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lovebug61 (@lovebug61)

Oral lichen Planus

Autoimmune Diseases | Last Active: Sep 10 7:15am | Replies (71)

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@robinkani

I have been diagnosed with lichen planus and as a professional flutist, it is ruining my life!! I am now thinking of a nutritionist and doing an elimination diet. Any thoughts? My oral surgeon is suggesting going to University of Pa. to find out more info. Right now, I cannot perform professionally. thick lower lip, dry, scaly and numb. The inside has been getting better as I have been on steroids for almost one month.
Any thoughts would be appreciated.
Thanks!

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Replies to "I have been diagnosed with lichen planus and as a professional flutist, it is ruining my..."

@robinkani Welcome to Mayo Connect.
There is an existing discussion here on oral lichen planus https://connect.mayoclinic.org/discussion/oral-lichen-planus-3/
I would ask @colleenyoung, our moderator, to move your post there.
@bustrbrwn22 has replied on that thread, and @maryz with @lichenplanussufferer
Ginger

@robinkani welcome to Connect. You'll notice that I moved your message to this active discussion about oral lichen planus. I did this so that you can connect with other members like @maryz @cmtg @frane1939 and @bustrbrwn22.

As a professional flutist I can't imagine getting this. I'm a horn player and suffer from canker sores, but they go away. I agree with your doctor about going to a learning medical center. I hope they will have suggestions for you. How have the steroids be affecting you? Are they also helping the lower lip (so crucial for the flute)?