No More Bronchiectasis -- Is It Possible?

Posted by Dee @danielad, Feb 29, 2020

All — I had a CT of the lungs on 24 Feb and saw my Pulmonologist on 27 Feb. After carefully examining the CT images, she said — "I know this shouldn't happen, but I don't see any bronchiectasis!". I was pretty surprised, and so was the Pulmonologist. Granted, I had a "mild" case, but has anyone heard of "remission" of Bronchiectasis? My next appointment is in a year.

— Surprised Dee

@kathyhg

How great that your lungs were clear. I too read the book on Beating Bronchiecstasis and I see it is possible, whether in the short or long term. It is something to work towards. Everyone knows the saying “hope springs eternal”!

I’m interested in nebulizing with 7% saline twice a day. It took me some time to get used to 7% after using 3%. Are others doing this – using the nebulizer a day with 7%?

Thanks,

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I have nebulized 1-2 times daily with albuterol and 7% saline since being diagnosed with bronchiectasis in 2017. I have only had one small infection that required a ten day round of antibiotics, thus far. I have never used a lesser amount of saline, so I think it is very effective overall.

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All –Thanks! Well, I didn't do anything special to get to this point! I was diagnosed a number of years ago, and for at least 18 mos, I did all sorts of things, including nebulizing. I started feeling better, so slowly stopped doing most therapies. Then I just did what I "needed" to do when I had a new bronchitis or pneumonia.

Other than that, I found I had Breast Cancer in Sep 2019, had last pneumonia right before the surgery, in Nov, and I am doing Radiation treatments now. So what can I say, perhaps the Lord decided to take something off of my plate?

Whatever changed my status, I believe I will take it at face value, keep on smiling and being optimistic!! 😉

–Dee

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All, Thought I'd share with you the "realities" of what is commonly called "brain fog":

So the Cancer Center offers Therapeutic Massages. Finally decided to apply and the therapist sent me a nice email explaining where to go, etc. I wrote back, asking her "what to wear"!!! Geez!!

🙂 🙂
— Dee

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@danielad

All, Thought I'd share with you the "realities" of what is commonly called "brain fog":

So the Cancer Center offers Therapeutic Massages. Finally decided to apply and the therapist sent me a nice email explaining where to go, etc. I wrote back, asking her "what to wear"!!! Geez!!

🙂 🙂
— Dee

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Hi Dee, this is my very first post. I had breast cancer in Nov. 2005 and discovered bronchiectatsis in 2017. Most likely had it earlier. Since Dec. 2019 have been on 4 rounds of anti-Bs. Has been 3 weeks since my last one. Maybe this one did it. I use the aerobika daily and anti-Bs as needed. I have never nebulized. Your post gives me hope. I am so very happy for you. If you need advice on the breast cancer, maybe I can help. As for the bronch., I need everyone's help. Have a great day. PS, I will get the book Beating Bronch.

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@kathyhg

How great that your lungs were clear. I too read the book on Beating Bronchiecstasis and I see it is possible, whether in the short or long term. It is something to work towards. Everyone knows the saying “hope springs eternal”!

I’m interested in nebulizing with 7% saline twice a day. It took me some time to get used to 7% after using 3%. Are others doing this – using the nebulizer a day with 7%?

Thanks,

Jump to this post

@kathyhg I have been nebulizing with 7% saline since 2013. My mac tested negative by 2014. (Dx with mac in 2005) It wasn't the saline alone (I don't think) but was in conjunction of an antibiotic treatment plan. (Can click on my photo icon and read about that). Nebulizing the 7% saline is just good lung hygiene, unless you have something really severe going on in your lungs like lots of cavities.

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@healthylungs

Hi Dee, this is my very first post. I had breast cancer in Nov. 2005 and discovered bronchiectatsis in 2017. Most likely had it earlier. Since Dec. 2019 have been on 4 rounds of anti-Bs. Has been 3 weeks since my last one. Maybe this one did it. I use the aerobika daily and anti-Bs as needed. I have never nebulized. Your post gives me hope. I am so very happy for you. If you need advice on the breast cancer, maybe I can help. As for the bronch., I need everyone's help. Have a great day. PS, I will get the book Beating Bronch.

Jump to this post

@healthylungs Hello! Welcome to our group. It doesn't seem fair to survive breast cancer and then contract mac. Congrats on beating the b. cancer, I hope that it is still gone. I hope you will take the time to read through many of the old posts because they contain a LOT of info. A good place to start is by clicking on the blue Discussion bar and scrolling down through the topics. Then click on the ones that interest you. Have you already checked that out?

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@windwalker

@healthylungs Hello! Welcome to our group. It doesn't seem fair to survive breast cancer and then contract mac. Congrats on beating the b. cancer, I hope that it is still gone. I hope you will take the time to read through many of the old posts because they contain a LOT of info. A good place to start is by clicking on the blue Discussion bar and scrolling down through the topics. Then click on the ones that interest you. Have you already checked that out?

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Thanks for the advice. I will read through old posts.

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@danielad

All –Thanks! Well, I didn't do anything special to get to this point! I was diagnosed a number of years ago, and for at least 18 mos, I did all sorts of things, including nebulizing. I started feeling better, so slowly stopped doing most therapies. Then I just did what I "needed" to do when I had a new bronchitis or pneumonia.

Other than that, I found I had Breast Cancer in Sep 2019, had last pneumonia right before the surgery, in Nov, and I am doing Radiation treatments now. So what can I say, perhaps the Lord decided to take something off of my plate?

Whatever changed my status, I believe I will take it at face value, keep on smiling and being optimistic!! 😉

–Dee

Jump to this post

Dee …l wonder if the breast cancer was causing the reaction in immune system that showed up on CAT scan that originally showed bronchiectasis??? then when you had radiation….that had an affect on the Bronchiectasis???

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