My dad has a mass on bladder and kidney not functioning

Posted by formydad @formydad, Apr 24, 2019

He is getting surgery tomorrow to remove mass have no idea if cancerous- assuming they will send off – doc said removal may”jump start his kidney which he was unaware is not functioning.. he had prostate cancer and has brach treatment i believe – that cancers gone but i have been reading that having had radiation for it may lead to bladder cancer – anyone experience this?

Do you have any ideas about what to do about intense itching on belly – mom keeps calling it a burn like they dropped something on his belly during operation..? dad says its so bad he just wants to lay there

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@formydad

Do you have any ideas about what to do about intense itching on belly – mom keeps calling it a burn like they dropped something on his belly during operation..? dad says its so bad he just wants to lay there

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@formydad, As far as a topical relief – I got some relief with Sarna anti itch lotion. It is an over the counter lotion that I used before my liver/kidney transplant.

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@formydad

Do you have any ideas about what to do about intense itching on belly – mom keeps calling it a burn like they dropped something on his belly during operation..? dad says its so bad he just wants to lay there

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@formydad An allergic reaction to a medication, or something topical [betadine used to clean area for surgery, surgical tape, etc.]? Have your dad let his team know about it, in case it is a medication.
Ginger

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@gingerw

@formydad An allergic reaction to a medication, or something topical [betadine used to clean area for surgery, surgical tape, etc.]? Have your dad let his team know about it, in case it is a medication.
Ginger

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I think he has let them know but ill double check that and tell him about the lotion thank you!

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@gingerw

@formydad An allergic reaction to a medication, or something topical [betadine used to clean area for surgery, surgical tape, etc.]? Have your dad let his team know about it, in case it is a medication.
Ginger

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@gingerw great advice!

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@becsbuddy

Extra body fluid Draining has been an issue for my dad since his bladder removal surgery on nov 19- he had a build up of fluid that became very painful they finally got him into doc and they put a drain in for a few days in hosp and watched him as fluid drained he felt better and so they sent him home with it to monitor amount that continued to drain… well he went back to soc and they tried to just plug it to see how he would do but then it started leaking from the hole of the drain that was put in – so dad unplugged it and now its draining again into the bag.. its not slowing down though…
Has anyone experienced this? My dad says hes been searching for others who have experienced this and he has not yet found anyone.. im trying to help him find answers

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@formydad

Extra body fluid Draining has been an issue for my dad since his bladder removal surgery on nov 19- he had a build up of fluid that became very painful they finally got him into doc and they put a drain in for a few days in hosp and watched him as fluid drained he felt better and so they sent him home with it to monitor amount that continued to drain… well he went back to soc and they tried to just plug it to see how he would do but then it started leaking from the hole of the drain that was put in – so dad unplugged it and now its draining again into the bag.. its not slowing down though…
Has anyone experienced this? My dad says hes been searching for others who have experienced this and he has not yet found anyone.. im trying to help him find answers

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Any suggestions?

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@formydad

Any suggestions?

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@formydad Has your dad contacted his team to tell them about the modification he did? I think they would like to know. Having the setup he does may be his "new normal"?
Ginger

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@gingerw

@formydad Has your dad contacted his team to tell them about the modification he did? I think they would like to know. Having the setup he does may be his "new normal"?
Ginger

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Yes he was at the doctor when he had the drain adjusted- he is constantly checking anything before he does it with the team- he has his urine bag drain and a drain for extra fluids building up – not being absorbed but as of this am he is back in hospital with some sort of infection fever and is in pain with backed up fluids basically coming out “other bodily holes” is it possible that drain from having the bladder removal surgery is seriously going to be an ongoing thing? Besides his ostomy?
i cant find much online anywhere about other people having this surgery and having this issue to deal with has anyone heard of this?
fluids building

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@formydad

Yes he was at the doctor when he had the drain adjusted- he is constantly checking anything before he does it with the team- he has his urine bag drain and a drain for extra fluids building up – not being absorbed but as of this am he is back in hospital with some sort of infection fever and is in pain with backed up fluids basically coming out “other bodily holes” is it possible that drain from having the bladder removal surgery is seriously going to be an ongoing thing? Besides his ostomy?
i cant find much online anywhere about other people having this surgery and having this issue to deal with has anyone heard of this?
fluids building

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I am so sorry to hear about your dads ongoing problems @formydad. It must be So discouraging for everyone. It is not unusual to have complications after surgery. Have the doctors given you any ideas about why this has happened and what you can expect?

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@formydad

Yes he was at the doctor when he had the drain adjusted- he is constantly checking anything before he does it with the team- he has his urine bag drain and a drain for extra fluids building up – not being absorbed but as of this am he is back in hospital with some sort of infection fever and is in pain with backed up fluids basically coming out “other bodily holes” is it possible that drain from having the bladder removal surgery is seriously going to be an ongoing thing? Besides his ostomy?
i cant find much online anywhere about other people having this surgery and having this issue to deal with has anyone heard of this?
fluids building

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@formydad, I had 3 drain tubes in my abdomen after my liver/kidney transplant surgery to drain the ascites (fluid build up due to my endstage liver disease) Each one was removed when the drainage ended. They had all been removed by the time I was released from out patient care.
I imagine that your dear dad is worn out with worry and all of unanticipated additional ER and doctor visits. I like what @gingerw and @becsbuddy have said about talking to the doctor.

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Yes hes trying desperately to get answers. When he told them he had fluid coming out his”other end” they looked at him confused although thats exactly what was happening.and liquid looked exactly like what was in drainbag.
another doctor told him it was strange for fluid to come out of the actual cut drain hole after the doctor had plugged it to see if his body would absorb last week- it did not come out the drain because it was pugged started leaking from around the incision.. hes basically just laying inhospital tonight they did another culture today- they are doing a procedure tomorrow— not quite sure what- either putting in a new drain or. Something.. im frustrated and yeah i think he just isnt getting much out of docs on whats really the issue.. if its normal ok if its not ok so what do we do how do we resolve going back n forth for days at a time each time takes a toll. Im hoping more answers cone tomorrow.After original op he had a drain in hosp. They sent him home w/ out it
Then he filled with fluid was in pain went back up they pur a drain in- hes been watching Amts that drain puts out then went back to doc thats when he plugged to see if bod would absorb shortly after apt they left in store he had it draining out of the incision – thats when he called back and asked what to do
when he when he went to er this time it was more pain from fluid not draining- fever infection- guess we’ll see how it goes tomorrow . Just need so e answers thats all. I cant find much anywhere on this issue..

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