My creatinine levels have gone up, my GFR has gone down to 40.

Posted by nscappa @nscappa, Jan 15 9:33am

Hello Again,
This Nancy and I have had discussions before re my CKD3. I just got my blood work numbers and I'm disappointed. I can't give you exact numbers but my creatinine numbers have risen, my protein levels have risen, my GFR has dropped from (I believe) 44 down to 40. Also, for the past few days my urine output has slowed. I do see my nephrologist this Thursday but I am very worried. Any comments will be very much appreciated. : )

Interested in more discussions like this? Go to the Kidney & Bladder Support Group.

By the way I'm still very active teaching and coaching. No one knows my age. Friends and fellow teachers think I'm in my 60's

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I just love it, good for you!!

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@westwood my friend has a GFR in the high teens. We are still doing okay, relatively speaking!

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@westwood

My heart tests were perfect Calcium, stress and echo tests were perfect. . Can't see my nephrologist till March 28. I'll be freaking dead by then. (In jest) but you get the picture. Total frustration

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@westwood Welcome to Mayo Clinic Connect! As you have read, we have many members here who deal with chronic kidney issues, and all the little variances surrounding that.

May I suggest you contact your nephrologist's office and ask to be placed on a cancellation list, and perhaps you can get in before end of March. Hey, it might happen! Also, as has been mentioned, our hydration has a lot to do with the eGFR, not only diet. And if it starts to fall, we may need to give our renal diet a lookover and tweak it even more.

Minimizing stress, moderate exercise, adequate rest, good healthy diet choices all can assist you in maintaining your optimum kidney function. Watch NSAIDS, processed foods. Remember that if you have a cold or infection, that may temporarily affect your eGFR, too.
Ginger

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@gingerw

@westwood Welcome to Mayo Clinic Connect! As you have read, we have many members here who deal with chronic kidney issues, and all the little variances surrounding that.

May I suggest you contact your nephrologist's office and ask to be placed on a cancellation list, and perhaps you can get in before end of March. Hey, it might happen! Also, as has been mentioned, our hydration has a lot to do with the eGFR, not only diet. And if it starts to fall, we may need to give our renal diet a lookover and tweak it even more.

Minimizing stress, moderate exercise, adequate rest, good healthy diet choices all can assist you in maintaining your optimum kidney function. Watch NSAIDS, processed foods. Remember that if you have a cold or infection, that may temporarily affect your eGFR, too.
Ginger

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Hi again Ginger,

I try to do all the things that I should re my CKD3 the only thing I don't do regularly is exercise. My depression doesn't help. I am very happy with my neph. and my blood work in two weeks should help with my questions to him. I could ask him if he thinks I should be seen sooner if he thinks it's needed. Thank you again for always being there for us. Nancy

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@windyshores

@westwood my friend has a GFR in the high teens. We are still doing okay, relatively speaking!

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Lucky guy
I dont want to chance that

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I'm not sure whether I use this site correctly for comments or replies, etc. I think I just replied or commented to another person thinking it was meant for me. When I read a comment from someone who has read my post, do I post my comment or reply to it??? I'm all screwed up!! : )

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@nscappa

Hi again Ginger,

I try to do all the things that I should re my CKD3 the only thing I don't do regularly is exercise. My depression doesn't help. I am very happy with my neph. and my blood work in two weeks should help with my questions to him. I could ask him if he thinks I should be seen sooner if he thinks it's needed. Thank you again for always being there for us. Nancy

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@nscappa My reply to you got lost earlier, doing it from my phone.

I understand the depression angle, and not getting out to exercise. But if you try walking around your house, or out into the yard for a few minutes, maybe just going around the block, you'll find how much better it makes you feel. Fresh air even for a few minutes, is a real tonic.
That's what I do, too.

It's all such a balancing act, isn't it? Diet, sleep, exercise, diet, and medications. We often need to change or "tweak" them around as the situation changes. I recently had to change up my dialysis prescription, stop some medications, and even rethink my diet. Whew!

What do you think about getting out for a walk?
Ginger

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Hi Ginger,

I'm so sorry to hear that you are on dialysis, it makes me feel like comments are easy compared to what you are going through. Yes, it does get a bit daunting at times. Thank you for all of your replies to my posts I so appreciate that. I was just going to post on another subject which is my constipation issues. What a pain in the a__. I will post in the right area and I'm sure you will get the chance to see what's been going on and all I want is a normal bowel movement without straining. I take Metamucil, Miralax, lots of water, roughage, on and on. What's a woman to do! Nancy : ) BTW, I am on many meds and I do wonder if this has anything to do with the issue. I have had colonoscopies and some removed and they were clean. Actually it's worse lately and I have read so many things re const. and they vary quite a bit. I took a laxative last night because I have to clean myself out. Sorry for the lousy subject.

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Hi Ginger,

I'm so sorry to hear that you are on dialysis, it makes me feel like comments are easy compared to what you are going through. Yes, it does get a bit daunting at times. Thank you for all of your replies to my posts I so appreciate that. I was just going to post on another subject which is my constipation issues. What a pain in the a__. I will post in the right area and I'm sure you will get the chance to see what's been going on and all I want is a normal bowel movement without straining. I take Metamucil, Miralax, lots of water, roughage, on and on. What's a woman to do! Nancy : ) BTW, I am on many meds and I do wonder if this has anything to do with the issue. I have had colonoscopies and some removed and they were clean. Actually it's worse lately and I have read so many things re const. and they vary quite a bit. I took a laxative last night because I have to clean myself out. Sorry for the lousy subject. This one came up twice. What the heck and I doing wrong??

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