Multi- valvular heart disease

Posted by bkvfuller @bkvfuller, Aug 26 3:39pm

I am 64 and have been followed for mild mitral valve regurgitation for several years. My last echo shows I now have mild tricuspid regurgitation as well. Due for another echo in October 2020. My concern is that I have felt fatigued for ages, often feel short of breath and my cardiologist does not want to do a catherization as it is too "invasive". Another concern I have is that the past 3 echocardiograms have shown elevated pressure in the right side of my heart. My pulmonary doctor did a chest CT scan and pulmonary function testing were normal. She indicated I might have pulmonary hypertension but a heart cath would be needed to determine that. Just curious as to other folks experiences with any of these issues.

Hi @bkvfuller and welcome to Mayo Clinic Connect! I am sorry to hear the news of your most recent echo and the increasing symptoms you are having like the fatigue and shortness of breath. I'd like to invite @nw945, @bjanderson, @davej, and @yoanne to the discussion as they have all dealt with heart valve issues or surgery. I also included a Video Q&A and a Podcast below that you might be interested in.
– Video Q&A Valvular Heart Disease – https://connect.mayoclinic.org/webinar/video-qa-about-valvular-heart-disease

– Podcast: minimally invasive surgery for mitral valve repairs – https://connect.mayoclinic.org/page/podcasts/newsfeed-post/minimally-invasive-surgery-for-mitral-valve-repair/

Is a heart cath something that you are willing to do to determine pulmonary hypertension? Have you sought a second opinion with someone who may feel confident to due the procedure?

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@amandaburnett

Hi @bkvfuller and welcome to Mayo Clinic Connect! I am sorry to hear the news of your most recent echo and the increasing symptoms you are having like the fatigue and shortness of breath. I'd like to invite @nw945, @bjanderson, @davej, and @yoanne to the discussion as they have all dealt with heart valve issues or surgery. I also included a Video Q&A and a Podcast below that you might be interested in.
– Video Q&A Valvular Heart Disease – https://connect.mayoclinic.org/webinar/video-qa-about-valvular-heart-disease

– Podcast: minimally invasive surgery for mitral valve repairs – https://connect.mayoclinic.org/page/podcasts/newsfeed-post/minimally-invasive-surgery-for-mitral-valve-repair/

Is a heart cath something that you are willing to do to determine pulmonary hypertension? Have you sought a second opinion with someone who may feel confident to due the procedure?

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Hello Amanda and thank you for the reply and information. I would be willing to undergo a heart cath if it would resolve questions and my concerns about what might be going on with my right side elevated blood pressure. I have read several articles that a right heart cath is the "gold standard" for making that determination. I have a heavy history of cardiac disease, family member with bypass surgery and heart valve replacement, most well before my age of 64. I have not sought a 2nd opinion for this. Thank you again for the information and response.

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If you can get to rochester mn see dr rehka mankad for second opinion. Her knowledge and professionalism is like no other I have seen. She will read the past charts have an in depth conversation with you asking questions and about those tests and results and your symptoms you are now having and you will both come up with a treatment plan, she did for me and I know she will do that for you also

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@bkvfuller

Hello Amanda and thank you for the reply and information. I would be willing to undergo a heart cath if it would resolve questions and my concerns about what might be going on with my right side elevated blood pressure. I have read several articles that a right heart cath is the "gold standard" for making that determination. I have a heavy history of cardiac disease, family member with bypass surgery and heart valve replacement, most well before my age of 64. I have not sought a 2nd opinion for this. Thank you again for the information and response.

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Hello @bkvfuller,

As someone with a lifetime history of valve disease (since age 11), I would concur about the importance of getting a second opinion. I would also recommend that you seek this second opinion from a well-respected heart center. Perhaps an institution like Mayo Clinic, Cleveland Clinic, or a university medical school in your vicinity.

I have also had a heart cath. They often do it through the wrist now. Much easier than through the groin and there are often fewer complications afterward. You might ask what route your doctor is planning on taking.

Can you get a second opinion at a heart center like these mentioned?

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@hopeful33250

Hello @bkvfuller,

As someone with a lifetime history of valve disease (since age 11), I would concur about the importance of getting a second opinion. I would also recommend that you seek this second opinion from a well-respected heart center. Perhaps an institution like Mayo Clinic, Cleveland Clinic, or a university medical school in your vicinity.

I have also had a heart cath. They often do it through the wrist now. Much easier than through the groin and there are often fewer complications afterward. You might ask what route your doctor is planning on taking.

Can you get a second opinion at a heart center like these mentioned?

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Hello Teresa, Thank you for the reply and the information. I will look into a well known heart center. Stay safe.

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@davej

If you can get to rochester mn see dr rehka mankad for second opinion. Her knowledge and professionalism is like no other I have seen. She will read the past charts have an in depth conversation with you asking questions and about those tests and results and your symptoms you are now having and you will both come up with a treatment plan, she did for me and I know she will do that for you also

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Hi davej, I appreciate the information. I doubt that I can travel that far for treatment, but will consider it. Stay safe.

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What state do you live in? Mayo is in AZ and florida. Cleveland clinic is also very good good luck davej

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I was diagnosed with severe tricuspid regurgitation in 2015. I was, also, 64. Along with that I have HF with preserved ejection fraction and mild pulmonary hypertension and Afib. Despite all of that I feel pretty good. Noticed more tiredness and out of breath while walking. I still try to keep active. Tricuspid repair or replacement will be in my future. I highly suggest you get over to Mayo….. they are the best! Best of luck to you.

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@bjanderson

I was diagnosed with severe tricuspid regurgitation in 2015. I was, also, 64. Along with that I have HF with preserved ejection fraction and mild pulmonary hypertension and Afib. Despite all of that I feel pretty good. Noticed more tiredness and out of breath while walking. I still try to keep active. Tricuspid repair or replacement will be in my future. I highly suggest you get over to Mayo….. they are the best! Best of luck to you.

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Hello @bjanderson
It is always good to hear from another person with heart valve problems who is staying active and doing the best under the circumstances. You mentioned that you have a preserved EF. Are you taking meds to help with your symptoms? I'm wondering if your doctor has given you any idea as to when the value repair or replacement might take place?

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@bjanderson

I was diagnosed with severe tricuspid regurgitation in 2015. I was, also, 64. Along with that I have HF with preserved ejection fraction and mild pulmonary hypertension and Afib. Despite all of that I feel pretty good. Noticed more tiredness and out of breath while walking. I still try to keep active. Tricuspid repair or replacement will be in my future. I highly suggest you get over to Mayo….. they are the best! Best of luck to you.

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I am glad to know that you are doing well after your 2015 diagnosis. Trying to keep active is a good thing. I will keep looking for a good heart center to get a 2nd opinion. Take care and stay safe.

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@bkvfuller

I am glad to know that you are doing well after your 2015 diagnosis. Trying to keep active is a good thing. I will keep looking for a good heart center to get a 2nd opinion. Take care and stay safe.

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My valve specialist, at Mayo, and I have decided to reevaluate every year. So far I do quite well. The valve surgery is a serious process I’ve been told. I take metoprolol and diltiazem for Afib and heart rate control. 🤞🏻🙏🏻

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I have a heart valve problem also and walking or going up steps I would get winded and couldn't catch my breath my heart dr at mayo dr rehka mankad said to stop taking metoprolol and see what happens well guess what I walk faster and longer climb more stairs and am alot less tired you might want to ask cardiologist about this my qualifications are ha 91118 2 stints put in after after my heart stopped 6119 shortness of breath went back to doctor told aeortic stensos bicuspid valve anyerasism still high blood pressure doctors recommended open heart mechanical valve 7120 mayo doctors got me back on track have to check in with them every 6 months but surgery in the distant future good luck dave j

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Well, welcome to my world. I started at Mayo in February 1966 and have not had to use the clinic hardly at all over the years. I am 80 now and at my last visit on August 7 the Dr. at Mayo said, "You are a healthy 80-year old. You don't look it and you don't act it." I feel your pain. I think we have similar problems. Stay with me.
At age 77 in December 2017 I had influenza A. I was hospitalized for five days. My wife said I vomited "violently" at home when I became sick of sudden onset. I had the same vomiting episodes in the hospital. I had always jogged 7-10 miles three times a week or walked 4-5 miles as an alternative. After my bout with influenza, I have not been the same. I went to Mayo in May 2018. It was determined I did damage my heart when I had the flu. I've had a TAVR because of aortic stenosis and had mild mitral valve regurgitation. I have a mitraclip and my last echo now showed moderate regurgitation. I also have developed severe pulmonary hypertension and am currently being treated for it with oral medication. All of these procedures were done transcatheter with no problems. I feel I am having side effects from the medication. I am exhausted, cannot walk very far, sleepiness and extreme tiredness, and any exertion leaves me very short of breath, and like I said, exhausted.
I was at Mayo August 5-6-7; Three days of testing. The cardiologist sent me back home to work with my cardiologist here and after three months he is to report to Mayo his findings. That will be November and he said they can decide then where to proceed. I am having a virtual consultation on September 21 with my Mayo cardiologist. Any and all procedures will be done in Rochester.
I would like to keep in touch with you and am interested how you are doing. WE sound similar. If you wish, you can private message me or post a reply here.

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@rois4richo

Well, welcome to my world. I started at Mayo in February 1966 and have not had to use the clinic hardly at all over the years. I am 80 now and at my last visit on August 7 the Dr. at Mayo said, "You are a healthy 80-year old. You don't look it and you don't act it." I feel your pain. I think we have similar problems. Stay with me.
At age 77 in December 2017 I had influenza A. I was hospitalized for five days. My wife said I vomited "violently" at home when I became sick of sudden onset. I had the same vomiting episodes in the hospital. I had always jogged 7-10 miles three times a week or walked 4-5 miles as an alternative. After my bout with influenza, I have not been the same. I went to Mayo in May 2018. It was determined I did damage my heart when I had the flu. I've had a TAVR because of aortic stenosis and had mild mitral valve regurgitation. I have a mitraclip and my last echo now showed moderate regurgitation. I also have developed severe pulmonary hypertension and am currently being treated for it with oral medication. All of these procedures were done transcatheter with no problems. I feel I am having side effects from the medication. I am exhausted, cannot walk very far, sleepiness and extreme tiredness, and any exertion leaves me very short of breath, and like I said, exhausted.
I was at Mayo August 5-6-7; Three days of testing. The cardiologist sent me back home to work with my cardiologist here and after three months he is to report to Mayo his findings. That will be November and he said they can decide then where to proceed. I am having a virtual consultation on September 21 with my Mayo cardiologist. Any and all procedures will be done in Rochester.
I would like to keep in touch with you and am interested how you are doing. WE sound similar. If you wish, you can private message me or post a reply here.

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Hi @rois4richo, I removed your personal email address from the message above. I recommend not sharing personal contact information in a public online forum. We don't want you to get unwanted spam as a result. Instead I recommend using the secure private message function to exchange contact information if you wish. However, I would like to point out that by sharing on the forum, your messages benefit many and we can all learn from each other.

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Thank you Colleen- I understand.

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