Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Posted by Tracy Lynne Daley @tracylynnedaley72, Jul 23, 2015

My name is Tracy Daley. I live in Omaha, Nebraska. My diagnosis is a jumbled mess that I am sorting out right now. Can anyone tell me if anyone in this support group has been diagnosed and/or treated for acoustic neuroma, a benign tumor affecting the acoustic nerve, which is the eighth cranial nerve in your brain? This nerve is connected to your ear. These tumors initially affect a person's balance and hearing and then other symptoms may appear. This is a very rare tumor and one out of 100,000 people and 8-9% of the intracranial tumors. If no one has heard of this tumor, I understand.

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jjanes3 | @jjanes3 | Feb 19, 2016

Hello- looking for info as well about acoustic neuroma. I have MS and get an yearly MRI. The found it last year but did not inform me it was 3mm. This year it is 4-6mm. I am in the information gathering stage. Thank you

Colleen Young, Connect Director | @colleenyoung | Nov 11, 2015

Hi @tracylynnedaley72
I thought I would take a minute to check in to see if you received a notification about @cynaburst's message to you. Would be great to help connect 2 people with a similar and very rare diagnosis.

Tracy, have you had surgery since we last heard from you?