1. < Neuropathy

Neuropathy pain.

Posted by jlor @jlor, Sep 21, 2018

Hello, I have had this so called"neuropathy" for almost two years now, it began in dec 2016, symptoms got worse over the next few months, my a miracle, my symptom subsided in June last year, however, symptoms returned with a vengeance in November last year, almost 6 months symptoms free. I have severe burning and very painful tingling sensa.tions in my feet, primarily my right foot, left foot I can bear, in fact when I'm out and about, I don't feel symptoms in my left foot, but right foot is hell. Have tried , I think everything this planet can offer, now I'm on gabapentin, 800 mg 4 times a day, tried, duloxetine, tried amytriptyline , neurologists last year said I had axonal sensory neuropathy, skin biopsy last year, negative for small fiber, ncv this year was fine. I'm now seeing as a last resort a chiropractor specializing in neuropathy and I'm undergoing laser and electrotherapy. Can someone recommend other meds that can help, this pain is really excruciating. So far my hands are clear.

Interested in more discussions like this? Go to the Neuropathy Support Group.

helennicola | @helennicola | Feb 22, 2021
In reply to @jesfactsmon "@avmcbellar Thanks Toni. Yes Linda had the first dose of the Pfizer and she had no..." + (show)
@jesfactsmon

@avmcbellar
Thanks Toni. Yes Linda had the first dose of the Pfizer and she had no issues. I go next month I guess. Did you get yours?

I have read references lately that our society is going to achieve herd immunity by May or so. If true it would be amazing, and I would love to avoid taking the vaccine if possible. But do not know if it is really true or not.

Hope you are doing well. Hopefully you guys (in Fla.) did not get as cold as we did the last week! Best, Hank

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Hi Hank, that would be great but I keep reading about the large percentage of people polled who do not want and refuse to get the vaccine (30-50%). We need a higher percentage of vaccinated in order to achieve herd immunity. Helen

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Mentor
John, Volunteer Mentor | @johnbishop | Feb 22, 2021
In reply to @hopalongnm3 "I haven’t tried them yet but read that TENS can help." + (show)
@hopalongnm3

I haven’t tried them yet but read that TENS can help.

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@hopalongnm3 - There is another discussion on using a TENS unit that you may want to join in and read what others have shared.

- Has anyone had success using Tens on their feet?: https://connect.mayoclinic.org/discussion/has-anyone-had-success-using-tens-on-their-feet/

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helennicola | @helennicola | Feb 22, 2021
In reply to @user_che214927 "Hi guys , I have just had a quick read of bogth of your posts. If..." + (show)
@user_che214927

Hi guys , I have just had a quick read of bogth of your posts. If there is a problem with eyes, then the only person you should be consulting is a Neuro Ophthalmologist. They are scarce here in Australia, but having waited for six months it is fiŕst week of next month. A normal Ophthalmologist is not good enough. But good luck and best wishes.

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Hi Barry, i’ve been reading more info on neuroplasticity: there is an app called “CURABLE HEALTH” which offers a step-by-step guide for those wanting to overcome their constant pain when drugs don’t help. I also suggest reading “Esthermariesmith.com” to find out more about Michael Moskowitz who has been researching and teaching about neuroplasticity for 10+ yrs. This science of mentally overcoming pain does work, but not for everyone as it involves much time and motivation. Helen

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1 reply
helennicola | @helennicola | Feb 22, 2021
In reply to @artscaping "Hi, there my paper neighbor.......@helennicola. Let's see if I understand. I think I said and actually..." + (show)
@artscaping

Hi, there my paper neighbor.......@helennicola. Let's see if I understand. I think I said and actually do the following: My day begins with duloxetine (which I am very happy with....anti-anxiety for the day and anti-depression) and a 1:1 tincture CBD/THC unless I will be driving and then I use a 2:1 CBD/THC. That's it until some easy 2:1 in the "lazy afternoon".

And in the evening.......about 9:30.....900 mg of Gabapentin. (that's 3 of the 300mg.) It starts to work right away and helps me sleep without all the numbness, tingles, and even worse, the needles. I do notice a bit of unsteadiness if I get up to use the restroom after midnight....just be aware. Just as I nestle in for the night I do a tincture of the 2:1 CBD/THC. I seldom wake up until late morning. That is because living with constant pain and other aggravating sensations just wears me out. And yet, if you are too fatigued, you become a bit depressed and then can't sleep.

This regime does take a commitment. Really messes up my day if I forget something along the way. And yet....it makes my day relatively predictable unless the itch crops up. I think you just need to be observant......and notice when you need to make adjustments. I don't know where you are......not CA or OR. You can travel to CA????

I sometimes read that now even 100% CBD can be helpful without any THC. The quality of the plants can make a difference. Fortunately, I haven't had to go down that path.

Let me know how this all works for you. I want to think of you as resting peacefully.
Chris

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Hi again Chris, I don’t know if you have tried all these possible itch solutions but I have written them down when I learn of them but keep forgetting to tell you! Please excuse if they are redundant and I can’t remember sources but here goes: Quercetin w/bromelaine, Evening Primrose w/vit. E, Hydroxyzine, onion skin powder, Dapsone, Adaptive essential oil, carbamazepine, oxcarbazepune. I’m not sure if I got spellings correct but just FYI! And wishing you be itch free! 😊 Helen

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1 reply
Mentor
Chris Trout, Volunteer Mentor | @artscaping | Feb 22, 2021
In reply to @helennicola "Hi again Chris, I don’t know if you have tried all these possible itch solutions but..." + (show)
@helennicola

Hi again Chris, I don’t know if you have tried all these possible itch solutions but I have written them down when I learn of them but keep forgetting to tell you! Please excuse if they are redundant and I can’t remember sources but here goes: Quercetin w/bromelaine, Evening Primrose w/vit. E, Hydroxyzine, onion skin powder, Dapsone, Adaptive essential oil, carbamazepine, oxcarbazepune. I’m not sure if I got spellings correct but just FYI! And wishing you be itch free! 😊 Helen

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Oh my goodness....thank you for contributing your time to help me learn more. I have heard of some of those and currently use Hydroxyzine, an antihistamine, but only when I am pretty desperate as it makes me a slug. I will print those out right now and begin a search party.

May you have joy and happiness......
Chris

REPLY
Barry Sheales | @user_che214927 | Feb 22, 2021
In reply to @helennicola "Hi Barry, i’ve been reading more info on neuroplasticity: there is an app called “CURABLE HEALTH”..." + (show)
@helennicola

Hi Barry, i’ve been reading more info on neuroplasticity: there is an app called “CURABLE HEALTH” which offers a step-by-step guide for those wanting to overcome their constant pain when drugs don’t help. I also suggest reading “Esthermariesmith.com” to find out more about Michael Moskowitz who has been researching and teaching about neuroplasticity for 10+ yrs. This science of mentally overcoming pain does work, but not for everyone as it involves much time and motivation. Helen

Jump to this post

Hi Helen, you are on the right track. I know a lot about Michael Moskowitz. He is one of the great pioneers of neuroplasticity. It happened by accident, as previously he totally believed the brain not to be plastic. He has developed a series of brain games to be completed online each day. I have started, but unfortunately I am having trouble with my sight, and am booked in to a neuro ophthalmologist early next month.. you should read and study bogth books of Norman Doidge, as you then become a believer. Overcoming paiin and the dreaded has happening with myself and many others around the world. Main requirements for success I believe are: Total belief, a nutritional diet excercise and getting excited.
REPLY
1 reply
helennicola | @helennicola | Feb 22, 2021
In reply to @user_che214927 "Hi Helen, you are on the right track. I know a lot about Michael Moskowitz. He..." + (show)
@user_che214927

Hi Helen, you are on the right track. I know a lot about Michael Moskowitz. He is one of the great pioneers of neuroplasticity. It happened by accident, as previously he totally believed the brain not to be plastic. He has developed a series of brain games to be completed online each day. I have started, but unfortunately I am having trouble with my sight, and am booked in to a neuro ophthalmologist early next month.. you should read and study bogth books of Norman Doidge, as you then become a believer. Overcoming paiin and the dreaded has happening with myself and many others around the world. Main requirements for success I believe are: Total belief, a nutritional diet excercise and getting excited.

Jump to this post

Hi Barry, love the pic! I’ve had Doidge’s 2nd book since before you mentioned him but have never finished reading it as I have not been sufficiently motivated🙄yet! I thought the app I mentioned sounded interesting for those wanting to try out the method because it sounded like it would pretty much spell everything out step by step. Anyway, I thought I’d mention all this just FYI. I wish you luck with your ophthalmologist appt. and hope he is able to help with your sight. Helen

REPLY
1 reply
Barry Sheales | @user_che214927 | Feb 22, 2021
In reply to @helennicola "Hi Barry, love the pic! I’ve had Doidge’s 2nd book since before you mentioned him but..." + (show)
@helennicola

Hi Barry, love the pic! I’ve had Doidge’s 2nd book since before you mentioned him but have never finished reading it as I have not been sufficiently motivated🙄yet! I thought the app I mentioned sounded interesting for those wanting to try out the method because it sounded like it would pretty much spell everything out step by step. Anyway, I thought I’d mention all this just FYI. I wish you luck with your ophthalmologist appt. and hope he is able to help with your sight. Helen

Jump to this post

The first book is probably the most important of the two. You will notice that in his second Doidge often refers you back to book one, especially on pain. I recommend you persevere. I don't just want releif , I want PN to be gone totally. It is not like going on a diet from time to time. IT'S a fervent wish to be healed, which will become the new you.
REPLY
avmcbellar | @avmcbellar | Feb 23, 2021
In reply to @jesfactsmon "@avmcbellar Thanks Toni. Yes Linda had the first dose of the Pfizer and she had no..." + (show)
@jesfactsmon

@avmcbellar
Thanks Toni. Yes Linda had the first dose of the Pfizer and she had no issues. I go next month I guess. Did you get yours?

I have read references lately that our society is going to achieve herd immunity by May or so. If true it would be amazing, and I would love to avoid taking the vaccine if possible. But do not know if it is really true or not.

Hope you are doing well. Hopefully you guys (in Fla.) did not get as cold as we did the last week! Best, Hank

Jump to this post

Hi Hank. Thanks, Im glad to be in a warmer climate. I don’t mind the occasional cold spell with temperatures nearing freezing here. Covering a few plants is not a bad price to pay considering what others were going through in subzero temperatures and snowstorms.

I did think about the vaccines and decided against it for now since not much is known about the coronavirus or the vaccines. My risks are very low for contracting the virus being I stay at home most of the time. I go out once a week to the grocery store. I don’t want to chance a worse health condition whether permanent or not. We don’t really know how much immunity we will get or for how long. I question immunity because with the vaccination(s) we will still need to keep our social distance and wear masks. Some people get the illness and show no symptoms. How does that effect us seeing our families? Nothing is really different with the exception the symptoms of COVID-19 will likely be less severe. I believe receiving the vaccine is a personal choice. Everyone is different with their risks for getting the disease and their health condition. Just like with any medication a person needs to see if his/her benefits outweigh the risks. Who is to say what is best to do? No one really knows.
I hope Linda is finally doing better with her neuropathy pain. I am glad other members reported their neuropathy pain has returned to normal after being vaccinated for the Coronavirus. Hope you both are doing well. Toni.

REPLY
1 reply
Hank | @jesfactsmon | Feb 23, 2021
In reply to @avmcbellar "Hi Hank. Thanks, Im glad to be in a warmer climate. I don’t mind the occasional..." + (show)
@avmcbellar

Hi Hank. Thanks, Im glad to be in a warmer climate. I don’t mind the occasional cold spell with temperatures nearing freezing here. Covering a few plants is not a bad price to pay considering what others were going through in subzero temperatures and snowstorms.

I did think about the vaccines and decided against it for now since not much is known about the coronavirus or the vaccines. My risks are very low for contracting the virus being I stay at home most of the time. I go out once a week to the grocery store. I don’t want to chance a worse health condition whether permanent or not. We don’t really know how much immunity we will get or for how long. I question immunity because with the vaccination(s) we will still need to keep our social distance and wear masks. Some people get the illness and show no symptoms. How does that effect us seeing our families? Nothing is really different with the exception the symptoms of COVID-19 will likely be less severe. I believe receiving the vaccine is a personal choice. Everyone is different with their risks for getting the disease and their health condition. Just like with any medication a person needs to see if his/her benefits outweigh the risks. Who is to say what is best to do? No one really knows.
I hope Linda is finally doing better with her neuropathy pain. I am glad other members reported their neuropathy pain has returned to normal after being vaccinated for the Coronavirus. Hope you both are doing well. Toni.

Jump to this post

@avmcbellarr
Thanks Toni! Such words of wisdom! I think what you have said here will be food for thought for me. I like that you view things in a very circumspect way, and I too would like to avoid the shot if I could. Especially since I am scheduled to have it in March in some remote place in the boondocks, 45 miles over narrow roads in some cow pasture, er, I mean, fairground somewhere 😳. Thanks for your usual cogent take on things! Hank

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