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Any Optic Nerve Meningioma Patients Who've Had Surgery?

Brain Tumor | Last Active: Aug 14, 2023 | Replies (105)

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@colleenyoung

Welcome to Connect @jeank1234 and @annethomas. It is so helpful to hear stories of others who have been there. I know @kmart and @mrector will appreciate meeting you.

What did you wish you had known before surgery?

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Replies to "Welcome to Connect @jeank1234 and @annethomas. It is so helpful to hear stories of others who..."

I had my surgery on 12/14/18 at The Mayo Clinic, Jacksonville. I had made a list of questions for my NS before surgery and he answered all. I was informed that I may lose (temporarily) my sense of balance and memory. I wasn't informed about losing my sense of smell, which I did. I would have liked more information re the actual process of the surgery, i.e. the removal of the skull and how it is replaced. Will I have screws? How will the first few days be like? I was very happy with my NS's (three were in surgery with me) and the hospital stay. The nurses were amazing. I had a lot of nausea even with meds for nausea. The first couple of weeks I walked and rested when tired. You tire easily. My headaches are hit and miss. After my 6-week post op appointment, I was given the okay to start back to the Y to work out.
My tumor was on my optic chiasm. They had to leave a small portion of the tumor. The NS informed me that they remove the tumor piece by piece as not to damage the optic nerves or artery.