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Non Hodgkin's lymphoma

Posted by maisyann @maisyann, Mar 22, 2016

Non Hodgkin's lymphoma

Would like to find a support group in regards to non hodgkins lymphatic B cell.

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Jackie, Alumna Mentor | @travelgirl | Nov 7, 2016
In reply to @remie "Hello I got great news on my tests ! Cancer is gone! Colonoscopy was good too...." + (show)
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Hello I got great news on my tests ! Cancer is gone! Colonoscopy was good too. I go back in 6 months for a recheck. I am feeling very blessed. Thanks for all of your support. Take care and God Bless you all. Love Remie

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Excellent.. That is wonderful.. God Bless.....

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ginpene | @ginpene05 | Oct 2, 2017
In reply to @aamarion "Hey there! I had 6 rounds of CHOP chemotherapy and one month of radiation for Non-hodkins..." + (show)
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Hey there! I had 6 rounds of CHOP chemotherapy and one month of radiation for Non-hodkins Lymphoma when I was 18. This summer will mark my ten years of complete remission 🙂 Let me know if you have any questions or just need to vent about anything! I would be glad to help you any way I can.

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My diffuse large cell B lymphoma was initially treated with 2 small intestine resections and is being followed with R CHOP for 6 sessions. I hope for a remission. I am a 65 yr. old woman.

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ginpene | @ginpene05 | Feb 3, 2018

I don't see any recent commentary, but I am a 65yo woman diagnosed in 2017 with NHL stage 1. After R-CHOP in 2017, a pet scan in Jan. 2018 was benign, and I am in "survivorship", hoping for nothing to happen, but fearing that it will. I'd be happy to chat with anyone who wants to.

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vonbaron36 | @vonbaron36 | Feb 4, 2018

I was diagnosed in 2014 with follicular lymphoma. I had radiation for a tumor on my neck. My last pet scan in 2017 showed no cancer since.

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ginpene | @ginpene05 | Feb 12, 2018
In reply to @vonbaron36 "I was diagnosed in 2014 with follicular lymphoma. I had radiation for a tumor on my..." + (show)
Profile picture for vonbaron36 @vonbaron36

I was diagnosed in 2014 with follicular lymphoma. I had radiation for a tumor on my neck. My last pet scan in 2017 showed no cancer since.

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Glad to hear that you are doing so well. Do you worry about recurrence ? My main obsession these days...

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vonbaron36 | @vonbaron36 | Feb 13, 2018

I have had non hodgekin's lymphoma since 2814. My 2817 Pet scan was clear. No cancer visible. It doesn't mean I don't have any, it just isn't enough to see.

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ginpene | @ginpene05 | Mar 4, 2018

After R CHOP last year for NHL I had a negative Pet scan in Jan. this year. They will do Pets every 6 months, and I will watch for signs and symptoms. I luckily had 1st stage, and they say I am cured, so I try to stay positive. The peripheral neuropathy and tiredness are still bothering me, though. How long did you have side effects from the chemo for? Thanks for any input.

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