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Neuropathy pain.
Hello, I have had this so called"neuropathy" for almost two years now, it began in dec 2016, symptoms got worse over the next few months, my a miracle, my symptom subsided in June last year, however, symptoms returned with a vengeance in November last year, almost 6 months symptoms free. I have severe burning and very painful tingling sensa.tions in my feet, primarily my right foot, left foot I can bear, in fact when I'm out and about, I don't feel symptoms in my left foot, but right foot is hell. Have tried , I think everything this planet can offer, now I'm on gabapentin, 800 mg 4 times a day, tried, duloxetine, tried amytriptyline , neurologists last year said I had axonal sensory neuropathy, skin biopsy last year, negative for small fiber, ncv this year was fine. I'm now seeing as a last resort a chiropractor specializing in neuropathy and I'm undergoing laser and electrotherapy. Can someone recommend other meds that can help, this pain is really excruciating. So far my hands are clear.
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No, and was not mentioned in conversation with my GP (Doc) at the time he diagnosed my PN.
Will run this by him shortly when we discuss meds.
I believe in the "Mind over matter" approach to coping with my level of PN and also try to keep occupied which seems to help.
A bit of a "high" on MC sounds ok to me - Lol.
Bill
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1 ReactionHi Chris, how are you? glad you fared well with your COVD vacs. After reading your post it seems you are taking Gabapentin, Cymbalta, and MM to control your symptoms. I have considered Cymbalta (Duloxetine) per my neuro suggestion but MM is not yet legal in my state.My question is: do you have any side effects/interactions from the cymbalta and/or gabapentin? My neuropathy has become somewhat worse lately and the non-thc CBD doesn’t seem to help but after reading side effects of duloxetine I am hesitant. The gaba does put me to sleep but I now am looking for something to take during the day. Thanks, Helen
@helennicola someone on this site warned me about possible vision loss from Cymbalta
@bustrbrwn22 @helennicola
Hi Jen, Helen, fyi, here is the post where @lacy2 discussed that relationship between eye issues and Cymbalta:
https://connect.mayoclinic.org/discussion/when-things-just-dont-get-better/
Best, Hank
Lyrica. I have had peripheral neuropathy for 15 years and I take 200mg twice a day but that is a pretty high dose. The bad thing is, it only gets worse. Sorry
@lacy2
Hi JS, nice to hear from you but sorry to hear about your flare. Linda, my wife, has had a terrible one for about 3-4 days now, her feet are just burning SO BADLY. Very little to be done except use M.Marijuana occasionally.
It was kind of you to clarify your earlier take on the Glaucoma issue w.r.t. Cymbalta, for others benefit, such as Jen & Helen. One really must be very careful about taking anything, even if prescribed by a doctor. They are clearly not infallible.
Hope things are OK in Ontario with both yourself as well as your husband. How is his heart surgery recovery going? Is he able to be up and about now?
Best, Hank
@jesfactsmon thanks Hank!
@jesfactsmon send Linda my best. Sorry to hear about her pain level
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1 ReactionHi Hank @jesfactsmon I am so sorry to hear Linda has a terrible bout with neuropathy in her feet. I know many Mayo Clinic members have reported that after receiving the covid vaccine their neuropathy symptoms worsened. I hope this is a temporary situation. Tell her to hang in there. I have heard many say the side effects were worse with the second dose. I am assuming she got the Pfizer vaccine. Did you get the vaccine as well? Are you experiencing any negative reactions?
I have heard by definition it should not be called a vaccine because a vaccine prevents an outbreak of an illness instead of decreasing the effects of the illness. I also had heard the medication should be labeled as “gene therapy”. It is hard to say what is best to do since there is not much known with the effects of the virus or the medications. Best wishes to you both. Toni
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1 ReactionHi, there my paper neighbor.......@helennicola. Let's see if I understand. I think I said and actually do the following: My day begins with duloxetine (which I am very happy with....anti-anxiety for the day and anti-depression) and a 1:1 tincture CBD/THC unless I will be driving and then I use a 2:1 CBD/THC. That's it until some easy 2:1 in the "lazy afternoon".
And in the evening.......about 9:30.....900 mg of Gabapentin. (that's 3 of the 300mg.) It starts to work right away and helps me sleep without all the numbness, tingles, and even worse, the needles. I do notice a bit of unsteadiness if I get up to use the restroom after midnight....just be aware. Just as I nestle in for the night I do a tincture of the 2:1 CBD/THC. I seldom wake up until late morning. That is because living with constant pain and other aggravating sensations just wears me out. And yet, if you are too fatigued, you become a bit depressed and then can't sleep.
This regime does take a commitment. Really messes up my day if I forget something along the way. And yet....it makes my day relatively predictable unless the itch crops up. I think you just need to be observant......and notice when you need to make adjustments. I don't know where you are......not CA or OR. You can travel to CA????
I sometimes read that now even 100% CBD can be helpful without any THC. The quality of the plants can make a difference. Fortunately, I haven't had to go down that path.
Let me know how this all works for you. I want to think of you as resting peacefully.
Chris
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