No More Bronchiectasis -- Is It Possible?

Posted by Dee @danielad, Feb 29 10:58pm

All — I had a CT of the lungs on 24 Feb and saw my Pulmonologist on 27 Feb. After carefully examining the CT images, she said — "I know this shouldn't happen, but I don't see any bronchiectasis!". I was pretty surprised, and so was the Pulmonologist. Granted, I had a "mild" case, but has anyone heard of "remission" of Bronchiectasis? My next appointment is in a year.

— Surprised Dee

Mine was in remission for 5 years. I thought I was fine. I went to my Pulmonologist for my yearly check and he told me it had been 2 years since my last X-ray. I had not been coughing and I said I didn't need it. He told me to go get one and go out for lunch, he was sure it was fine. Then my adventure with MAC began.

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Hello Dee, That is great news. What have you done to make this happen? Have you had MAC as well? Thanks Bill

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I obtained a book from Amazon called "Beating bronchiectasis" and the author explained what he did to beat it. I am not doing everything he said but trying to do everything I can to have a clear CT in August when I go back again.

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@tinaesims

Mine was in remission for 5 years. I thought I was fine. I went to my Pulmonologist for my yearly check and he told me it had been 2 years since my last X-ray. I had not been coughing and I said I didn't need it. He told me to go get one and go out for lunch, he was sure it was fine. Then my adventure with MAC began.

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Did you have to continue nebulizing even when it was in remission or did you stop all treatment? Just curious …

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@gej53

Did you have to continue nebulizing even when it was in remission or did you stop all treatment? Just curious …

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I didn't start nebulizing until I got MAC and got on this forum. I now do nebulize twice a day with the 7% saline. I had stopped everything. I won't do that again.

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How great that your lungs were clear. I too read the book on Beating Bronchiecstasis and I see it is possible, whether in the short or long term. It is something to work towards. Everyone knows the saying “hope springs eternal”!

I’m interested in nebulizing with 7% saline twice a day. It took me some time to get used to 7% after using 3%. Are others doing this – using the nebulizer a day with 7%?

Thanks,

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@danielad Wow that is fantastic news. I have also read the beating bronch book, please let us know what you have done to help this. Heather

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The Beating Bronchiectasis book is a good little guide and very inexpensive on Amazon. (irene5)

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Dee, what a splendid surprise. Savor it heartily. Don

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@kathyhg

How great that your lungs were clear. I too read the book on Beating Bronchiecstasis and I see it is possible, whether in the short or long term. It is something to work towards. Everyone knows the saying “hope springs eternal”!

I’m interested in nebulizing with 7% saline twice a day. It took me some time to get used to 7% after using 3%. Are others doing this – using the nebulizer a day with 7%?

Thanks,

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Kathy, I am, and my impression is that at least several other members also do.

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Wow! Keep your fingers crossed!

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I think I sound like I’m not happy you are in remission. I’m VERY happy for you! Just don’t be like me. Stay vigilant. I use the 7 percent twice a day. I do my first spudem sample after starting meds next month. Fingers are crossed! I also read the book. I started doing acupuncture too.

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@kathyhg

How great that your lungs were clear. I too read the book on Beating Bronchiecstasis and I see it is possible, whether in the short or long term. It is something to work towards. Everyone knows the saying “hope springs eternal”!

I’m interested in nebulizing with 7% saline twice a day. It took me some time to get used to 7% after using 3%. Are others doing this – using the nebulizer a day with 7%?

Thanks,

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I have nebulized 1-2 times daily with albuterol and 7% saline since being diagnosed with bronchiectasis in 2017. I have only had one small infection that required a ten day round of antibiotics, thus far. I have never used a lesser amount of saline, so I think it is very effective overall.

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All –Thanks! Well, I didn't do anything special to get to this point! I was diagnosed a number of years ago, and for at least 18 mos, I did all sorts of things, including nebulizing. I started feeling better, so slowly stopped doing most therapies. Then I just did what I "needed" to do when I had a new bronchitis or pneumonia.

Other than that, I found I had Breast Cancer in Sep 2019, had last pneumonia right before the surgery, in Nov, and I am doing Radiation treatments now. So what can I say, perhaps the Lord decided to take something off of my plate?

Whatever changed my status, I believe I will take it at face value, keep on smiling and being optimistic!! 😉

–Dee

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All, Thought I'd share with you the "realities" of what is commonly called "brain fog":

So the Cancer Center offers Therapeutic Massages. Finally decided to apply and the therapist sent me a nice email explaining where to go, etc. I wrote back, asking her "what to wear"!!! Geez!!

🙂 🙂
— Dee

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