Multifocal Adenocarcinoma of the lung, continual recurrences

Posted by Merry, Volunteer Mentor @merpreb, Dec 11, 2018

We have multifocal adenocarcinoma of the lung. @linda10 and @sakota.- Please join me in this discussion.

For a short explanation of this tongue twister. Briefly, Multifocal Adenocarcinoma (MAC) of the lung is a clinical entity of multiple synchronous (less than 6 months) or metachronous (more than 6 months), often ground-glass opacities (GGO) on CT scan, typically indolent-behaving cancers. There is a scarce amt of clinical data to guide treatment decisions.
This came from http://ascopubs.org/doi/abs/10.1200/JCO.2017.35.15_suppl.e20041.

This means that more than one potential cancerous lesion, mostly ground glass, shows up at a time. For instance I had 3 cancerous lesions 10 years ago in my left lung and in the same area. They were all different sizes. They grow at different rates.

Multifocal adenocarcinoma is a very complex cancer because the medical profession doesn’t know if the ground glass lesions are the primary cancer or small metastases of another primary cancer. They don’t even know where they start..

Multifocal Adenocarcinoma has sub types and it’s management is based on whether it’s indolent or very virulent.

These are very simplistic explanations. Even doctors are confused by it and it’s only been within the last twenty years that they have separated it from a Bronchioloalveolar Carcinoma (BAC).

The constant recurrences are the buggers. Not only do we have to constantly face lots of CT scans but when lung cells change, which they often do, we are in terror of another virulent cancer. I presently have several ground glass lesions. And I have had many that have disappeared. It’s enough to drive you nuts and PTSD is exacerbated by the frequency of these devils.

that I didn't know……. I just make sure its calorie free… but will not get smart water with electrolytes……is that safe?

REPLY

sakota- I drink it all the time

REPLY
@merpreb

sakota- I drink it all the time

Jump to this post

@merry. I try to keep things with electrolytes in the fridge as I do have a tendency to get dehydrated easily but this cold snuck up on me. Still doing a lot of coughing and feel like a semi hit me

Stay safe

REPLY
@sakota

Well. I got a fantastic cold @merry. And hoping it doesn’t get worse. Had a great Christmas but New Years was pretty quiet. How are you doing. Think of you all and keep you in my prayers. Sakota

Jump to this post

REPLY
In reply to @meka "@sakota" + (show)

Sakota, sure hope you are feeling better, and wishing all of you a good new year!! Have appointments at Mayo next week on Friday and Monday. Need to call concierge today.

REPLY
@sakota

@merry. I try to keep things with electrolytes in the fridge as I do have a tendency to get dehydrated easily but this cold snuck up on me. Still doing a lot of coughing and feel like a semi hit me

Stay safe

Jump to this post

Sakota- I do too. I had a cold a while ago that just hit me over the head. Please call your pulmonologist to get medicine that will calm your coughing. You don't want this in your chest!

REPLY
@meka

Sakota, sure hope you are feeling better, and wishing all of you a good new year!! Have appointments at Mayo next week on Friday and Monday. Need to call concierge today.

Jump to this post

Meka- So glad the time has finally come for your appts. Tell us all!

Liked by meka

REPLY
@meka

Sakota, sure hope you are feeling better, and wishing all of you a good new year!! Have appointments at Mayo next week on Friday and Monday. Need to call concierge today.

Jump to this post

@meka. Good luck and good news with your appts at mayo. The drs there are fantastic and will answer your questions. I am waiting to find out my apps for next month.

REPLY
@merpreb

Meka- So glad the time has finally come for your appts. Tell us all!

Jump to this post

Start Friday at 9:40, blood, MRI, think CT Monday Dr..K, oh would have to look it up again to spell it. Coming over early Thursday evening. Sure there is more, brain break though.. Energy hugs to everyone!!!

REPLY
@meka

Sakota, sure hope you are feeling better, and wishing all of you a good new year!! Have appointments at Mayo next week on Friday and Monday. Need to call concierge today.

Jump to this post

@meka did you know that Mayo Clinic Concierge Services know also has an online chat feature during business hours?

Here are all the ways you can contact Concierge Services:
Phone: 507-538-8438
Live Chat: https://www.mayoclinic.org/patient-visitor-guide
Email: concierge@mayo.edu
Web form: https://www.mayoclinic.org/patient-visitor-guide/minnesota/becoming-a-patient/concierge-travel-services
In-person in Rochester MN: Lobby hours are 8:00-5:00 Monday through Friday. Offices are located in the International Center in the Mayo Mathew’s Lobby, Executive Lounge on Mayo 5, Radiation Oncology Lobby – Desk R

Have you used their services before?

REPLY
@colleenyoung

@meka did you know that Mayo Clinic Concierge Services know also has an online chat feature during business hours?

Here are all the ways you can contact Concierge Services:
Phone: 507-538-8438
Live Chat: https://www.mayoclinic.org/patient-visitor-guide
Email: concierge@mayo.edu
Web form: https://www.mayoclinic.org/patient-visitor-guide/minnesota/becoming-a-patient/concierge-travel-services
In-person in Rochester MN: Lobby hours are 8:00-5:00 Monday through Friday. Offices are located in the International Center in the Mayo Mathew’s Lobby, Executive Lounge on Mayo 5, Radiation Oncology Lobby – Desk R

Have you used their services before?

Jump to this post

No I haven't, but try again, would like to be closer than a mile away, Holiday inn Express or is that okay??

REPLY
@meka

No I haven't, but try again, would like to be closer than a mile away, Holiday inn Express or is that okay??

Jump to this post

I take it you mean this location? Holiday Inn Express & Suites Rochester West-Medical Center, 155 16th Ave SW, Rochester, MN 55902
We stayed there in May and were happy with it. 2 things to keep in mind: 1. if your appointments are in the Gonda bldg, which I'm guessing they are, that is 1.1 miles away (I just checked Google maps. ) I know our first trip I thought everything was at St. Mary's until we got there! But, 2. everyone has shuttle buses running to both locations, so even if you're more than a mile away it shouldn't be inconvenient.

REPLY

There’s the Marriott or the dfferent kaylers which are connected right to mayo. Depends on the amount you want to spend

REPLY
@meka

Start Friday at 9:40, blood, MRI, think CT Monday Dr..K, oh would have to look it up again to spell it. Coming over early Thursday evening. Sure there is more, brain break though.. Energy hugs to everyone!!!

Jump to this post

Meka. If you can’t walk it. Just tell someone that you need a wheel chair and someone will take you to all your Appts Going for blood work is a little. It of an hike. Otherwise for other appts it’s just on different floors mainly. Good luck.

REPLY

Thanks everyone for sharing once again, it's so nice to know people have your back!!

REPLY
Please login or register to post a reply.