Any Optic Nerve Meningioma Patients Who've Had Surgery?

I’m so sorry. I hope it gets better after the current treatments.

I had a craniotomy surgery on 9/2022. This was a frontotemporal tumor 3x4 cm that has grown into a sphenowing meningioma. Prior to surgery I had double vision, and my left eye was protruded 4mm. Surgery went great, and my vision was preserved. In March of this year another tumor was found, a left sphenoid sinus tumor 2x2 cm. Had surgery again, this time through my nose so recovery was faster. I still have a remnant laying against my oblique eye muscle. No symptoms but since I had 2 surgeries in less than a year, and this is tumor that re grows, we looked for a second opinion for the remaining behind my left eye. I have been recommended radiation ( likely proton bean or photon radiation). I'm inclined to do radiation, but I'm scared about losing my vision. The radiologist says explained well the side effects including problems with the pituitary gland. Anyone who has undergone this type of radiation? Pray to the lord for all of you and our health.

Thank you for posting about your craniotomy surgery last Sept. (2022) I am facing a similar surgery in a month because of a left, sphenoid wing meningioma and I am scared and nervous. So it was very helpful to read that your surgery went well. Could I ask after the first surgery, the craniotomy, how many days/weeks until you felt like yourself and pain free. I only ask this because you mention that the recovery for the second surgery went faster than the first and I am not having the surgery through my nose. I am sorry to hear you are now facing another procedure.

I was in surgery for 12 hours. I spent a night in the ICU, 2 days in regular room, and 5 days in a rehabilitation clinic because my balance was off. I went home 7 days after surgery. I felt fatigued a lot during the first weeks so slept a lot. Every week I got better. I had double vision for 10 weeks and that was the hardest part. Once my vision was good, I felt much better and able to go back to work by week 12. As for pain, this was the first week. They put me in anti-seizure and pain medications for 10 days, after that it was just tylenol and I never got bad headaches, so that was great. Hope this answer your question.
I wish you the best. The doctors and technology for these surgeries are amazing. God is with you!.

Thank you, Pat. Very helpful information.