Mayo Clinic Connect
Non Hodgkin’s lymphoma
Would like to find a support group in regards to non hodgkins lymphatic B cell.
Liked by Jackie, Alumna Mentor, chuck218
I was diagnosed in 2014 with follicular lymphoma. I had radiation for a tumor on my neck. My last pet scan in 2017 showed no cancer since.
Liked by Jackie, Alumna Mentor
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Glad to hear that you are doing so well. Do you worry about recurrence ? My main obsession these days…
Liked by Teresa, Volunteer Mentor
I have had non hodgekin’s lymphoma since 2814. My 2817 Pet scan was clear. No cancer visible. It doesn’t mean I don’t have any, it just isn’t enough to see.
Liked by Teresa, Volunteer Mentor, Jackie, Alumna Mentor
I have had it for three years.
After R CHOP last year for NHL I had a negative Pet scan in Jan. this year. They will do Pets every 6 months, and I will watch for signs and symptoms. I luckily had 1st stage, and they say I am cured, so I try to stay positive. The peripheral neuropathy and tiredness are still bothering me, though. How long did you have side effects from the chemo for? Thanks for any input.
I am going on four years with with folicular lymphoma.
I also have non-Hodgkins lymphoma B cell and would like to join your support group. I am presently housebound because of a low white blood cell count and have been confined to my home. I'm at Mayo in Phoenix and receiving chemo treatment there. I have had four RCHOP treatments and am scheduled for two more.
Liked by Colleen Young, Connect Director, Teresa, Volunteer Mentor
Hey there! I had 6 rounds of CHOP chemotherapy and one month of radiation for Non-hodkins Lymphoma when I was 18. This summer will mark my ten years of complete remission 🙂 Let me know if you have any questions or just need to vent about anything! I would be glad to help you any way I can.
Thanks for the great article on a healthy diet. I have had cancer three times: colo-rectal cancer in 2009 with complications (spent 2 months in Mayo hospital in Phoenix and two surgeries); lung cancer in 2016 (upper left lobe partial removal); non-Hodgkins lymphoma in 2017 and continuing. I have always eaten a plant based diet with very little meat. But it is interesting from the article how the cancer develops over the years. I copied it and will read it more carefully later. I'm on a chemo regimen of 6 sessions of RCHOP and will be starting my 5th treatment April 2. I spent a day in the ER last week with a very low white blood cell count (neutropenia) so have been housebound ever since.
Hi I have the same non hodkins lymphoma B cell…had my first of 6 treatments..20 days ago…next treatment is 3 /27. 3/28….I'm in Huntsville Alabama…had a in explainable reaction..last week…103 temp..all bones hurt..hospital for 4 days…but..just had a stomach biopsy and came back neg. So something is working…cancer doc and I decided next treatment will be 4 hour instead of 6 with the Rob. Targeted chemo…scared but willing…no doubts the cancer is leaving…just getting through the chemo. My heart is with you..in Bama ❤
Liked by Teresa, Volunteer Mentor, Jackie, Alumna Mentor, Justin McClanahan
It must be so tough to be housebound. Other than that are you feeling well? How were you diagnosed? Have they used Nutr****- I forget the name of it- to boost your white cells? I hope you continue with your treatments with fewer side effects. Good luck.
Liked by Teresa, Volunteer Mentor, Justin McClanahan, carolelaine
Since I had lung cancer in 2016 I was housebound for several months and now this one; being housebound is difficult for me because I am normally involved in several activities, volunteer at Mayo Hospital, volunteer at Musical Instrument Museum, and do charitable work. I had the shot to boost white blood cells last Monday with my chemo so they couldn't give me another one; I have to wait until my next chemo on April 2. It seems almost every day I have a different side effect. It gets very discouraging.
Yes, chemo is difficult. This is my third cancer and my first time with chemo and I must say having surgery is over faster and fewer side effects. I find that the first two weeks after my treatment are the worst, then I have a good week, then another chemo. So I look forward to those weeks. Good luck to you! I'm in the Phoenix area so fortunate to be able to go to Mayo Clinic.
Liked by Teresa, Volunteer Mentor, Jackie, Alumna Mentor, carolelaine
I didn't answer all your questions; I was diagnosed when a large lump appeared in my neck. It was outwardly visible and appeared in a very short time. However, after my first chemo treatment it was no longer visible.
Yes, my resections were easier to get over than the R CHOP treatments. And even now, 3 months after my last chemo, I have side effects. Crazy. I am glad it is no worse than it is… Probably the Diffuse Large B Cell NH Lymphoma is gone, but the Follicular NH Lymphoma will probably continue to grow slowly. I also am glad to have access to a Lymphoma Clinic here in Rochester, NY.
Liked by Jackie, Alumna Mentor, carolelaine
Thanks. It seems I have different symptoms every day but today is a good day. They weren't able to give me the shot for my white blood cells because I had just had it a few days prior when I had my chemo. So we're waiting for my next chemo on Monday when I'll get the shot, too. I have two more chemo treatments to go. I was diagnosed back in November when a large lump appeared on my neck; I had a biopsy and found it.
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