My creatinine levels have gone up, my GFR has gone down to 40.

Posted by nscappa @nscappa, Jan 15 9:33am

Hello Again,
This Nancy and I have had discussions before re my CKD3. I just got my blood work numbers and I'm disappointed. I can't give you exact numbers but my creatinine numbers have risen, my protein levels have risen, my GFR has dropped from (I believe) 44 down to 40. Also, for the past few days my urine output has slowed. I do see my nephrologist this Thursday but I am very worried. Any comments will be very much appreciated. : )

Interested in more discussions like this? Go to the Kidney & Bladder Support Group.

@windyshores

@leslie2121 Your eGFR was essentially normal when you were told you had "stage 2" which at an older age is fine- anything over 60 is normal. So I am wondering why there was protein in your urine? Glad you are feeling better!

Jump to this post

Yes, anything over 60 is considered “normal” but definitely below average for 65 year old. And the proteinuria not a good thing especially as it was increasing (172 to 195 over 2 years).
I don’t think anyone knows if this is connected to MGUS or just aging kidneys.
I believe there’s chronic inflammation in my body and the turmeric reduced it. 🙌

REPLY

Good for you. So you think the turmeric helped. Any special type of tea?? Wow, 64 to 71, amazing and so happy for you. I would be so happy to see my GFR numbers go up next week. I'm trying to drink 60 oz. of water since sometimes my urine output is slower than usual. Lord how I love talking about urinating. : ) I just may look into the turmeric and tea. Thanks so much for your information and take care. Nancy

REPLY
@leslie2121

Yes, anything over 60 is considered “normal” but definitely below average for 65 year old. And the proteinuria not a good thing especially as it was increasing (172 to 195 over 2 years).
I don’t think anyone knows if this is connected to MGUS or just aging kidneys.
I believe there’s chronic inflammation in my body and the turmeric reduced it. 🙌

Jump to this post

@leslie2121 What is normal for us is what is normal for us. It is difficult for me to believe some of the charts that indicate if your are such and such an age, your eGFR should be this number! We all are unique, and have to keep in mind a range, not a specific value. We look at what our labwork tells us, and look at trends.

Increased proteinuria could be a result of a condition, but it could also be the result of too much intake of protein in our own case. I have to increase my intake because I am on dialysis. But at the same time, I have multiple myeloma [with no renal involvement], so it is a fine balancing act to watch that. Dehydration, intense exercise, stress, diet and even pregnancy can also be a cause of proteinuria! Wow, did you know that!?
Ginger

REPLY
@nscappa

Good for you. So you think the turmeric helped. Any special type of tea?? Wow, 64 to 71, amazing and so happy for you. I would be so happy to see my GFR numbers go up next week. I'm trying to drink 60 oz. of water since sometimes my urine output is slower than usual. Lord how I love talking about urinating. : ) I just may look into the turmeric and tea. Thanks so much for your information and take care. Nancy

Jump to this post

I take Thorne turmeric capsules and drink 1 single sip serving of Republic of Tea turmeric. I tend to stay hydrated- rarely drink a diet soda, but do love iced tea.

REPLY
@gingerw

@leslie2121 What is normal for us is what is normal for us. It is difficult for me to believe some of the charts that indicate if your are such and such an age, your eGFR should be this number! We all are unique, and have to keep in mind a range, not a specific value. We look at what our labwork tells us, and look at trends.

Increased proteinuria could be a result of a condition, but it could also be the result of too much intake of protein in our own case. I have to increase my intake because I am on dialysis. But at the same time, I have multiple myeloma [with no renal involvement], so it is a fine balancing act to watch that. Dehydration, intense exercise, stress, diet and even pregnancy can also be a cause of proteinuria! Wow, did you know that!?
Ginger

Jump to this post

Aren’t our bodies amazing?

REPLY
@leslie2121

Yes, anything over 60 is considered “normal” but definitely below average for 65 year old. And the proteinuria not a good thing especially as it was increasing (172 to 195 over 2 years).
I don’t think anyone knows if this is connected to MGUS or just aging kidneys.
I believe there’s chronic inflammation in my body and the turmeric reduced it. 🙌

Jump to this post

Do you have a nephrologist? How much water does your nephrologist say to drink? Anyone else? How much does your doctor say to drink? I just had radical nephrectomy on January 12. I see doctor on January 30. What questions would you ask?

REPLY
@dougr19

Do you have a nephrologist? How much water does your nephrologist say to drink? Anyone else? How much does your doctor say to drink? I just had radical nephrectomy on January 12. I see doctor on January 30. What questions would you ask?

Jump to this post

I was followed by a nephrologist for a year but decided together to discontinue as there was nothing I was needing to do. Other than exercise, healthy Mediterranean diet, lose a little weight.
Limit alcohol, caffeine, sodas, which I already do.
Do you still have 1 kidney? Those are good questions for your doctor. How to protect renal function. I do know some drugs can damage kidneys so you will want to make sure anything you take is safe.

REPLY
@leslie2121

I was followed by a nephrologist for a year but decided together to discontinue as there was nothing I was needing to do. Other than exercise, healthy Mediterranean diet, lose a little weight.
Limit alcohol, caffeine, sodas, which I already do.
Do you still have 1 kidney? Those are good questions for your doctor. How to protect renal function. I do know some drugs can damage kidneys so you will want to make sure anything you take is safe.

Jump to this post

Hi Leslie,
Thank your information. I do have to exercise more and I have upped my water intake to about 60 ounces a day. I do have both kidneys, I have limited my coffee, I don't drink soda, I each little protein. My blood work this week will tell me how I'm doing by upping my water. My doctor thinks my numbers dropped because I may have been dehydrated and I knew I wasn't drinking as much as I should have been. Let's see what my blood work tells me. Thanks again! Nancy

REPLY
@dougr19

Do you have a nephrologist? How much water does your nephrologist say to drink? Anyone else? How much does your doctor say to drink? I just had radical nephrectomy on January 12. I see doctor on January 30. What questions would you ask?

Jump to this post

Hello, I'm sorry but I don't know what a radical nephrectomy is. I am upping my water intake to as close to 64 ounces a day as I can. He thinks that drop in my GFR numbers was due to dehydration and I think he is correct. I know I wasn't drinking enough so up it I did. As far as questions my doctor is very thorough and goes through every number so I can understand things. I do watch my protein, (very careful with salt), no red meat, chicken and fish. Maybe make a list of your questions so that you don't forget anything that you are concerned about no matter how many questions you may have. I wish you good luck with your appointment and please update if you can. Take care! Nancy : )

REPLY
Please sign in or register to post a reply.