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Anyone else diagnosed with acoustic neuroma, a benign brain tumor?
Brain Tumor | Last Active: Dec 20, 2022 | Replies (508)Comment receiving replies
Rose - My AN was about the same size as yours and I had hydrocephalus also. Did you get a shunt for that? I got a VP shunt a week or so before they removed my tumor. Then, I had a 7 hour surgery to remove the tumor. I was very lucky that they were able to remove the whole tumor without leaving any behind. However, I do still have the shunt for life.
I was also very lucky not to be left with serious deficits besides the loss of hearing in my right ear. My surgeries were a little more than 14 years ago, and I am doing great. Very grateful to my skillful surgeons.
Replies to "Rose - My AN was about the same size as yours and I had hydrocephalus also...."
Hey CynaBurst:
I also had Hydrocephalus.And had a shunt in my head until after my surgery. My surgeon removed it before I left the hospital. I have 2 percent of the tumor still on my brain stem. I get yearly MRI to see if its growing...Every surgeon is different, as every tumor is different. Some days are a challenge. Others a Blessing...Hope all is well in your life...
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hey Cynaburst. I had a shunt a minute before my surgery. Than it was out for 12 hours. I have 2% of the tumor on my brain stem, and i get an MRI every year to be sure it has'nt grown. If it does I have to get spot radiation.I have no hearing on my left side due to the tumor and I have imbalance issues. Its not dizzyness, its like my head is floating all the time and noise is now amplified. Wind and rain, barometer changes cause issues for me.