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My wife has autoimmune disease. She has inflammation in legs and arms.
Autoimmune Diseases | Last Active: Oct 28, 2023 | Replies (67)Comment receiving replies
Sorry you have this pain. You have had CTscans, MRIs and xrays but have they taken a biopsy of the sore areas? I have EGPA short for Polyarteriris nodosa & Eosinophilic granulomatosis with polyangitis. Whew! thats why I use the short name. Basically this thing has sores and bumps on my lower extremities that are very painful and at times my feet feel like their haveing hot flashes with electric shocks.
I hope you find some one to help you, I'd stick with the Rheumatologist but be careful with prednisone as it has side effects. I took prednisone for Polymyalgia* for 18 months and ended up taking myself off of it because i gained nearly 30lbs and ended up with weakened muscles and bones, also new was High BP. So beware.
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Thanks for the info. Funny you should mention biopsy. My wife's rheumatologist ruled out PMR (Polymyalgia rheumatica) after one round of prednisone (4mg pack) did not ease the pain. Research shows to rule out PMR some doctors use a biopsy of the temporal artery to make sure. She does have high rates of erythrocyte sedimentation rate (ESR or “sed” rate) and C-reactive protein (CRP) and her rheumy has agreed to reevaluate. FYI - as I have mentioned previously, when on a prolonged prednisone regime, many doctors prescribe high dose calcium and vitamin D to counteract effects of prednisone.