Multifocal Adenocarcinoma of the lung, continual recurrences

Posted by Merry, Volunteer Mentor @merpreb, Dec 11, 2018

We have multifocal adenocarcinoma of the lung. @linda10 and @sakota.- Please join me in this discussion.

For a short explanation of this tongue twister. Briefly, Multifocal Adenocarcinoma (MAC) of the lung is a clinical entity of multiple synchronous (less than 6 months) or metachronous (more than 6 months), often ground-glass opacities (GGO) on CT scan, typically indolent-behaving cancers. There is a scarce amt of clinical data to guide treatment decisions.
This came from http://ascopubs.org/doi/abs/10.1200/JCO.2017.35.15_suppl.e20041.

This means that more than one potential cancerous lesion, mostly ground glass, shows up at a time. For instance I had 3 cancerous lesions 10 years ago in my left lung and in the same area. They were all different sizes. They grow at different rates.

Multifocal adenocarcinoma is a very complex cancer because the medical profession doesn’t know if the ground glass lesions are the primary cancer or small metastases of another primary cancer. They don’t even know where they start..

Multifocal Adenocarcinoma has sub types and it’s management is based on whether it’s indolent or very virulent.

These are very simplistic explanations. Even doctors are confused by it and it’s only been within the last twenty years that they have separated it from a Bronchioloalveolar Carcinoma (BAC).

The constant recurrences are the buggers. Not only do we have to constantly face lots of CT scans but when lung cells change, which they often do, we are in terror of another virulent cancer. I presently have several ground glass lesions. And I have had many that have disappeared. It’s enough to drive you nuts and PTSD is exacerbated by the frequency of these devils.

Nancy, I am 66 and hope to grow up like you!!!

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@meka

Nancy, I am 66 and hope to grow up like you!!!

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Nancy (shortshot) Ha Ha…..Thanks I needed that. I had my son ddrive me 85 miles to a cancer place so I could have Radiation today. I also have to have it on Thursdaay, Monday , Wed, & Friday next week. Hope all this stoops the bleeding. Need Prayers! Nancy

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@shortshot80

Nancy (shortshot) Ha Ha…..Thanks I needed that. I had my son ddrive me 85 miles to a cancer place so I could have Radiation today. I also have to have it on Thursdaay, Monday , Wed, & Friday next week. Hope all this stoops the bleeding. Need Prayers! Nancy

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Well, I get radiation Thurs, Fri, Mon, Tues, Wed. I will be thinking of you if you think of me! Nothing nasty young lady!! Hang in there and air hugs your way!!

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@meka

Well, I get radiation Thurs, Fri, Mon, Tues, Wed. I will be thinking of you if you think of me! Nothing nasty young lady!! Hang in there and air hugs your way!!

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@meka– Sounds like mine the first time. Do you know what the radiation will be? I had 2 kinds. Proton the first time and photon the second. Are you nervous? YOu won't feel a thing

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@sakota

Hi merry I agree with so many things that you said especially about beating it. No one has that answer not even us. When i tell people i have cancer most just say how sorry to hear that and then i or they start talking other things. I go to mayo on april 22 for pulmonary testing and my ct scan so hope to answers on my left lung. You extra worried about the virus since we are high risk. I do what i can to protect myself and the rest is in Gods hands. My girls have been and are a great help. Hugs merry and keep in touch.

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@sakota– Hugs to you too. I'm thinking of you!

Liked by meka

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@merpreb

@meka– Sounds like mine the first time. Do you know what the radiation will be? I had 2 kinds. Proton the first time and photon the second. Are you nervous? YOu won't feel a thing

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Nancy *shortshot I've had Radiation before twice. don't know what kind but what the heck if it works. Nancy

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@meka

Well, I get radiation Thurs, Fri, Mon, Tues, Wed. I will be thinking of you if you think of me! Nothing nasty young lady!! Hang in there and air hugs your way!!

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@meka– Am thinking of you on your first day of radiation. How are you feeling?

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Thanks Merry, not sure how feel. Unfortunately, the weather sucks and I'm not in my home! Normal relief activities not available and first treatment isn't in 3:45. Oh well. How are you doing??

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@meka

Thanks Merry, not sure how feel. Unfortunately, the weather sucks and I'm not in my home! Normal relief activities not available and first treatment isn't in 3:45. Oh well. How are you doing??

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@meka– How are things going? Are you doing ok with this home confinement?

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@merpreb

@sakota– Hugs to you too. I'm thinking of you!

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@sakota– Hi- How did your scan go yesterday?

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Mer. Hi. Appointments all got pushed to June. Maybe eventually I will get them done. I had to call my counselor and talk to her as my anxiety is going overboard so then talked to my gp and she increased my dosage so that helps. How are you. Hope things are going ok for you. Anyone else’s anxiety goes whacko with this virus and then worrying about upcoming test results?? Take care mer

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@sakota– When in June Joan? Any appointments that I have before June (for now anyway) have been canceled and only one has been re-scheduled. My next scan is till on-so far- for June 24th. Joan, I'm with you on accelerating anxiety! I don't blame you for wanting help with this. It's an extraordinary time. May I ask what medicine she has given you?

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Hi Merry. My appointments are on June 23. Will be thinking about you. I have been on lexipro 10mg for awhile now so she just increased it to 20mg. Going to try it to see if it works. Will let you know how it goes. She suggested something else but thought I would just stick to lexipro first. My body absorbs lexipro fast so she was concerned about that.

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What did she suggest? @sakota

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@merpreb

What did she suggest? @sakota

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Mer one was Prozac but can’t remember the other one. Joan

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