Mucous Membrane Pemphigoid

Posted by emmalouise @emmalouise, Jul 11, 2016

Need information on Mucous Membrane Pemphigoid.

Hi @emmalouise, and welcome to Connect! I found some information on bullus pemphigoid from Mayo Clinic: http://mayocl.in/29uCUvy. I’m tagging @gonefishinmt, @johnbishop and @earljohnson5030 as they have all discussed their experiences with this condition.

@emmalouise, can you share the information you’ve found so far with the group?

@alysebrunella

Hi @emmalouise, and welcome to Connect! I found some information on bullus pemphigoid from Mayo Clinic: http://mayocl.in/29uCUvy. I’m tagging @gonefishinmt, @johnbishop and @earljohnson5030 as they have all discussed their experiences with this condition.

@emmalouise, can you share the information you’ve found so far with the group?

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Thank you for the information. Mucous Membrane Pemphigoid is a little different than Bullous Pemphigoid. I have it in the mouth and being treated with Clobetasol Gel in mouth trays. I may have to take an oral steroid, which I don’t want to do if possible. I was wondering if there were any natural ways to cope with MMP. I recently read about concerns of taking probiotics if you have autoimmunity disorder. I have been taking probiotics for years and now decided to stop and see if that makes a difference.

I'm wondering if anyone is following this discussion? The reason I ask is that I was talking with my dentist this morning and she mentioned she has this condition and a group of her patients are also affected. Has anyone found any treatments that help? I did find a few links that may be helpful for anyone looking for more information.

National Organization for Rare Disorders:
https://rarediseases.org/rare-diseases/mucous-membrane-pemphigoid/

National Institutes of Health – Treatment strategies in mucous membrane pemphigoid
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2500254/

Management of mucous membrane pemphigoid
https://www.uptodate.com/contents/management-of-mucous-membrane-pemphigoid

JAMA Network – Successful Treatment of Mucous Membrane Pemphigoid With Etanercept in 3 Patients
https://jamanetwork.com/journals/jamadermatology/fullarticle/409132

Liked by lioness

Yes… info on MMP

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