Pacemaker recipients.

Posted by balubeje @balubeje, May 25, 2016

I am coming on a year post op having a pacemaker placement for bradycardia. I would be interested in a support group with the same concerns. I think a support network would be so beneficial.

Liked by Solo Act

@balubeje

i’m not sure who this is directed to but I get my pacemaker checked quarterly and see my EP once a year. I was fortunate to have one of the top EP’s in the country and I am totally comfortable with our set up.

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I go in every 3 months. First blood work. Then 3 months card. Repeat.

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@colleenyoung

What a great idea @balubeje. A group for people who have pacemakers. I’m tagging fellow Connect members who have mentioned that they have pacemakers. Please meet @ronbee @jimana @martishka @billmichalski @sotiredofit @ricke62 @catygirl @bevtar98.

@balubeje why don’t you kick off the conversation. What is your primary concern? How has living with a pacemaker changed how you live today?

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I am tired all the time after my open-heart surgery. My docs have no explanation except that I am getting older. My belief it is due to the bata blocker that I am now taking. My physical therapist said that my target heart range is 90 bpm vs. someone with out this med of 150 t0 120 bpm. In other words my exertion at 90 bpm is the same as some one who is not taking this med at 120 rpm.

RonBee

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@colleenyoung

What a great idea @balubeje. A group for people who have pacemakers. I’m tagging fellow Connect members who have mentioned that they have pacemakers. Please meet @ronbee @jimana @martishka @billmichalski @sotiredofit @ricke62 @catygirl @bevtar98.

@balubeje why don’t you kick off the conversation. What is your primary concern? How has living with a pacemaker changed how you live today?

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I believe you are correct to think being tired all the time is related to the meds. After surgery the doses i was given had me thinking my heart was so bad. That it was why i felt tired all the time. Those doses were supposef to be only for 3 months. I was changef to a diff cardiologist. The dose wasnt changed. I didnt know they were supposed to change the dose. Still constantly tired. Heart rate and blood pressure low. Finally i was told the doses were way to high and we shoyls see how things go with lower levels. Thank God for this doctor paying attention. I began to feel better right away. Then i got my legs back and over time. I got my life back. You may have to have the levels you take. I am sure it can cause you to be tired.

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@colleenyoung

What a great idea @balubeje. A group for people who have pacemakers. I’m tagging fellow Connect members who have mentioned that they have pacemakers. Please meet @ronbee @jimana @martishka @billmichalski @sotiredofit @ricke62 @catygirl @bevtar98.

@balubeje why don’t you kick off the conversation. What is your primary concern? How has living with a pacemaker changed how you live today?

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Will check into that. Thanks.

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@colleenyoung

What a great idea @balubeje. A group for people who have pacemakers. I’m tagging fellow Connect members who have mentioned that they have pacemakers. Please meet @ronbee @jimana @martishka @billmichalski @sotiredofit @ricke62 @catygirl @bevtar98.

@balubeje why don’t you kick off the conversation. What is your primary concern? How has living with a pacemaker changed how you live today?

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I will Pray for you and your shoulder. Your Faith is clearly strong. I am Blessed with Jesus helping me through this as well. I also like you do not let the TV keep me from getting things done. PTL in Jesus Name!!!!!!!

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@balubeje

i’m not sure who this is directed to but I get my pacemaker checked quarterly and see my EP once a year. I was fortunate to have one of the top EP’s in the country and I am totally comfortable with our set up.

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Guess I’m lucky, I have had my pacmeaker for 8 plus years, and to add to that this last January I’v been diagnosed with two types of lung cancer/. Plain old lung cancer in my right lung and mesothelioma in my left lung. Have been montored for the past year every three months. Well this month, couple weeks ago my left lung grew some and my left lung hsd more fluid in it. Also at this same time my kidney grew some more crreatin and so working on that. Then macular degeration (sp)has decided to show up. and the in this last four months I have fallen. First was a bad fall on my right artificial knee. Hit hard on tar mack at gas station. Still very sore, next on kitchen floor, landed on my right knuckle, two nights ago, I landed on my right knee on the bedroom floor. Hit my knee again really hard, knee of course doesn’t seem to be injured ,, but I can’t move my leg sideways at all.. So have called for a doc appt. I might have torn flesh in my leg. which will take a long time to heal.Well along with this I have “shingles” on the same leg from my ankle to the top of my leg and the small of my back. (FUN) I’m 83 and will celebrate 66 years of marriage tomorrow.

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@balubeje

i’m not sure who this is directed to but I get my pacemaker checked quarterly and see my EP once a year. I was fortunate to have one of the top EP’s in the country and I am totally comfortable with our set up.

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You seem really strong. I believe i get your point. Thank you for the input. I will thank the Lord my my many blessings. I will also put you in my Prayers.

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Well congratulations on you and your spouses anniversary ! Im 70 years old and complain a lot about , what if thought were very serious medical problems. You have all my admiration Sir. Even my heart and damaged nerve problems seem insignificant after reading your post. You are my inspiration.

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Thank You for your prayers. The hardest part of all this is the shingles…..along with everything else. Nancy Bush

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@balubeje

i’m not sure who this is directed to but I get my pacemaker checked quarterly and see my EP once a year. I was fortunate to have one of the top EP’s in the country and I am totally comfortable with our set up.

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Dont know if my response went through. Congratulations on you and your spouses anniversary. I complain constantly about my medical problems. After reading your post , my heart and nerve damage problems seem so insignificant I hate to mention them. You Sir are an inspiration to me amd should be to others. Im 70 years old and thought I was way over the hill
Thank you!

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Shortshot80 will put you on our prayer list in bible class next time we meet. This would be a good time to put a shout out for those who make entries here and are 50+ to get the shingles vaccine. That was on my bucket list to do when I turned 60-as that was the suggested age-shingles came before the age and the ride was not a pleasant one. Fortunately I started treatment well before the breakout sadly I was misdiagnosed three days prior but the shingles journey can be a very rough, long and painful ride. As I have been there and done that I don’t want to take that ride every again-by the way if you didn’t know you can get shingles again-well according to a pharmacist that filled my scripts. Another reason to be vaccinated.

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@balubeje

Shortshot80 will put you on our prayer list in bible class next time we meet. This would be a good time to put a shout out for those who make entries here and are 50+ to get the shingles vaccine. That was on my bucket list to do when I turned 60-as that was the suggested age-shingles came before the age and the ride was not a pleasant one. Fortunately I started treatment well before the breakout sadly I was misdiagnosed three days prior but the shingles journey can be a very rough, long and painful ride. As I have been there and done that I don’t want to take that ride every again-by the way if you didn’t know you can get shingles again-well according to a pharmacist that filled my scripts. Another reason to be vaccinated.

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My significant other has delt with shingle break outs. Terrible thing. She just got the treatment a couple months ago. So yes take it seriously.

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@balubeje

Shortshot80 will put you on our prayer list in bible class next time we meet. This would be a good time to put a shout out for those who make entries here and are 50+ to get the shingles vaccine. That was on my bucket list to do when I turned 60-as that was the suggested age-shingles came before the age and the ride was not a pleasant one. Fortunately I started treatment well before the breakout sadly I was misdiagnosed three days prior but the shingles journey can be a very rough, long and painful ride. As I have been there and done that I don’t want to take that ride every again-by the way if you didn’t know you can get shingles again-well according to a pharmacist that filled my scripts. Another reason to be vaccinated.

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Thank you, I would be delighted to be on your Prayer list. One of the ladies brought us lunch yesterday. Very good to eat someone else’s cooking.The leg the shingles is on, is so weak, I almost drop to the floor. Only thing that stops me is the Walker. So many things, I have trouble accepting “help”I’m 83 years old and have done everything mostly myself. It’s hard to accept “Help” of any kind. I have to have help today, going to take a shower. My husband is 89 and on oxygen so not able to help much. Oldest Son 65 lives with us to help, but he doesn’t want to help in the shower. (I don’t blame him). It is really very tired out today! The shingles on my right leg has changed the skin. Makes it feel “funny, tough”., I can’t even have a flu shot now for over a month/siz weeks. Have to see the oncologist next week, and some kidnew doc;’s soon. . I slept most the night, but still tired. thanks. Nancy Bush (shortshot80)

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@balubeje

Shortshot80 will put you on our prayer list in bible class next time we meet. This would be a good time to put a shout out for those who make entries here and are 50+ to get the shingles vaccine. That was on my bucket list to do when I turned 60-as that was the suggested age-shingles came before the age and the ride was not a pleasant one. Fortunately I started treatment well before the breakout sadly I was misdiagnosed three days prior but the shingles journey can be a very rough, long and painful ride. As I have been there and done that I don’t want to take that ride every again-by the way if you didn’t know you can get shingles again-well according to a pharmacist that filled my scripts. Another reason to be vaccinated.

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Great idea! I didn’t know that there was a vacine. This is the second time for the shingles, and the worst of all. I think I was in my 50’s the first time . Nancy (short shot)

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Ms, Nancy-in my opinion-you should check with your health care provider about the shingles vaccine. As this is your second rodeo and much worse than the first you definitely don’t need another trip down that path. I am not sure if there might be health concerns that would prevent you from receiving the vaccine. I was told to wait 6 months post shingles but I waited a year. I was taking four different prescribed items and one was found not to be effective for me so I was changed to a different one and within 24 hours there was a huge improvement. I was home from work for a week with little to no activity. I’ve never known clothes to be painful except for a sunburn or if I’m trying to cram more into them than permitted. Once I could tolerate clothes I went back to work. I know of a pathologist who suffered for months as far out as 9 of them and well the rest isn’t important. Food for thought.

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