My wife has autoimmune disease. She has inflammation in legs and arms.

Please note: Yes, we have had good discussions. We have been seeing this rheumatologist for years. As I previously remarked to another member of our group: Won't be seeing the rheumatologist. She replied via portal that my wife's options would possibly be, ironically, go to the Mayo Clinic or John's Hopkins. Impossible for us at this time as I am going through cancer treatments and we are the caregivers for my disabled step-son. Feeling like she believes there is nothing really wrong. Jeesh.

I've never heard of that, so, thank you so much. This website is wonderful as we can give each other our thoughts and what helps and what doesn't. God Bless You!

I agree. If you want more info just Google, "calcium and vitamin d to offset side effects of prednisone". Lots of reputable sources. I looked it up because I feared my wife had PMR and some PMR patients are on steroids for a long time. God Bless.

@twinsgyros I certainly understand why you can’t go to Mayo or John’s Hopkins but there may be some choices nearer. The Mayo Clinic has a Care Network of hospitals all around the world.
There may be one in you state. Try this link:
https://mayoclinic.org/about-mayo-clinic/care-network/members
Do you think this might be worth a try?

Thanks for the info. I had completely forgot about an affiliate just south of Knoxville ( 2 and half hr drive). Her rheumatologist (she has been a patient of hers for over 10 years) has had a change of heart when we told her the options offered were not viable. May have been some misunderstanding, but now she has told us not to give up and is requesting an appointment for reevaluation. I will keep your link, just in case. Very helpful. God Bless.

I am so sorry about the appointment with the rheumatologist being cancelled.
It's harder to be seen by a specialist quickly since Covid. I'm so glad she didnt have polymyalgia rheumatica. That's a hard disease. Have you searched under Google Scholar? There are boo coos of medical information that may shed some light on this. I'm so sorry you are battling cancer and also caregiver for your step-son. You have a heavy load. Praying fiercely for you & yours.

I would say yes to your question. Hashitmotos is inflammatory as well as the other diseases she has. My endocrinologist said my thyroid diseases were possibly causing the osteoarthritis that I am getting all over. I also have Graves Disease as well & Fibromyalgia. The combination is painful. I see a rheumatologist next week as I mentioned before. Stay tuned....

Don't know if you saw, but prayers have helped. Rheumy has since replied positively and a new appointment has been scheduled for reevaluation. Yes, I have done extensive Dr. Google searches. Thoughts and prayers to you too, God Bless

Amen. Will keep praying!

Sorry you have this pain. You have had CTscans, MRIs and xrays but have they taken a biopsy of the sore areas? I have EGPA short for Polyarteriris nodosa & Eosinophilic granulomatosis with polyangitis. Whew! thats why I use the short name. Basically this thing has sores and bumps on my lower extremities that are very painful and at times my feet feel like their haveing hot flashes with electric shocks.
I hope you find some one to help you, I'd stick with the Rheumatologist but be careful with prednisone as it has side effects. I took prednisone for Polymyalgia* for 18 months and ended up taking myself off of it because i gained nearly 30lbs and ended up with weakened muscles and bones, also new was High BP. So beware.