Mayo Clinic Connect
Non Hodgkin’s lymphoma
Would like to find a support group in regards to non hodgkins lymphatic B cell.
Liked by Jackie, Alumna Mentor, chuck218
I had radiation on my neck. I didn't have any side effects at all.
I was diagnosed in 2014 with follicular lymphoma. I had radiation for a tumor on my neck. My last pet scan in 2017 showed no cancer since.
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@jjohnson8747, I am sorry to hear that your NHL has come back. If you don't mind sharing, what was your experience with chemotherapy? I am not a medical professional, but it is my understanding that radiation differs from therapy in that it is more focused and is meant to only affect the part of the body that has cancer. Does this sound like the treatment you are going to have?
Liked by Teresa, Volunteer Mentor
I have had it for three years.
just had my yearly check up. C T scan this time. No detectable cancer. Will go back in a year.
Liked by Jackie, Alumna Mentor, Justin McClanahan, ettap
@ vonbaron36 thats wonderful. My yearly ct scans for lymphoma are coming soon too.. I am hoping for the same.. 🙂
That's awesome! I pray you'll get the same news next year. In the meantime, enjoy life!
congratulations! Enjoy. gp
I was diagnosed in March 2011 with nh lymphoma in my right lund. Removed lower section. Following year 1 small spot on right lung , radiation , now 6 years clean and now in stomach. Did Rituxan for a month last year and have been doing Chemo the last 4 months. My problem is that i started having itchy bumps showing up each month it got worse. This month we stopped for 2 weeks but they are still appearing. Around my eyes really bad. Can't figure out if Bendeka or neulasta.I have 2 more rounds to go but I can't live with this constant itching and bumps all over. Have steroid creams but they just seem to keep coming back. Thank you
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Liked by Jackie, Alumna Mentor
Hi @maisyann, welcome to Connect.
I’m tagging @kjs1015 @aamarion @diana63 @djzlady96 to see if they will return to talk about their experiences with Non Hodgkin’s lymphoma.
Maisy Ann, when were you diagnosed? What treatment are you getting or have you had?
How is she now please?
Hey there! I had 6 rounds of CHOP chemotherapy and one month of radiation for Non-hodkins Lymphoma when I was 18. This summer will mark my ten years of complete remission 🙂 Let me know if you have any questions or just need to vent about anything! I would be glad to help you any way I can.
Hello dear..how did u cope with thw side effects??…after ur chemo..wat else did u do?
For the nausea I took Zofran and Phenergen and ate smaller, frequent, small portions. For the exhaustion I have never gone back to my pre NHF level of activity. I have gotten used to doing less. To be honest, I still take the anti nausea meds because I can't stand to eat otherwise. But I have had intractable nausea since early 2013. When I got diagnosed with the NHF tumor in the small intestine in 2017, and they removed it and did R-CHOP, we all thought that the nausea would disappear. No such luck. But I feel fortunate to not be worse, so onward and upward.
Liked by claudiabrende
Are you by any chance talking about B-PLL? probably not. I started a discussion on that,but no one else seems to be connected with such a rare cancer.It's nice to be unique for some things,but not cancer. No research on how to treat ,and what to expect.
I have Non Hodgkin Follicular Lymphoma, I was diagnosed on 1/5. My Lymphoma was found two weeks after finding my cecum cancer. When my surgeon ordered a CT scan, after my polyp came back cancerous. sighing.. double trouble. Cecum cancer was a stage 1 had surgery to remove that. The Lymphoma is on a watch and wait approach.. since I have no symptoms other than swollen lymph nodes near and around my aorta. Not sure if you heard of this book? I purchased it to and it has lots of helpful information. “Living with Lymphoma: A Patient’s Guide” by Elizabeth M. Adler. I wish you the best.
Hi, I'm looking for ideas. I have follicular nhl. Had chemo . Iwas doing well. I can tell it's coming back.. last time I was full both above and below my diaphram. What is going now is causing a lot of trapped intestinal gas and has slowed down my bowels. I'm taking miralax which helps with my bowels. Not the trapped gas. I've tired extra strength gasex. Helps a little. Does anyone have suggestions?
Liked by Teresa, Volunteer Mentor, Jackie, Alumna Mentor
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