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Oral lichen Planus: What home remedies or medications help you?

Posted by lovebug61 @lovebug61, Apr 4, 2019

Anyone in the group suffer from Oral Lichen Planus. I am at my wits end with all these erosive sores in my mouth. I've had two biopsies , one in the inside cheek and one under the side of my tongue. The spot under the tongue is extremely sore to touch and has been for over a year. It scares me because the soreness never goes away, sometimes it isn't as sore but nothing helps. Any home remedies for this dreadful condition?

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rognal | @rognal | 12 hours ago
In reply to @robinkani "I have been diagnosed with lichen planus and as a professional flutist, it is ruining my..." + (show)
@robinkani

I have been diagnosed with lichen planus and as a professional flutist, it is ruining my life!! I am now thinking of a nutritionist and doing an elimination diet. Any thoughts? My oral surgeon is suggesting going to University of Pa. to find out more info. Right now, I cannot perform professionally. thick lower lip, dry, scaly and numb. The inside has been getting better as I have been on steroids for almost one month.
Any thoughts would be appreciated.
Thanks!

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I can highly recommend going to a University Medical Center. They were so helpful to me at the Dental School I saw. She spent hours with me! And for a more rapid repair of the lip area Clobetasol Propionate gel is a must. I put it on at bedtime. Good luck!

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1 reply
robinkani | @robinkani | 11 hours ago
In reply to @rognal "I can highly recommend going to a University Medical Center. They were so helpful to me..." + (show)
@rognal

I can highly recommend going to a University Medical Center. They were so helpful to me at the Dental School I saw. She spent hours with me! And for a more rapid repair of the lip area Clobetasol Propionate gel is a must. I put it on at bedtime. Good luck!

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Thank you. I just put it on!

Robin Kani, MM Juilliard, BM Michigan
Artist lecturer in flute, Moravian University and Lehigh University
Alexander Technique Teacher
http://www.flutelehighvalley.com
robinkani@gmail.com

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cooke73 | @cooke73 | 9 hours ago

I smear coconut oil on my lichen planus at night. It soothes the pain.

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bestoflife | @bestoflife | 6 hours ago
In reply to @hi5rockymountain "I had a biopsy through Dermatology and it showed lichen planus. Have you had a biopsy?" + (show)
@hi5rockymountain

I had a biopsy through Dermatology and it showed lichen planus. Have you had a biopsy?

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No, not yet. My dentist wants me to keep treating it and then she will send me to an oral surgeon for diagnosis and treatment. Did they tell you how to treat your Lichen Planus?

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ladonnai | @ladonnai | 6 hours ago
In reply to @rognal "Thank you! I forgot... I got Clobetasol from my family doctor! And I agree... when I..." + (show)
@rognal

Thank you! I forgot... I got Clobetasol from my family doctor! And I agree... when I have a flare up I use the gel at night when I go to bed. Its a great help. So I feel like Ive found all the meds required to fight it. I just need to be more disciplined ...like Ive had to be with my celiac ( 25 yrs!) and stay away from acidic, salty foods. My concern that over the long term something might become cancerous. Who knows that when they see it? I just turned 80.

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Yes....with long term sores you have to stay on top of them....do you have a derm or an ENT that knows how to ''read'' OLP sores? Another spice I have to stay away from is cinnamon....go figure, eh! Congrats on turning 80.

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bestoflife | @bestoflife | 5 hours ago
In reply to @rognal "Thank you! I forgot... I got Clobetasol from my family doctor! And I agree... when I..." + (show)
@rognal

Thank you! I forgot... I got Clobetasol from my family doctor! And I agree... when I have a flare up I use the gel at night when I go to bed. Its a great help. So I feel like Ive found all the meds required to fight it. I just need to be more disciplined ...like Ive had to be with my celiac ( 25 yrs!) and stay away from acidic, salty foods. My concern that over the long term something might become cancerous. Who knows that when they see it? I just turned 80.

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Rognal..I am also 80 and I asked my dentist if my mouth looked cancerous? She didn't know..but she did say that if cancer attacks the mouth, it has specific characteristics. Cancer usually starts in only one specific area, i.e., one side of the mouth or another, left cheek or right. Watch the sides of your tongue, under the tongue and inside of lips. I check for these weekly!
My mouth flared up horribly, but the tools I've chosen have really helped. I now have gotten, what I call scabs
on the red sores, showing me I am moving in the right direction. Bottom line be consistent. Salt and warm water is #1 for raw pain.

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