New person who is caregiver for spouse and finding no one to talk to

Posted by banjo5 @banjo5, 2 days ago

1st entry. I find I have no to talk to. Very lonely. Calvery not coming is very true. I am a caregiver for spouse. Asked 2 people to call my spouse for socialization but not getting response I hoped for. Better go for now. I have learned a lot from some of mayo connect blogs.

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Profile picture for annie1946 @annie1946

@dederickve I make a point of inviting friends for lunch, tea, or to meet at a restaurant. The socializing is great for us both. Some are aware of the MCD, some aren’t. By the way the word is “cavalry” 😊

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@annie1946 Yes! Cavalry! I wondered if no one else was noticing that! 😄

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Profile picture for kjc48 @kjc48

@dederickve I tell my husband every day. We will never forget each other - we are here for each other whether our family appears too busy to check in. He told me last month we are care partners for each other. And I chuckle because I'm the one caring for him! We still go out once or twice a week for an early dinner. Last night I told him I was going to get tickets for our local theatre where they bring in Broadway. He was never big on that, but it's close to home, around people, and something he now appears interested in.
Best, Karla

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@kjc48 thanks for your reply, Karla. I hope you both enjoy the show !

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Profile picture for annie1946 @annie1946

@dederickve I make a point of inviting friends for lunch, tea, or to meet at a restaurant. The socializing is great for us both. Some are aware of the MCD, some aren’t. By the way the word is “cavalry” 😊

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@annie1946 Thanks for your reply, Annie. Unfortunately, my husband doesn’t seem to want to talk, anymore, to visitors. He likes people to come, but he no longer joins in conversation. Probably due to not wearing his hearing aids. He says they bother him.

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Profile picture for annie1946 @annie1946

To continue. I also make time for coffee alone with friends.

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@annie1946 That would be nice.

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Profile picture for dederickve @dederickve

@annie1946 Thanks for your reply, Annie. Unfortunately, my husband doesn’t seem to want to talk, anymore, to visitors. He likes people to come, but he no longer joins in conversation. Probably due to not wearing his hearing aids. He says they bother him.

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@dederickve
Will he still sit with your visitors, even though he won’t participate? I expect this could be uncomfortable for all? But, maybe not.

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Thanks to all for your hugs and input.
What benefit is there from the blood test that tell why a persons memory is failing? This sounds bad but I have seen it elsewhere - is it a research thing for the doctors. Again I saw this elsewhere/ it has been in the back of my mind for awhile. Thanks for your input. Not sure I know how to use mayo connect

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Profile picture for annie1946 @annie1946

@dederickve
Will he still sit with your visitors, even though he won’t participate? I expect this could be uncomfortable for all? But, maybe not.

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@annie1946 Yes, he is always glad to see visitors.

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Nice to know we are not the only ones "forgotten" by family. I thought only our family did that! Does not make it easier but we are not alone. I try really hard to forgive and accept their behavior.

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Profile picture for banjo5 @banjo5

Thanks to all for your hugs and input.
What benefit is there from the blood test that tell why a persons memory is failing? This sounds bad but I have seen it elsewhere - is it a research thing for the doctors. Again I saw this elsewhere/ it has been in the back of my mind for awhile. Thanks for your input. Not sure I know how to use mayo connect

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@banjo5
Well, you must be using this site correctly because we are all communicating. 😊
I feel the main reason folks should get a formal diagnosis is to rule out the cognitive issues being caused by any number of other things that have nothing to do with dementia, and are perhaps treatable (unlike dementia).
I know post-surgery brain, long COVID brain, B-12 deficiency, etc. are just a few of the other culprits.
Just my 2 cents. All the best.
Judi, the Oregon beaver 🦫

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My wife is in stage five. She doesn't hold conversations well. It is mostly gibberish. Still I wish people would call her . i understand though. It is hard for me to talk to her now also. It is a lonely road we travel for sure.

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