Optic Nerve Meningioma patients

Posted by alpineir @alpineir, Feb 20, 2018

I would like to connect with anyone who has an optic nerve meningioma and underwent surgery to resect this type of benign tumor.

@mrector

I'm so glad you are home. Praying for you. I am doing well, I have my checkup with my neurosurgeon next Monday. I pray everything is okay. I'll keep you posted

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How was your check up? Sending prayers to you for a clean and healthy checkup.
@

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Is there anything simple about this surgery and recovery. On 2/28/19 I was taken by ambulance to the hospital. Suddenly I became dizzy, nausea, and my legs gave way. For about 2 hours I had slurred speech and my left side was weak. I was tested for a stroke and a seizure. All good. My NS thought it was PLEDS….had to look up and still not sure what "that" is. I am fine and again told, "do nothing". The words "do nothing" are not in my life. Very difficult for me as I have always worked out every day.

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@kmart

How was your check up? Sending prayers to you for a clean and healthy checkup.
@

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@kmart My checkup went well. My residual tumor is not growing and I'm healing on schedule. Thank you so much for your prayers. I have a repeat brain MRI scheduled for Aug and my next appointment is in September.

@kmart

Is there anything simple about this surgery and recovery. On 2/28/19 I was taken by ambulance to the hospital. Suddenly I became dizzy, nausea, and my legs gave way. For about 2 hours I had slurred speech and my left side was weak. I was tested for a stroke and a seizure. All good. My NS thought it was PLEDS….had to look up and still not sure what "that" is. I am fine and again told, "do nothing". The words "do nothing" are not in my life. Very difficult for me as I have always worked out every day.

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@kmart I haven't heard of PLEDS. I'll have to research it. I'm so sorry you are going through all this. I'm praying you don't have anymore complications. Hopefully someone will see this post and be able to help you more. Just please keep me posted on how you are doing and I will try to help in anyway I can.

Hi everyone!!! I just found this site. My boyfriend has meningioma tumor on right side pressing on his trigemal nerve He has had surgery, 15 years ago. Lost his hearing. Then they did gamma knife surgery. We live in CO going to Mayo clinic In MInnasot in April. Any advise???? His option of three procedures.
He has numbness in his face, tongue roof of mouth. Thank you!

I have posted about my tumour a lot here. Ots not the same as your boyfriend.. after 15 months of this I can say that isikeky aide changing trip and things go really slowly…dont dis pair about these symptoms as things can indeed come right …

Mine is on the optic nerve and surrounding the carotid artery. They said it was inoperable because of the many different delicate things in that area. I've had 2 opinions one from an extremely good neurosurgeon and another who has seen many in the area or on the optic nerve and said he has never seen it operated on for the damage it can do. I am set up for 5 day radiation to shrink it or slow the growth in 2 weeks. How badly is your eye effected? Wishing you well, Julie

@coconut1

Hi everyone!!! I just found this site. My boyfriend has meningioma tumor on right side pressing on his trigemal nerve He has had surgery, 15 years ago. Lost his hearing. Then they did gamma knife surgery. We live in CO going to Mayo clinic In MInnasot in April. Any advise???? His option of three procedures.
He has numbness in his face, tongue roof of mouth. Thank you!

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Welcome to Connect, @coconut1. Your boyfriend will be in good hands at Mayo Clinic. @kmart @jeank1234 @nancye3 and @frit5 all have experience with brain tumor treatment at Mayo. You may be interested in the discussions in the group called:
– Visiting Mayo Clinic https://connect.mayoclinic.org/group/traveling-to-mayo-clinic/

Coconut, what 3 procedure options are being considered for your boyfriend?

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