardiologist about other probable causes for the dyspnea, such as congestive heart failure?
Hi @carnes, welcome. Afib can be simply an indication of stress. The most helpful thing, aside from medications, can be to ensure you are exercising regularly, and resting sufficiently. The daily worries most of us are faced will increase Afib incidents as due to things like watching scary movies which are meant to cause your heart to race and riding those roller coasters that are included in the thrill rides section of amusement parks. Aging can be a contributor as well, but not always.
Mayo clinic has information you can research to learn causes. Your follow up with your doctor will probably give you more insight and he/she will likely provide you with some literature to take home that will provide you with more answers.
Please keep us informed about your progress.
Eileen
carnes
@carnes
@carnes
Posts: 34
Joined: Aug 03, 2017
Hello @bergem,
I moved your message to this discussion group where you can meet others who have shared their experiences with pacemakers. I encourage you to read through the past messages of this discussion thread, and I’m also tagging @canammick @jimana @balubeje @regeanna @lakelifelady as they may be able to offer more insight.
@bergem, have you talked with your cardiologist about other probable causes for the dyspnea, such as congestive heart failure?
Thank u so much for you time, your reply. I am 71 years old and don’t do scary movies or thrill rides. My dr. is extremely laid back. No info from him. I don’t get enough sleep, for 2 years I’ve not slept in bed due to heaviness in chest when I’m reclining position. I get about 3 hours a night sleep and know how harmful sleep mess csn be so I don’t take them. Appreciate you research for me, thank u again.Sharon
@regeanna
Hello,
I just wanted to reassure you that in terms of bulging , I hardly even feel my pacemaker and no body has ever even caught on that I had a pacemaker. I had bradycardia as well as complete heart block with a rate of 42 bmp, I’m so glad my cardiologist had me get an implanted loop recorder which after a years time captured the problems I was having. I know it was by divine direction that I have this pacemaker, and grateful to have it because it means I can keep living to serve God another day.
Liked by Kanaaz Pereira, Connect Moderator