New Transplant Blog Posts

Hello everyone,
We hope this finds everyone well today! We have started this discussion today to announce a new blog post. Every week, we will reply to this discussion to let you know when something new is published. Watch for new information often!

Have a productive and enjoyable week!
– Kristin

Hi: Is there a lung transplant connection? I’m looking for an outreach with lung transplant patients and their advocates?
linda

Hi all, If you're currently waiting for a transplant, please consider sharing today's blog post with your caregiver. In this post, Steve Vorseth, Licensed Master Social Worker in the transplant center at Mayo Clinic’s campus in Phoenix shares his perspective on the critical role of transplant caregivers, including how important it is that they be well prepared and practice self-care once the transplant journey begins. https://connect.mayoclinic.org/newsfeed-post/caregiver-qa-with-steve-vorseth-l-m-s-w/?hd_preview=c9fb57b7460e9759f4b898545acfd8e1

Liked by cehunt57

@keggebraaten

Hi all,
Today’s new blog post is “Improving Your Sleep Could Lead to Improving Your Days”. This post talks about ways you can try to improve your restful time so your days can be productive and enjoyable. Feel free to comment if you have other ideas that help you sleep better!
– Improving Your Sleep Could Lead to Improving Your Days http://mayocl.in/2lIxW73

Thanks!
-Kristin

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Beginning the evaluation process for liver transplant June 11 at Mayo Jax. Lots of questions and some anxiety. Mostly due to getting paperwork in order.
I am also anxious for my 2 caregivers that will be with me..dont want them to be overwhelmed. Ive been dealing with this first hand myself for 2 yrs. So much I know that they dont. Slowly preparing them. Im certain Mayo knows just how to help with this…
I will be sure to post my findings to help others following my path. I am anxious to finally be able to do something positive…. I am also participating in 2 clinical trials.

@keggebraaten

Hi all,
Today’s new blog post is “Improving Your Sleep Could Lead to Improving Your Days”. This post talks about ways you can try to improve your restful time so your days can be productive and enjoyable. Feel free to comment if you have other ideas that help you sleep better!
– Improving Your Sleep Could Lead to Improving Your Days http://mayocl.in/2lIxW73

Thanks!
-Kristin

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I live close to Mayo. I’m a pancreas only transplant recipient. My surgery was at the Mayo in Phoenix. At my one year I had to move so I could have health insurance that included Mayo. I’ve been in the Jacksonville area since last August.
I am more than willing to meet with you and your caregivers while your here.

@keggebraaten

Hi all,
Today’s new blog post is “Improving Your Sleep Could Lead to Improving Your Days”. This post talks about ways you can try to improve your restful time so your days can be productive and enjoyable. Feel free to comment if you have other ideas that help you sleep better!
– Improving Your Sleep Could Lead to Improving Your Days http://mayocl.in/2lIxW73

Thanks!
-Kristin

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@jeanne5009, I want to let you know that I am thinking about you. I wish you a safe travels. I hope that all of you planning makes this a smooth process for you and your caregivers. This will be a time of learning for all of you. I expect you all will walk away with a clearer image of what might lie ahead for all of you.
Hugs and Prayers,
Rosemary

@kequick

Hi everyone,

Our transplant blog was updated again today with a can’t-miss story! In this post we introduce you to Andy Sandness, Mayo Clinic’s first face transplant patient. Andy’s story represents a major milestone for our transplant center. We are THRILLED for Andy and wish him well as he returns home to Wyoming. Hope you are as inspired as we are by this miraculous story.

– Meet Andy: Mayo Clinic’s First Face Transplant Patient http://mayocl.in/2mm0WOE

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@kequick HOLY SMOKE!!! What a testimony. It touches my heart & sooo many issues that words defy explanation. 1st of all – and we think we have problems (I know some are swearing Yes we do). Is there any better example of sickness & the will to survive, of humbleness & greatfullness, of humanity & teamwork? Most anyone else would have died or tried again instead of facing the consequences of a bad decision born of acute suicidal ideation depression. Pay severely for the next 10 yrs then (as he said) the rest of his life. 18 different spealities, plastic surgery computer model engineer, media, nonprofit organization, multiple donors, 56 hrs of transplant surgery & a post surgery, plus 3 years of fine tune learning and 30 practice surgeries to mention many elements that were involved in this miracle of life. As much as I care about & advocate for people I do not hold a candle next to their illuminating sunshine. WOW Thank you for sharing what living is really about – giving.

@keggebraaten

Hi everyone,
Today we updated our blog with some information that deserves some attention. We know patients who get transplants are tasked with trying to figure out how to pay for their post-transplant medications. These medications can cost thousands of dollars a month, and we want to provide patients with tips on how they might lessen the burden of these drug costs. Check out our new blog today: How to Save Money on Your Medications – http://mayocl.in/2mma0qE. We hope you find some tips to help you.
Have a wonderful weekend,
– Kristin

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@downtownsbrown My apologies for hijacking this post? I'm not sure what post you are referring to but I am in the process of becoming a kidney donor. I post in " Transplants- Kidney: Journey From the Donors side" most often. I should be finished with all my pretest by the beginning of July. I am a universal O donor. So far I'm moving forward as an altruistic (non directed) donor & am going through Mayo in Jacksonville. I would love to know my kidney recipient as do directed donors but have accepted the fact that may not happen which does cause the normal emotion of sadness on occassion.

@keggebraaten

Hi everyone,
Today we updated our blog with some information that deserves some attention. We know patients who get transplants are tasked with trying to figure out how to pay for their post-transplant medications. These medications can cost thousands of dollars a month, and we want to provide patients with tips on how they might lessen the burden of these drug costs. Check out our new blog today: How to Save Money on Your Medications – http://mayocl.in/2mma0qE. We hope you find some tips to help you.
Have a wonderful weekend,
– Kristin

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@downtownsbrown welcome to Mayo Clinic connect. I’m type 1 diabetic and had a pancreas transplant in 2005 and that has helped to preserve my kidney function until about 2016. Since then I bounce between stage 3 & stage 4 CKD with GFR ranging from low 30’s to 14. When it was 19 I went through pretransplant evaluation. I was approved, accepted and listed for kidney transplant. Given that could take awhile I’m also looking for a living kidney donor. I’m type O – and I’m working with Mayo Rochester. Colleen, Kristen, Theresa and Rosemary are always helpful and provide links to great information. @beckyjohnson there should be more people like you. Hooray for folks willing to be living kidney donors! If you haven’t already learned, there is more to matching recipient & donor than blood type. There are at least 6 other factors having to do with antibodies and there is a cross match or tissue typing that is necessary as well. @beckyjohnson, those things might not concern you if you are an altruistic donor because if you are approved/accepted after the pretransplant evaluation it will be up to Mayo Jacksonville to match you with a potential recipient. Have both of you heard of paired donation exchange? This is when a recipient-donor pair don’t match but agree to trade with another pair that has the same situation. Whole chains of folks have come together in what turns out to be a kidney swap meet! The potential for good healthy matches and transplants is amazing. Not all transplant centers are equipped to offer this but the Mayo system does and has more information on this if you are interested.

Liked by mauraacro

Hello everyone,
I hope everyone is enjoying this beginning of summer. Here in Minnesota we have beautiful weather mixed with some needed rain. I hope you all are finding time to enjoy the outdoors where you live.
Our blog today is about innovations in transplant at Mayo Clinic. We have given just a brief description of a few things that have already happened and some that are in the works. Our hope is to inspire you to learn more about transplant, but also to keep the faith that new ideas and treatments are coming every day that could help people who are waiting for an organ.

Learn more from our blog this week!
https://mayocl.in/2Mlje0C

-Kristin

Morning! Today's blog post is a deep dive into the living donor evaluation process. Many thanks to Living Donor Coordinators Lisa King, R.N. and Kay Kosberg, R.N. from our Rochester, Minnesota campus, for participating in this interview! We've seen a lot of recent dialogue in the discussion group on the eval process so we hope this post is helpful to readers who are just starting or in the midst of the process. Have a great day! https://connect.mayoclinic.org/newsfeed-post/what-to-expect-during-a-living-donor-evaluation/

Thanks, Lisa King RN and Kay Kosberg RN. for this interview. As a non-living transplant recipient, I am in awe of the process for living organ donation. It was not an option for me when/where I was first a patient. I am happy to see how medical advances continue to improve the lives of so many people.

Sharing a link to our latest blog post, which rounds up three entries from the archives on living organ donation. If you have a passion for educating others about living organ donation, this is a great post to share with the people around you! https://connect.mayoclinic.org/newsfeed-post/three-cant-miss-posts-if-youre-considering-living-organ-donation/

What other topics related to living organ donation would you like to see us cover on the blog?

I have not posted for a long time but I have been following discussions when I have time. I just thought I'd let people know that I'm now on the transplant waitlist with a GFR of 19. I'm also actively seeking a living kidney donor as I have no family members that are able to donate because they have PKD (my genetic kidney disease) or they have already donated a kidney. I feel good but I'm very busy with family commitments and seeking a donor so I do not have time to stay active with Connect. I do want to thank all those on Connect for their support and all I learned from them. I do champion Connect on my website that I am using to find a kidney because I think Mayo and Connect is a great source of information and support. All the best!

@IWantToBelieve

I have not posted for a long time but I have been following discussions when I have time. I just thought I'd let people know that I'm now on the transplant waitlist with a GFR of 19. I'm also actively seeking a living kidney donor as I have no family members that are able to donate because they have PKD (my genetic kidney disease) or they have already donated a kidney. I feel good but I'm very busy with family commitments and seeking a donor so I do not have time to stay active with Connect. I do want to thank all those on Connect for their support and all I learned from them. I do champion Connect on my website that I am using to find a kidney because I think Mayo and Connect is a great source of information and support. All the best!

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I'm so glad you took the time to update everyone. I too had PKD and I understand that it can be especially difficult to find a donor. I was blessed to have a lot of potential donors but many were disqualified for various reasons and was losing energy and hope as my kidney function declined. I was reluctant to tell people because it was hard to deal with and I didn't feel worthy. I happened to mention I was sick and needed a kidney to a coworker and she immediately asked if she could donate. By some miracle we were a match and 6 weeks later we were in surgery. I was able to have my PKD giant kidneys removed at the same time I got my new kidney and have been healthy ever after. Hope it out there!!! Keep the faith and know good things will happen. Prayer helped me cope during the helpless, lonely times. Good luck and keep us all posted.

@IWantToBelieve

I have not posted for a long time but I have been following discussions when I have time. I just thought I'd let people know that I'm now on the transplant waitlist with a GFR of 19. I'm also actively seeking a living kidney donor as I have no family members that are able to donate because they have PKD (my genetic kidney disease) or they have already donated a kidney. I feel good but I'm very busy with family commitments and seeking a donor so I do not have time to stay active with Connect. I do want to thank all those on Connect for their support and all I learned from them. I do champion Connect on my website that I am using to find a kidney because I think Mayo and Connect is a great source of information and support. All the best!

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@jolinda, I am happy to welcome you to Connect. It is an honor to meet you and to greet you first thing this morning! As a recipient, myself, I know how much your words of encouragement can mean to someone who needs a transplant. Your amazing story is proof that miracles do happen! Thank you for sharing it.
I want to invite you to read and to participate in any of our discussions. Feel free to join in and ask a question, make a comment, answer a question.

Jolinda, How long ago did you receive your kidney transplant?
Rosemary

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