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emmalouise (@emmalouise)

Mucous Membrane Pemphigoid

Autoimmune Diseases | Last Active: Apr 13 7:49am | Replies (13)

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@johnbishop

I'm wondering if anyone is following this discussion? The reason I ask is that I was talking with my dentist this morning and she mentioned she has this condition and a group of her patients are also affected. Has anyone found any treatments that help? I did find a few links that may be helpful for anyone looking for more information.

National Organization for Rare Disorders:
https://rarediseases.org/rare-diseases/mucous-membrane-pemphigoid/

National Institutes of Health – Treatment strategies in mucous membrane pemphigoid
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2500254/

Management of mucous membrane pemphigoid
https://www.uptodate.com/contents/management-of-mucous-membrane-pemphigoid

JAMA Network – Successful Treatment of Mucous Membrane Pemphigoid With Etanercept in 3 Patients
https://jamanetwork.com/journals/jamadermatology/fullarticle/409132

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Replies to "I'm wondering if anyone is following this discussion? The reason I ask is that I was..."

Hello John, I interacted with you on the Mayo PN group page. My wife has just been diagnosed with Mucous Membrane Pemphigoid. So I am very interested in the disease and any treatments you have found for controlling/managing this situation. Thanks, Terry Claar, Newark, Delaware.

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