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toomanyoars (@toomanyoars)

Overwhelmed while searching for second diagnosis

Autoimmune Diseases | Last Active: Dec 20, 2018 | Replies (20)

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@becsbuddy

Good morning, @toomanyoars . It sure feels overwhelming. I know exactly how you must feel—I, too sit around and read a lot, when I was always so active. Have you been to a big medical center, like Mayo Clinic or a university medical school in your state? My doctor at University of Colorado has a group of colleagues she works with and they discuss individual cases. I self-referred and I’m so glad I did. I really hope you find an answer

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Replies to "Good morning, @toomanyoars . It sure feels overwhelming. I know exactly how you must feel—I, too..."

Thank you. My Endo feels I need to go to Mayo but said she didn't feel they would accept my case because everything that has been tested Mayo would duplicate so they wouldn't feel the need so she referred me to a specialist at KU medical center 2 hours away but the soonest he can see me is the end of May. My fevers are more frequent and climbing and my red blood cell count keeps dropping so waiting doesn't seem logical to me. Our insurance requires referrals and getting referrals hasn't been easy because we are in a rural area that has limited specialists.

Hi becsbuddy, I have been diagnosed with chronic mono and am looking for a doctor in Colorado, Denver area. Is it possible for you to let me know the name of your doctor or physicians group from University of Colorado. Thank you

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