Multifocal Adenocarcinoma of the lung, continual recurrences
We have multifocal adenocarcinoma of the lung. @linda10 and @sakota.- Please join me in this discussion.
For a short explanation of this tongue twister. Briefly, Multifocal Adenocarcinoma (MAC) of the lung is a clinical entity of multiple synchronous (less than 6 months) or metachronous (more than 6 months), often ground-glass opacities (GGO) on CT scan, typically indolent-behaving cancers. There is a scarce amt of clinical data to guide treatment decisions.
This came from http://ascopubs.org/doi/abs/10.1200/JCO.2017.35.15_suppl.e20041.
This means that more than one potential cancerous lesion, mostly ground glass, shows up at a time. For instance I had 3 cancerous lesions 10 years ago in my left lung and in the same area. They were all different sizes. They grow at different rates.
Multifocal adenocarcinoma is a very complex cancer because the medical profession doesn’t know if the ground glass lesions are the primary cancer or small metastases of another primary cancer. They don’t even know where they start..
Multifocal Adenocarcinoma has sub types and it’s management is based on whether it’s indolent or very virulent.
These are very simplistic explanations. Even doctors are confused by it and it’s only been within the last twenty years that they have separated it from a Bronchioloalveolar Carcinoma (BAC).
The constant recurrences are the buggers. Not only do we have to constantly face lots of CT scans but when lung cells change, which they often do, we are in terror of another virulent cancer. I presently have several ground glass lesions. And I have had many that have disappeared. It’s enough to drive you nuts and PTSD is exacerbated by the frequency of these devils.
Interested in more discussions like this? Go to the Lung Cancer Support Group.
@merpreb You are so right Merry. Everytime you go in for a ct scan its a surprise.. If you are lucky you get a stable report but next time it might not be ok, ….. time for surgery, zapped. I haven't had chemo yet , just the surgery and radiation…..
@sakota– what do you mean groups, for what?
Joan, your mouth hurts? Oh dear. There are exercises for it. I had it and the exercises helped it.
Joan, what types of groups are you looking for with adencarcinoma? I'm sorry I'm lost here.
I'm sorry merry I just didn't know who else to ask , so asked you……… I'll try to find someone else……..Didn't mean to confuse you. @merprep
Joan. I just don't know what you are asking. Can you rephrase your question?
Joan- Is this what you are looking for:
@sakota, I can help you find groups and discussions
1. Cramps, I suggest reviewing the discussions in the Women's Health group https://connect.mayoclinic.org/group/womens-health/
2. TMJ – We have several discussions in a few different groups. I'll like them all here and you can decided which one is for you:
– clicking jaw when i yawn or open my mouth but no pain or any problem https://connect.mayoclinic.org/discussion/clicking-jaw-when-i-yawn-or-open-my-mouth-but-no-pain-or-any-problem/
– TMJ questions https://connect.mayoclinic.org/discussion/i-clench-my-teeth-at-night-which-has-resulted-in-severe-tmj/
– Temporomandibular disorder or tmj disorder https://connect.mayoclinic.org/discussion/temporomandibular-disorder-or-tmj-disorder/
– Research on TMJ https://connect.mayoclinic.org/discussion/research-on-tmj/
Don't hesitate to send me a private message if you're looking for anything else.
@colleenyoung Thanks so much for the help and info.