1. < Caregivers: Dementia

One of the worst days

Posted by peppergirl @peppergirl, Jul 29, 2019

First time this has happened, know it won’t be the last, my mother just asked me “where is ..,,,”
She was looking at me and asking where I was at the same time.

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Mamacita, Alumna Mentor | @mamacita | Aug 2, 2019

@roeder, thank you. One of the benefits of severe, unrelenting pain, is the mystical, mysterious, oddly soothing ability to almost step outside this reality of pain and enter a world of the spirit. On the outside looking in.

The brotherhood of pain, which is so much a part of this wonderful group of caregivers, unites us. Gives us strength. Hope for a better day tomorrow .

Love and light,
Mamacita Jane

REPLY
providence1960 | @providence1960 | Aug 20, 2019
In reply to @jakedduck1 "@peppergirl Hi there, My situation isn’t quite the same in that my Mom recognizes me but..." + (show)
@jakedduck1

@peppergirl
Hi there,
My situation isn’t quite the same in that my Mom recognizes me but she calls her mother incessantly asking for help. It’s very difficult seeing a parent act so differently than they did only a short time ago. I can’t hardly bear it. I have a 99 year old friend who occasionally doesn’t know who I am. Even though she eventually knows me when she doesn’t it’s difficult to deal with. I’m very sorry you are going through such hard times.
Blessings,
Jake

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It’s tough. My mom often asks me where are her parents and siblings...all deceased. I usually say I don’t know if they are home now or distract. It reminds me of when I was visiting a friend in a facility...there was a woman at the nursing station sitting in a wheel chair calling for her mother to take her home. So sad...it is a diabolical disease

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Mentor
Becky, Volunteer Mentor | @becsbuddy | Aug 26, 2019
In reply to @peppergirl "Thanks for your kind words, my mom is either at my house or I am at..." + (show)
@peppergirl

Thanks for your kind words, my mom is either at my house or I am at her house in evening/night. We have to hire caregivers in the day. Fortunately, she was able to remember me the next day. It was the first time this had happened to me though, I know it will happen more often, the sadness of it all can be overwhelming.

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@peppergirl I’m just wondering how things are going with your mother. Have you had anymore upsetting episodes where she doesn’t know you? Please let us know how you’re doing

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