Merry, Volunteer Mentor
@merpreb
@merpreb
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Multifocal Adenocarcinoma of the lung, continual recurrences
We have multifocal adenocarcinoma of the lung. @linda10 and @sakota.- Please join me in this discussion.
For a short explanation of this tongue twister. Briefly, Multifocal Adenocarcinoma (MAC) of the lung is a clinical entity of multiple synchronous (less than 6 months) or metachronous (more than 6 months), often ground-glass opacities (GGO) on CT scan, typically indolent-behaving cancers. There is a scarce amt of clinical data to guide treatment decisions.
This came from http://ascopubs.org/doi/abs/10.1200/JCO.2017.35.15_suppl.e20041.
This means that more than one potential cancerous lesion, mostly ground glass, shows up at a time. For instance I had 3 cancerous lesions 10 years ago in my left lung and in the same area. They were all different sizes. They grow at different rates.
Multifocal adenocarcinoma is a very complex cancer because the medical profession doesn’t know if the ground glass lesions are the primary cancer or small metastases of another primary cancer. They don’t even know where they start..
Multifocal Adenocarcinoma has sub types and it’s management is based on whether it’s indolent or very virulent.
These are very simplistic explanations. Even doctors are confused by it and it’s only been within the last twenty years that they have separated it from a Bronchioloalveolar Carcinoma (BAC).
The constant recurrences are the buggers. Not only do we have to constantly face lots of CT scans but when lung cells change, which they often do, we are in terror of another virulent cancer. I presently have several ground glass lesions. And I have had many that have disappeared. It’s enough to drive you nuts and PTSD is exacerbated by the frequency of these devils.
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linda10
@linda10
@linda10
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Joined: Dec 06, 2017
I want to wish everyone a Merry Christmas and a new year filled with love, peace and good health.
Merry Christmas Merry! Thank You for all you do
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Merry, Volunteer Mentor
@merpreb
@merpreb
Posts: 5593
Joined: Feb 07, 2018
sakota9 (Joan)
@sakota
@sakota
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What I hate to hear is that things seem stable but yet we are watching this. It’s all just a waiting game because you know that it’s not always going to be stable. But guess Is like getting a box of chocolates. You just never know what’s in the middle. Lol. I really miss my parents when I do need their support and love.
Merry, Volunteer Mentor
@merpreb
@merpreb
Posts: 5593
Joined: Feb 07, 2018
What I hate to hear is that things seem stable but yet we are watching this. It’s all just a waiting game because you know that it’s not always going to be stable. But guess Is like getting a box of chocolates. You just never know what’s in the middle. Lol. I really miss my parents when I do need their support and love.
Hi sakota. That is the most disheartening news for us, but it doesn't have to be. It means, usually, that there are changes, yes, but it doesn't necessarily mean cancer. The nodules are very slow growing and if it's caught early, like ours are, that means our doctors are on top of it! It's like having a chronic disease.
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sakota9 (Joan)
@sakota
@sakota
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Joined: Dec 05, 2018
Hi merry. I know. Thank you so much for your support. I just got to keep reminding myself and I know there are a lot of people who are whose off then I.
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Merry, Volunteer Mentor
@merpreb
@merpreb
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sakota9 (Joan)
@sakota
@sakota
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Joined: Dec 05, 2018
Well. I got a fantastic cold @merry. And hoping it doesn’t get worse. Had a great Christmas but New Years was pretty quiet. How are you doing. Think of you all and keep you in my prayers. Sakota
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Merry, Volunteer Mentor
@merpreb
@merpreb
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Joined: Feb 07, 2018
sakota9 (Joan)
@sakota
@sakota
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Joined: Dec 05, 2018
@merpreb I have been lucky in not getting a cold since I was diagnosed. Been staying at home. I tell you this cold started out in the strangest way for three days and nights I had leg cramps that hurt so bad. Then they quit and now I got this cold. Guess I am just weird. I am waiting to hear from the pulmologist and cardiology for appts in February at mayo. Hope you get a stable report. The waiting game continues prayers for you.
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Merry, Volunteer Mentor
@merpreb
@merpreb
Posts: 5593
Joined: Feb 07, 2018
sakota9 (Joan)
@sakota
@sakota
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Joined: Dec 05, 2018
no reason it just seemed weird. I know I wasn’t dehydrated but did add gaterade and bananas. For potassium. One thing started and then ended up another. Lol I’m just a oddity.
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Merry, Volunteer Mentor
@merpreb
@merpreb
Posts: 5593
Joined: Feb 07, 2018
@merpreb
I want to wish everyone a Merry Christmas and a new year filled with love, peace and good health.
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