Asthma, COPD, CVID and MAC

Posted by bennb023 @bennb023, Jul 25, 2019

I am 63 yrs old and have been dealing with asthma, copd, Mac, and CVID. I do pretty well and am still working full time. Any others have MAC?

Some day my chest feels like my lungs are splitting

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@trellg132

Doctor says I have asthma does that bring on shortness of breath

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@trellg132– Yes, it most certainly can and it can be serious if you do not take care of it with proper meds. You are already taking care of yourself. You can appear healthy and have asthma too. Do you know anything about it?
Here is a wonderful break down from Mayo Clinic: https://www.mayoclinic.org/diseases-conditions/asthma/symptoms-causes/syc-20369653

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@merpreb

@joelars – @benn023.
There are variants to all of these diseases and some can be fatal.

Pneumonia is a virus or bacterial infection that usually goes away with treatments.
https://www.mayoclinic.org/diseases-conditions/pneumonia/symptoms-causes/syc-20354204
COPD is a chronic inflammatory of the lungs which restricts breathing. Right now there are no cures and it is progressive.
https://www.mayoclinic.org/diseases-conditions/copd/symptoms-causes/syc-20353679
MAC is a bacterium that can hit people with immune problems.
MAC is primarily a pulmonary pathogen that affects individuals who are immune compromised (eg, from AIDS, hairy cell leukemia, immunosuppressive chemotherapy). In this clinical setting, MAC has been associated with osteomyelitis; tenosynovitis; synovitis; and disseminated disease involving the lymph nodes, the CNS, the liver, the spleen, and the bone marrow
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@merpreb had my allergy tests. I didn't react to any allergens. Ironic, I'm so healthy, except I ruined my lungs. They gave me one spirometer test- blowing out as hard as you can. They use a visual, a tree with leaves with the goal to blow off the leaves. I was able to do it easily, so it must of been easy.
One productive thing came from the exam: the doc said he wasn't surprised I got pneumonia 2x because the vaccine I got only protects against 1 strain. He sent me for a blood test where they test my immune systems reaction to various pneumonia strains. He claims that will tell them the type of vaccine to use when I hit 65 (3 more months), and that vaccine will be more likely to succeed. Have you, or anyone in th group, heard of that type of blood test.?

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@joelars– Good morning. I have not heard of this type of test. My pharmacy and PCP keep track of what vaccinations I need. Perhaps start a small journal of shots you need? Here is an email from AARP about just this. https://www.aarp.org/health/drugs-supplements/info-2019/immunization-quiz-shots-vaccines.html

What's the best way for you to keep track of what you have or need for the future?

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I have MAC and CVID. I take hizentra (infuse IgG scig) and nebulize saline with an aerobika for my lungs

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@joelars

@merpreb had my allergy tests. I didn't react to any allergens. Ironic, I'm so healthy, except I ruined my lungs. They gave me one spirometer test- blowing out as hard as you can. They use a visual, a tree with leaves with the goal to blow off the leaves. I was able to do it easily, so it must of been easy.
One productive thing came from the exam: the doc said he wasn't surprised I got pneumonia 2x because the vaccine I got only protects against 1 strain. He sent me for a blood test where they test my immune systems reaction to various pneumonia strains. He claims that will tell them the type of vaccine to use when I hit 65 (3 more months), and that vaccine will be more likely to succeed. Have you, or anyone in th group, heard of that type of blood test.?

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As part of studying my immune system, I had tests done to see if I had developed immune (titer) from pneumonia vax.. maybe this is the same. I reacted differently to Polyscachhride vax vcompared to the other.

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