Oral lichen Planus: What home remedies or medications help you?

Posted by lovebug61 @lovebug61, Apr 4, 2019

Anyone in the group suffer from Oral Lichen Planus. I am at my wits end with all these erosive sores in my mouth. I've had two biopsies , one in the inside cheek and one under the side of my tongue. The spot under the tongue is extremely sore to touch and has been for over a year. It scares me because the soreness never goes away, sometimes it isn't as sore but nothing helps. Any home remedies for this dreadful condition?

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

Profile picture for mytreasure110124 @mytreasure110124

BTW, I cracked a tooth on the bottom and when the dentist was going to put a crown on, my mouth, tongue, cheek all were so sore, I had to cancel. I will let you know how soda/salt works. I'm going to use it before I go to church and when I get home. I will use it for times a day in purified water. The periodontist suggested I not use tap water so I only use water from store.

Jump to this post

Warm salt water helps with the healing to a small degree. The last 2 days I filled my dental whitening trays with this Clobetasol Cream and wore them for a couple of yours total over 48 hours. I do see a tiny bit less redness and I believe the gum tissue is not dying away and rotting like it was. I will keep up the routine with great hope.

Would love to know who was more helpful to you, your dentist, a periodontist, a rheumatologist or a dermatologist?

REPLY

See an ENT. Mine provided education about this disease plus a prescription for medication to help suppress it. The medication works to suppress it so it does not get severe.

Again, see an ENT.

REPLY

I have been using Dexamethasone Elixir for over 10 years for my LP with great success. It is a corticosteroid mouth rinse that you swish in your mouth for 2-3 minutes then spit it out. You’re not supposed to eat or drink anything for about a 1/2 hour. The bad news is that it is now on back order in Florida…not sure if that applies all over the US…and they Don’t know when it will be available. (Possibly the end of April?)
So my Dermatologist is going to give me a scrip for a different corticosteroid, Fluocinonide 0.05% ad we’ll see how that works. Everyone reacts differently to meds but maybe this is something you can look into? I wish you the best of luck in finding relief SOON!

REPLY

My sister has dementia and I give her melatonin and was wondering if it would hurt her

REPLY
Profile picture for njh516 @njh516

Warm salt water helps with the healing to a small degree. The last 2 days I filled my dental whitening trays with this Clobetasol Cream and wore them for a couple of yours total over 48 hours. I do see a tiny bit less redness and I believe the gum tissue is not dying away and rotting like it was. I will keep up the routine with great hope.

Would love to know who was more helpful to you, your dentist, a periodontist, a rheumatologist or a dermatologist?

Jump to this post

I made a mix of Kosher Salt and Baking soda (about 1/2 tsp. Of each and put
it into lukewarm purified water ( 3/4 C)and stirred it well. I rinsed my
mouth after I brushed my teeth with this mixture. It helped exceeding my
expectations. I intend to try it 4 times daily to see if I can reduce the
inflammation and soreness. It's very painful but this helped me be able to
sleep last night. I hope this will help you.

REPLY
Profile picture for njh516 @njh516

Hello to you all! I am Julie and brand new here. Seven months ago I was told by my hygienist and family dentist that I had Oral Lichen Planus (OLP). I've been a nurse for 43 yrs and never heard of it. I was shocked when they reviewed all the oral pictures they had taken. I got instructions to brush at least twice daily, floss or water pick, use BioGaia for Teeth and Gums (oral probiotic) and mouth rinse with CloSys, a gentle rinse. Also they have me using mouth lozenges overnight for dry mouth. Well I did all of this religiously.

Three weeks ago I go for another cleaning, feeling very proud of all I had done. Unfortunately my oral health had gotten even worse. My mouth was inflamed, I had ulcers, and my gums were blood red along the gum line. They tell me I now has periodontal disease and will need a deep cleaning and scaling.

It didn't feel right. So on my own, I mad an appt to see a Periodontal Dentist. She told me this is not periodontal disease but a bad exacerbation of my OLP and I should go see a rheumatologist who may be able to treat me with drugs for my immune system. So far, everyone has told me they don't treat OLP. She did prescribe the Clobetasol Cream and I did smear that on my gums last night. Of course one treatment didn't do anything.

I live in East Central Coastal Florida, Melbourne to be exact. I'd love to see a provider that actually has experience in OLP and wants to treat it. If anyone knows of a provider in this general area, please let me know. Thank you.

Jump to this post

Hello to you all. Well it’s been 9 days I’ve been following the direction of the periodontist with a few additions by me. Still brushing at least twice daily with a super soft electric toothbrush ahead, using the water pick on low, rinsing with the Closys, sucking on the clotrimazole lozenges and filling my dental whitening trays with the Clobetasol Cream and leaving those in my mouth for about an hour. Then I added red light therapy. All of that has made a huge healing difference over the week. I still have red gum rings around my teeth in all 4 quadrants but boy has it all helped the healing.

REPLY
Profile picture for gwilli @gwilli

I have been using Dexamethasone Elixir for over 10 years for my LP with great success. It is a corticosteroid mouth rinse that you swish in your mouth for 2-3 minutes then spit it out. You’re not supposed to eat or drink anything for about a 1/2 hour. The bad news is that it is now on back order in Florida…not sure if that applies all over the US…and they Don’t know when it will be available. (Possibly the end of April?)
So my Dermatologist is going to give me a scrip for a different corticosteroid, Fluocinonide 0.05% ad we’ll see how that works. Everyone reacts differently to meds but maybe this is something you can look into? I wish you the best of luck in finding relief SOON!

Jump to this post

I just had an appointment with an oral medicine specialist and she is starting me on Dexamethasone .5 mg/5ml sol hikm mouthwash, along with Clobetasol Propionate Cream USP, .05%
Put a bit of the cream on the tongue and then swish with 10 ml of the mouthwash for 3-5 minutes and spit out. Avoid water for 30 minutes after treatment. Repeat until resolution of symptoms or after 2 weeks, whichever comes first. You can put a little bit of the cream right on any lesions if it's really bad. She also prescribed oral lozenges Clotrimazole to dissolve in mouth if a side effect of burning suddenly increases following use of topical steroids.
Then I go back and see the Dr after 2 weeks for an evaluation.
I'll post again and let you know how it works.
With Metta

REPLY
Profile picture for metta @metta

I just had an appointment with an oral medicine specialist and she is starting me on Dexamethasone .5 mg/5ml sol hikm mouthwash, along with Clobetasol Propionate Cream USP, .05%
Put a bit of the cream on the tongue and then swish with 10 ml of the mouthwash for 3-5 minutes and spit out. Avoid water for 30 minutes after treatment. Repeat until resolution of symptoms or after 2 weeks, whichever comes first. You can put a little bit of the cream right on any lesions if it's really bad. She also prescribed oral lozenges Clotrimazole to dissolve in mouth if a side effect of burning suddenly increases following use of topical steroids.
Then I go back and see the Dr after 2 weeks for an evaluation.
I'll post again and let you know how it works.
With Metta

Jump to this post

P>S> Oh, in addition, my Dr switched my toothpaste to naturally friendly Hello kids toothpaste with fluoride. It's a little sweet, but I guess easier on the mouth. Fun flavors: wild strawberry, unicorn sparkle bubblegum, and dragon dazzle blue raspberry, plus more minty flavors...

REPLY
Profile picture for metta @metta

I just had an appointment with an oral medicine specialist and she is starting me on Dexamethasone .5 mg/5ml sol hikm mouthwash, along with Clobetasol Propionate Cream USP, .05%
Put a bit of the cream on the tongue and then swish with 10 ml of the mouthwash for 3-5 minutes and spit out. Avoid water for 30 minutes after treatment. Repeat until resolution of symptoms or after 2 weeks, whichever comes first. You can put a little bit of the cream right on any lesions if it's really bad. She also prescribed oral lozenges Clotrimazole to dissolve in mouth if a side effect of burning suddenly increases following use of topical steroids.
Then I go back and see the Dr after 2 weeks for an evaluation.
I'll post again and let you know how it works.
With Metta

Jump to this post

I’m so glad you were able to get your doctor to give you a prescription for the Dexamethasone elixir. I didn’t combine with the clobetosol because I had a very bad reaction to the clobetosol when it was prescribed for my Lichen Sclerosus. I’ll be eager to hear how it all works out for you.Good luck!

REPLY
Profile picture for njh516 @njh516

Hello to you all. Well it’s been 9 days I’ve been following the direction of the periodontist with a few additions by me. Still brushing at least twice daily with a super soft electric toothbrush ahead, using the water pick on low, rinsing with the Closys, sucking on the clotrimazole lozenges and filling my dental whitening trays with the Clobetasol Cream and leaving those in my mouth for about an hour. Then I added red light therapy. All of that has made a huge healing difference over the week. I still have red gum rings around my teeth in all 4 quadrants but boy has it all helped the healing.

Jump to this post

Where do you get red light therapy

REPLY
Please sign in or register to post a reply.