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jlor
@jlor

Posts: 19
Joined: Feb 26, 2018

Neuropathy pain.

Posted by @jlor, Fri, Sep 21 7:52pm

Hello, I have had this so called"neuropathy" for almost two years now, it began in dec 2016, symptoms got worse over the next few months, my a miracle, my symptom subsided in June last year, however, symptoms returned with a vengeance in November last year, almost 6 months symptoms free. I have severe burning and very painful tingling sensa.tions in my feet, primarily my right foot, left foot I can bear, in fact when I'm out and about, I don't feel symptoms in my left foot, but right foot is hell. Have tried , I think everything this planet can offer, now I'm on gabapentin, 800 mg 4 times a day, tried, duloxetine, tried amytriptyline , neurologists last year said I had axonal sensory neuropathy, skin biopsy last year, negative for small fiber, ncv this year was fine. I'm now seeing as a last resort a chiropractor specializing in neuropathy and I'm undergoing laser and electrotherapy. Can someone recommend other meds that can help, this pain is really excruciating. So far my hands are clear.

REPLY

Hello @jlor, I only have numbness with my small fiber peripheral neuropathy and take over the counter supplements which help some but there really is no cure for neuropathy. Medications treat or rather mask the pain and there are no topical creams or lotions that help with the numbness/tingling. Some of our members have found relief from the pain with medical cannabis and CBD oil. I would like to invite you to read and participate in the following discussion where you will meet members like @artscaping @gailfaith @vander626 and others that share some or all of your symptoms and can offer suggestions for you.

Groups > Neuropathy > Living with Neuropathy – Welcome to the group
https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/

If you want to read about how I found the supplements that have helped me and also helped other folks with the pain you can read my story here:
https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985

@jlor have you done any research on any of the treatments you are thinking about?

John

Thanks john, what supplements are you taking?

@jlor

Thanks john, what supplements are you taking?

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I take a protocol of vitamins and supplements from a closed Facebook Group I found while I was doing some research. Really too many to list off of the top of my head plus the dosage. It is at the bottom of my story that I linked to in my previous post but I'll repeat the link here.

Link to my PN story:
https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985

Link to the groups website that lists all of the vitamins and supplements I take.
http://solutions2pnpd.com/

Thank you John, I found it. This protocol, can you buy these from Amazon, there are some links to suppliers, and for how long shall I follow this protocol?. Had it helped you with your condition?. I'm going to try it.

@jlor

Thank you John, I found it. This protocol, can you buy these from Amazon, there are some links to suppliers, and for how long shall I follow this protocol?. Had it helped you with your condition?. I'm going to try it.

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@jlor I would not order anything until you join the group, read the new member information and the instructions for taking the protocol and understand how it all works.

I started taking the supplements/vitamins September 2016 and by December the numbness in both legs went from just below the knees to just above the ankles. I haven’t made any more progress since December but I’m OK with it since I feel it has stopped the progression. My neurologist had told me to just watch it and let him know when it gets worse – in other words there is nothing I can do to fix it. Others in the group with pain that had them bedridden have reported they are now able to live a normal lifestyle and have been able to taper off the drugs once they were on the full protocol and started feeling better. If you do decide to take a look and join the group, please read all of the information.

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