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Mucous Membrane Pemphigoid

Posted by emmalouise @emmalouise, Jul 11, 2016

Need information on Mucous Membrane Pemphigoid.

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Mentor
John, Volunteer Mentor | @johnbishop | Apr 9, 2022
In reply to @jimhaz "Just recently I recieved a diagnoses of MMP the oral type. Where do I go from..." + (show)
@jimhaz

Just recently I recieved a diagnoses of MMP the oral type. Where do I go from here? Had biopsy came back positive. Concerned about eye progression, because my wife is blind, this could make life difficult.

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Welcome @jimhaz. There are a lot of unknowns when you receive a diagnosis and don't know what could be next.
@terrydclaar may be able to share some experience with you. The International Pemphigus & Pemphigoid website has a lot of patient education, treatment and support information that you might find helpful.

Patients – https://www.pemphigus.org/patients/
Treatments – https://www.pemphigus.org/treatments/

Did your doctor provide any suggestions or answers for your questions?

REPLY
1 reply
jimhaz | @jimhaz | Apr 10, 2022
In reply to @johnbishop "Welcome @jimhaz. There are a lot of unknowns when you receive a diagnosis and don't know..." + (show)
@johnbishop

Welcome @jimhaz. There are a lot of unknowns when you receive a diagnosis and don't know what could be next.
@terrydclaar may be able to share some experience with you. The International Pemphigus & Pemphigoid website has a lot of patient education, treatment and support information that you might find helpful.

Patients – https://www.pemphigus.org/patients/
Treatments – https://www.pemphigus.org/treatments/

Did your doctor provide any suggestions or answers for your questions?

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Dr. who found it was an orthodontist and doesn’t treat for MMP. Going to make appointment with Dr. at Mayo Clinic. Was there for another issue in Dec. Got great care.

REPLY
1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Apr 13, 2022
In reply to @jimhaz "Dr. who found it was an orthodontist and doesn’t treat for MMP. Going to make appointment..." + (show)
@jimhaz

Dr. who found it was an orthodontist and doesn’t treat for MMP. Going to make appointment with Dr. at Mayo Clinic. Was there for another issue in Dec. Got great care.

Jump to this post

@jimhaz Can you let us know how your MMP appointment at Mayo goes?

REPLY
Mentor
John, Volunteer Mentor | @johnbishop | Feb 7 6:59am

Hi Jim @jimhaz, Just thought I would check in with you to see how your Mayo appointment for MMP. Hoping all is well.

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