← Return to Anyone else diagnosed with acoustic neuroma, a benign brain tumor?Discussion
Anyone else diagnosed with acoustic neuroma, a benign brain tumor?Brain Tumor | Last Active: Dec 20, 2022 | Replies (488)
Comment receiving replies
Replies to "Hi Tracy: My name is Rose. I was diagnosed with a acoustic neuroma in 2014. Very..."
I had No signs at all of having a brain tumor. No hearing loss, No headaches, no imbalance issues. So when I went in and my ent found a tumor. Well shock was not the word I felt. Unbelievable was more like it… Im getting better as far as walking straight and doing more. Ive just slowed down a bit.Im still active, but Ive changed how I do things now…
I am dnonnie , I had surgery 8 weeks ago and was wondering when you returned to work? my tumor was 2.2 cm and prior to surgery I had lost a lot of my hearing and my balance was deteriorating quickly. I am happy to say I am walking independently but still feel like a walk at times alike a toddler . did you go to vestibular therapy? I do yoga and walk a lot.
Hi dnonnie, Sounds like you are doing well! I was able to go back to teaching and driving in about 6 weeks. They didn't have therapy back in 1992. I did a lot of balancing exercises on my own. I still have to be careful, once I start to fall I am unable to react and catch myself! Think it is going to be that way for the rest of my life! I just have to be careful of the situations I put myself in. No ladders, etc!
Keep up the yoga and walking you will get your confidence back! Good luck! Hoosier 2
@katfred have you returned to work ? Are you over 50 yrs old ?? I’m curious because I’m still unbalanced but I’m 24 weeks postvsurgery
Hi Rose you are a very blessed person. So they did surgery and then the radiation on you. Didn’t you ever get physical therapy for your vestibular system? Thats what I’m going through now to bring it back to normal. It can be retaught. Ask for orders from your family doctor or ENT. This could change your life!
So very happy for your recovery! My daughter, 39 year old mother of two babies, has a 4cm benign Schwannoma on her brainstem. This was accidentally found on an MRI she had 1/23/19 when she suffered a major brain hemorrhage. She had the Craniotomy, Cranioplasty and is in a semi-conscious state in a nursing home. The neurosurgeon said the surgery to remove the Schwannoma is very risky because it is pushing on the brainstem and her neurological state.
Can you discuss your surgery a little more and do you know of any other options other than surgery?
Hi rose. I had surgery nov 23rd and i found mine by having vertigo and hearing loss. Im still battling balance and nauseu.. i life has changed, i was very active and now i cant walk a straight line. Its crazy how things can change so quickly