Overwhelmed while searching for second diagnosis
The past 8 years of struggling to get a diagnosis has been nothing compared to the past four months and I am about done trying. I have a fibromyalgia diagnosis and with that, every doctor has always told me that there is something else there, something autoimmune that has evaded them. I was ANA positive for three years and the Endo put me on high dose vitamin D. The ANA was negative until last month. I had not felt right for awhile but I fell in July and ever since have been so sick and getting worse. My ANA came back 1.6, high platlet, low red blood cells and low but not out of range T4. Everything else came back fine. It’s like having the worst flu, or maybe like mono I guess because showering exhausts me. I guess the biggest issue though is I can’t regulate my temperature anymore..daily random spikes in fever, crazy hot flashes throughout the day and when I should adjust to changes in temperature like coming inside from the cold or after a shower I can’t cool down. My sleep is maybe 2-3 hours a night now because I wake up constantly and never really sleep deeply on a regular basis. When I do sleep well enough to dream I don’t dream anymore like normal..it’s flashes of light or broken images Everytime. My Endo and primary literally said they don’t know what’s wrong, what changes or how to fix it but it’s gotten the best of me. I used to function despite the fibromyalgia, but now, whatever changed has taken what’s left and made me not more than a couch potato who is pretty ineffective and honestly becoming depressed. I have always handled whatever came my way and dealt with it. But having no answers and no end in sight is taking its toll.