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maisyann
@maisyann

Posts: 4
Joined: Mar 21, 2016

Non Hodgkin's lymphoma

Posted by @maisyann, Mar 22, 2016

Non Hodgkin’s lymphoma

Would like to find a support group in regards to non hodgkins lymphatic B cell.

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I was diagnosed in 2014 with follicular lymphoma. I had radiation for a tumor on my neck. My last pet scan in 2017 showed no cancer since.

@vonbaron36

I was diagnosed in 2014 with follicular lymphoma. I had radiation for a tumor on my neck. My last pet scan in 2017 showed no cancer since.

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Glad to hear that you are doing so well. Do you worry about recurrence ? My main obsession these days…

I have had non hodgekin’s lymphoma since 2814. My 2817 Pet scan was clear. No cancer visible. It doesn’t mean I don’t have any, it just isn’t enough to see.

I have had it for three years.

After R CHOP last year for NHL I had a negative Pet scan in Jan. this year. They will do Pets every 6 months, and I will watch for signs and symptoms. I luckily had 1st stage, and they say I am cured, so I try to stay positive. The peripheral neuropathy and tiredness are still bothering me, though. How long did you have side effects from the chemo for? Thanks for any input.

I am going on four years with with folicular lymphoma.

I also have non-Hodgkins lymphoma B cell and would like to join your support group. I am presently housebound because of a low white blood cell count and have been confined to my home. I'm at Mayo in Phoenix and receiving chemo treatment there. I have had four RCHOP treatments and am scheduled for two more.

@aamarion

Hey there! I had 6 rounds of CHOP chemotherapy and one month of radiation for Non-hodkins Lymphoma when I was 18. This summer will mark my ten years of complete remission 🙂 Let me know if you have any questions or just need to vent about anything! I would be glad to help you any way I can.

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Thanks for the great article on a healthy diet. I have had cancer three times: colo-rectal cancer in 2009 with complications (spent 2 months in Mayo hospital in Phoenix and two surgeries); lung cancer in 2016 (upper left lobe partial removal); non-Hodgkins lymphoma in 2017 and continuing. I have always eaten a plant based diet with very little meat. But it is interesting from the article how the cancer develops over the years. I copied it and will read it more carefully later. I'm on a chemo regimen of 6 sessions of RCHOP and will be starting my 5th treatment April 2. I spent a day in the ER last week with a very low white blood cell count (neutropenia) so have been housebound ever since.

Hi I have the same non hodkins lymphoma B cell…had my first of 6 treatments..20 days ago…next treatment is 3 /27. 3/28….I'm in Huntsville Alabama…had a in explainable reaction..last week…103 temp..all bones hurt..hospital for 4 days…but..just had a stomach biopsy and came back neg. So something is working…cancer doc and I decided next treatment will be 4 hour instead of 6 with the Rob. Targeted chemo…scared but willing…no doubts the cancer is leaving…just getting through the chemo. My heart is with you..in Bama ❤

@jaler

I also have non-Hodgkins lymphoma B cell and would like to join your support group. I am presently housebound because of a low white blood cell count and have been confined to my home. I'm at Mayo in Phoenix and receiving chemo treatment there. I have had four RCHOP treatments and am scheduled for two more.

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It must be so tough to be housebound. Other than that are you feeling well? How were you diagnosed? Have they used Nutr****- I forget the name of it- to boost your white cells? I hope you continue with your treatments with fewer side effects. Good luck.

@jaler

I also have non-Hodgkins lymphoma B cell and would like to join your support group. I am presently housebound because of a low white blood cell count and have been confined to my home. I'm at Mayo in Phoenix and receiving chemo treatment there. I have had four RCHOP treatments and am scheduled for two more.

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Since I had lung cancer in 2016 I was housebound for several months and now this one; being housebound is difficult for me because I am normally involved in several activities, volunteer at Mayo Hospital, volunteer at Musical Instrument Museum, and do charitable work. I had the shot to boost white blood cells last Monday with my chemo so they couldn't give me another one; I have to wait until my next chemo on April 2. It seems almost every day I have a different side effect. It gets very discouraging.

@carolelaine

Hi I have the same non hodkins lymphoma B cell…had my first of 6 treatments..20 days ago…next treatment is 3 /27. 3/28….I'm in Huntsville Alabama…had a in explainable reaction..last week…103 temp..all bones hurt..hospital for 4 days…but..just had a stomach biopsy and came back neg. So something is working…cancer doc and I decided next treatment will be 4 hour instead of 6 with the Rob. Targeted chemo…scared but willing…no doubts the cancer is leaving…just getting through the chemo. My heart is with you..in Bama ❤

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Yes, chemo is difficult. This is my third cancer and my first time with chemo and I must say having surgery is over faster and fewer side effects. I find that the first two weeks after my treatment are the worst, then I have a good week, then another chemo. So I look forward to those weeks. Good luck to you! I'm in the Phoenix area so fortunate to be able to go to Mayo Clinic.

@jaler

I also have non-Hodgkins lymphoma B cell and would like to join your support group. I am presently housebound because of a low white blood cell count and have been confined to my home. I'm at Mayo in Phoenix and receiving chemo treatment there. I have had four RCHOP treatments and am scheduled for two more.

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I didn't answer all your questions; I was diagnosed when a large lump appeared in my neck. It was outwardly visible and appeared in a very short time. However, after my first chemo treatment it was no longer visible.

@carolelaine

Hi I have the same non hodkins lymphoma B cell…had my first of 6 treatments..20 days ago…next treatment is 3 /27. 3/28….I'm in Huntsville Alabama…had a in explainable reaction..last week…103 temp..all bones hurt..hospital for 4 days…but..just had a stomach biopsy and came back neg. So something is working…cancer doc and I decided next treatment will be 4 hour instead of 6 with the Rob. Targeted chemo…scared but willing…no doubts the cancer is leaving…just getting through the chemo. My heart is with you..in Bama ❤

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Yes, my resections were easier to get over than the R CHOP treatments. And even now, 3 months after my last chemo, I have side effects. Crazy. I am glad it is no worse than it is… Probably the Diffuse Large B Cell NH Lymphoma is gone, but the Follicular NH Lymphoma will probably continue to grow slowly. I also am glad to have access to a Lymphoma Clinic here in Rochester, NY.

@jaler

I also have non-Hodgkins lymphoma B cell and would like to join your support group. I am presently housebound because of a low white blood cell count and have been confined to my home. I'm at Mayo in Phoenix and receiving chemo treatment there. I have had four RCHOP treatments and am scheduled for two more.

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Thanks. It seems I have different symptoms every day but today is a good day. They weren't able to give me the shot for my white blood cells because I had just had it a few days prior when I had my chemo. So we're waiting for my next chemo on Monday when I'll get the shot, too. I have two more chemo treatments to go. I was diagnosed back in November when a large lump appeared on my neck; I had a biopsy and found it.

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